bwcetc wrote: »
Machka ... committing all of your life schedules/pertinent information to memory is ridiculous. For over 32 years I've had lists and notebooks full of information for my disabled son that have been more than just handy -- the've been necessary. I had documents with me when he had his oral surgery a couple of weeks ago and the surgical nurse was extremely glad I had them. She saidI "love when families have everything written down!" Your "professionals" there are behind the times.
Beth near Buffalo
margaretturk wrote: »
Machka Writing schedules and prompts are a way to reduce mistakes especially the meds. Some of the workman and service people I have worked with in the past couple of months could have used your system. It would have saved some errors. Irritating that they challenge you on something that is common sense. If they want him to work on memory skills why not play games like concentration. There are ways to help memory by acronyms and associations that make much more sense to me why not work on those skills. It also seems to me why not work on skills that help him focus.
We have been working with the medical system with our son for the past ten years. There are great people that really get it and are a great help. Others who are just doing their job. Others who make it more difficult. As best we can we try to maximize the ones who get it.
I learned as a school teacher that when I need to make sure others get a message I would try to send out some kind of reminder three ways and still know one or two would miss the memo. Communication even under the best of circumstance is not easy. I say whatever systems you work out between you and DH and reduces stress go for it.
barbiecat wrote: »
Machka, I have lists for everything and it's part of the reason that I can effectively deal with life. I agree that if I had to have a list to remind me to shower, brush my teeth, and dress, it would be a reason for concern. Just stand your ground. Have you gotten any real help from these RTW professionals? Barbie in NW WA
cityjaneLondon wrote: »
I don't write a lot down. A shopping list maybe. I have a small blackboard that I put things that I have run out of on. We both have diaries (real ones not digital )and we coordinate with each other to make sure we have everything . For example, I have all his cricket days in my diary. Occasionally one of us forgets to put something in that the other one is doing. Like my lunches with girlfriends. I am more organised than DH.
If I have a lot of important things to do then I make a list on a bit of paper the day before. I make a list for packing for holidays of things I don't want to forget, like ear plugs, chargers etc. But mainly I don't make a lot of lists or schedules. I do lead a very quiet life! It would drive me nuts to have a daily check list! So many things I didn't accomplish.
Much love, Heather UK xxxxxxx
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