Seeking support friends with chronic illnesses

Check out isometrics on you tube, there are lots of videos on it.

Sorry to hear about your condition. Your post reminded me that I have a chronic disease.
I have an IG condition and it's in remission but I can relate with the fact that exercising doesn't have the same effect as when I was healthier. It's been a source of frustration because I'm pretty sure my body somehow doesn't want to give up the calories. And I tend to get fatigued, not tired, fatigued. As in, the house could be burning, and some days I have a hard time pushing myself to get up and get going.
So yeah the rules of the game are different if you have a chronic disease or at least they should be. On top of that sick people have to do 'biographical work'. It's a sociology term that means you have to make and go to doctor's appts, you have to take your meds and you have to avoid inconveniencing people who rely on you, with your disease and any limitations that come with it. So don't measure yourself with the stick a healthier person measures herself because it doesn't apply.
It's ok if it takes longer to reach your goals because you have more work to do, less time and have less energy. It may not sound too cheery but somethings setting expectations goes a long way.

I'm here and I have psoriatic arthritis and grade osteo arthritis in one knee after botched acl surgery. People don't realise how debilitating psoriatic arthritis is. It causes pain in fingers hands, knees, hips and back and also intense fatigue. I focus on taking it one day at a time. My main thing is to stop comfort eating of sugary foods. I have cut out sugar now and grains, so thats also bread and pasta. Happy to support anyone else who is in health compromise.

Hi there, I know how your feeling. I’m also immunosuppressed and have been for two years now. The drugs work for the most part in controlling my symptoms but the added side effects aren’t too good. Recently this year we’ve had to add in random losses of consciousness to my what feels like never ending list of illnesses and I’ve noticed any form of exercise leaves me completely exhausted and I need to nap straight after. I’ve managed to gradually build myself up to being able to jog a 5km in about 25 minutes, but it’s taken time and patience (I think that’s the worst part), I’m not very good at having to wait to achieve a goal but long term ill health forces you to do that. I set myself the goal that I was going to walk 5km and pushed myself to walk it a bit faster each time until I felt able to jog it, I looked at my goal from a different angle, I wanted to jog a 5km in 25mins or less but knew that my illness could mean not being able to work up to a new distance each time so I made speed my objective. I’m also not supposed to exercise unsupervised (I’m severely allergic to exercising, no joke, I go into anaphylaxis) so it’s a pain having to rely on someone else’s schedule too.

GuyanaGold21 wrote: »

Hi! I can relate to your chronic health issues and their impact on exercise. I have been battling episodic migraines for 50+ years, and in 2007 was diagnosed with chronic migraine disease (15+ migraines per month).

Chronic migraines is one of my conditions so I know how you feel with them, I’m at the stage of having Botox every 12 weeks to try gain control

dianepenelope wrote: »

I'm here and I have psoriatic arthritis and grade osteo arthritis in one knee after botched acl surgery. People don't realise how debilitating psoriatic arthritis is. It causes pain in fingers hands, knees, hips and back and also intense fatigue. I focus on taking it one day at a time. My main thing is to stop comfort eating of sugary foods. I have cut out sugar now and grains, so thats also bread and pasta. Happy to support anyone else who is in health compromise.

I have PsA too. I can relate to others not taking it seriously. Was diagnosed at 10 and my family/some friends constantly compare it to injuries theyve had or make me feel like it cant be THAT bad. Just wanted to say you're not alone! I wish you luck on your journey

I’m so excited to see this thread! I was actually looking for a chronic pain group for MyFitnessPal. I have chronic daily migraines and degenerative disc disease as well as two cervical fusions. My ability to exercise is very limited. A group of friends that can relate would be extremely helpful!

I’m 37, live in the US, married with two kids (16 & 11) and recently became unable to work due to my condition. I truly believe some weight loss would not only help a bit of my daily pain, but also help with additional health issues such as depression and anxiety.

I also have MS. February will be 4 years since I was diagnosed. I don't exercise as much as I should, but I plan on trying more this year. Feel free to add me!