I lost the bloat -- and about 8 inches at the waist! -- in the first couple of weeks, along with maybe 5 pounds.

Since then, though, the weight.has jept climbing no matter what. They are checking my thyroid now.

Have you been evaluated for nutritional deficiencies? Those are really common with celiac, from what I have read. Thyroid problems and glucose problems, too. :-( It is all connected.

I have lost some weight but not as much as I figured I would. We have been diagonosed almost the same amount of time. Although my clothes are big not due to some bloating going down. I agree with Pickledginger, you should see about nutritional deficiencies, I was checked last week. I was anemic and low vitamin D. (I would strongly suggest looking in to it if you have been feeling depressed or felt like you have had anxiety.)

In my case, I did not gain, but was already big enough. I used MFP to realize I was not eating 1200 cal. More like 800 on average. I was starving by not eating enough on top of starving by not absorbing what I ate.
Note: I did NOT move on to any gluten free substitutes, but instead I cut all grains out of my diet.
I carefully monitored my calories to force myself to get 1200 to 1500, and was just patient. I lost most of the belly bloat in the first month. At 3 months I lost a few pounds. But by month six, they really started coming off. (at another Celiac forum 6 months seems to be the key time for loss to kick in)

Make sure you get healthy fats too. Coconut oil and avocados !!!!! Don't be afraid of healthy fats.

Be patient with your body. Its sick. You likely have gut inflammation and malnutrition. Focus on eating as healthy as you can, to get the nutrients you need. When your body begins to heal, you will see the results you want. A starving sick body cannot work right.
Good luck to you.

I went gluten free on July 17th. I've lost 20lbs since July. I wanted to be as safe as possible after going through hell with Celiac Disease (thought I was going to die at one point, misdiagnosed multiple times, put on a bunch of meds including multiple anti depressants, thryroid hormone and blood pressure meds.. I'm on zero meds now, but that's a whole other story).

I ate (and still eat) lots of eggs, fish, chicken, fruits, veggies, gluten free pastas and breads. I stayed within a calorie range and the weight started coming off. I lost the weight without even working out (I do workout now though). Because I know I wasn't absorbing nutrients for a long period of time, I eat the most nutritious foods I can. I've been gluten free for about 3 months now and I'm doing better then ever. I started out slow, eating around 1200-1300 calories. Now, 3 months later, I'm up to 2000 calories (because I'm exercising now) and the 20lbs is still off.

As an example, the past three days you'll see I ate bananas, sweet potatoes, kiwis, kale, tilapia, almond butter, almond milk, oatmeal, avocado etc. Eating nutritious healthy foods is what worked and still works for me. Feel free to take a look through my diary.

Good luck, it's hard but you'll get there. Just have patience and stay strict.

When eliminating grains make sure it's not hidden in your seasonings & condiments, usually the last place that one will look. ie cornstarch or rice flour

My husband and I both lost 15 lbs when we started Mark Sisson's Primal Blueprint Diet. But not just grains are omitted, no sugar either. It was a stretch for me, but I had never felt better. Learning to eat this way is hard, but I am finding the discipline needed. Eating what I want is just now starting to become less a priority and feeling great is... I still have my "What was I thinking?!" days. Taking care of yourself is a process, a journey. It has to be a priority. Still learning this. Don't give up! Hoping you see the results you are after!

~Amy

I gain 50 with in the 1st 6m. that was without all the processed foods.

For me I was 110 pound before I found out I celiac. I could eat what ever I wanted before and not gain. I know I had to learn how to eat It just took me over year to do it and 90 pound in total.

no change here. i think many people who lose the weight when they go GF is simply because they cut out those calories but dont replace with anything.

i dont eat a lot of store made GF stuff because 95% of it is gross texture-wise and just not worth eating it

When eliminating grains make sure it's not hidden in your seasonings & condiments, usually the last place that one will look. ie cornstarch or rice flour

This.

Also, I had to go egg and dairy free for a year, it helped me lose weight and healed my gut. Apparently, it's pretty common for people with celiac to have a TEMPORARY reaction to eggs and dairy.

