Welcome to the group!

Hi, this is Sara Evans from Grieving Mothers. My daughter Emily passed away on April 16, 2012 at 8.5 years old. She was disabled from birth due to undiagnosed/uncontrolled Infantile Spasms. This is a severe form of epilepsy that causes catastrophic brain damage. She was in and out of the hospital her entire life, and spent over 250 days inpatient during her last 12 months. We brought her home on hospice and she passed away in our bed. Our lives will NEVER be the same.

Replies

  • Stacylynn1977
    Stacylynn1977 Posts: 42 Member
    so sorry for your loss, Sara. I lost my son, Eli, dec 14 2010, he was 9 weeks 6 days old, he passed away from SIDS, today he would have been 22 months old, only 2 months away from his 2nd birthday, I spent all of 2011, not caring if I lived or died, life was not worth living without my son, i gained 140 lbs, in Jan of this year, i decided if I wasn't going to die, i was going to become healthy, and so I can spread awareness of SIDS and keep my son's memory alive
  • Hi, i lost my 17yr old son in June 2012. It wasnt expected and our lives will never be the same again. I miss him so much and it is the yearning for his smell and touch that will never leave me and haunts me. I constantly talk to him and have been lucky to feel him and experience his presence which gives me such comfort. I just seem to eat and drink since he went and i know if i continue to do this i am in danger of becoming obese and i want to live for him and every breath i take i want it to be for him, I end the day as the day before saying i will start my diet tomorrow, but i fail - i hope that one day i will do it!!!! otherwise i know he would be disappointed as he advised me when i used to run prior to him passing - maybe tomorrow will be the day xx