I have only been gluten free for 5 weeks now. I decided to try it because I'm anemic. The low iron really affects my running and a friend with Celiacs suggested that this may also be my problem. I have not been diagnosed by a doctor, but I thought I would try altering my diet to see if I notice some positive changes.

As far as weight goes, I was at my goal weight when I first went gluten free. I have lost 5 more pounds in five weeks. I attribute the loss to not eating desserts or breads, which have been a prominent part of my diet. However, the loss could be due to increasing my running distance.

I feel like it is too soon to see results, but I do feel more energetic lately and overall I feel pretty good.

Has anyone else had success with increasing your iron levels after going gluten free?

My iron levels shot up, and didn't need to. I was in the normal range, and then shot up to way to high!!!! I now fight to lower my iron levels. Give it time, it will happen!

Going gluten-free was one of many changes I needed to make to lose weight. On a friend's recommendation, I went to a new naturopathic doctor who diagnosed my gluten intolerance, anemia, and overall sluggish system. I decided it was time to make some serious changes for my health, and went gluten-free and joined MFP about 6 weeks ago. I've lost 17 pounds so far, and I think it's from not only going G-free, but also because I eat less baked goods and sweets in total, plus getting more exercise. I still need to revise my diet in other ways, but enough changed to make a significant impact. MFP helped me see too that G-free sure ain't calorie-free. I get my iron level checked again in about a month, but I already feel better.

I found I had to lose the grains, and most of the GF substitute junk in order to shed the pounds. I initially lost weight once GF, but then started to gain again. Then I looked what was in my food - urrrgh, lots of sugar, salt, and vegetable oils and gums and binding agents and all sorts. Nutritionally, they suck compared to wheat products (which aren't so great either, particularly if they're refined), but there are a lot of calories in them, so if you're restricting calories but using a lot of these things, you're not getting much nutrition.

GF baking is a treat and I use mostly ground almonds, coconut flour, or occasionally some buckwheat or rice flour. I use potato starch as a thickener for sauces etc. I am 90% grain free, occasionally I have some rice, or GF pasta, but it's very occasional and I nearly always pay for it with bloating and discomfort, but I do have Crohns disease as well as celiac, so my reactions to grains are probably more extreme.

Now on a Primal plan (no grains, legumes, processed food, limited sugar) I can eat far more calories than I used to, I feel full quicker, don't need to snack so much and the inflammation is tons better because I am eating tons of healthy fats, particularly a lot of fish. It can take up to 2 years for celiac damage to heal. One of the other things I quit was alcohol, and that's also making a difference to my waistline.

My weight loss was dramatic.... 7lbs in one week... then I gained a few back testing and eating gluteneeee stuff and reacted. Admittedly, I ate fast food with gluten on purpose... to track it.. and my body's reaction.

I can apparently handle gluten in very small amounts... but a sandwich or spaghetti is something I will pay for 24 hours later.

I am eating totally clean and have dropped 2lbs this week again. It goes in spurts it seems but that's what your body does.

You have to understand, gluten is poison to your body and it needs to heal. Eat as clean as you can. I'm eating cashews, egg whites, plain ground turkey patties, yogurt, applesauce, red pears (omg omg yum!), tangerines, spinach, green beans, salmon (2x a week), avocados.... things like that. Simple. No complicated recipes. My stomach is in "heal mode" and I will probably eat plain like this as long as I can to really, really heal my body. I also take a lot of anti-oxidants and I monitor the fat soluble vitamins and supplements I put in my mouth so I don't do damage there....

I don't kill myself working out and don't have a gym membership like I used to. I have workout DVD's... and I listen to Pandora and when a song comes on with a good beat, I work out during the song doing situps, lifting weights to the beat, and general aerobics. Then I rest... then I do another song, rest, another song.... and it's ramping up my metabolism throughout the day and it seems to be working for ME.

Everyone is different. I feel for you as I suffered for a long time before having a relative get diagnosed with a TOTAL gluten intolerance... and her symptoms were just like mine. Turns out mine isn't AS bad, but still. I have to be careful...

Good luck!