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Advice about my son pls

hdlb111
hdlb111 Posts: 20 Member
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My son has been miserable for the last month. Hes almost 3. Crying, having fits, hitting, kicking, biting. Waking up every night (nothing new there) waking up in the monring screaming "owie" but not being able to tell us what is going on. We were fighting colds all month (going from person to person) so I just assumed that it was that.

And then he had a horrible allergic reaction to goldfish crackers. Tongue swelled, lips swelled, face rashed. He does have an intolerance to dairy and soy, but they have been getting so much better.

We immediatly took him off dairy, soy, gluten and corn until we see the doc next week. But hes a whole different child. Hes not crying, hes happy and playing, he slept for 14 hours last night, and for the first time since he was born, he had (TMI, sorry) a solid poop. Hes always had mushy, runny etc and the doc told us it was normal, he just has a "sensitive tummy".

I'm assuming its the gluten? I have celiacs, and so does my mom so its not like he doesn't have a family history of it. Thoughts?

Replies

  • restoreleanne
    restoreleanne Posts: 217 Member
    With the family history you would think so. I know our Dr will not send My little girl (22m) to be tested she said to wait till she was at least 5. he sounds like she was after we started rice cereal at 6m old. by 8m she was on a gluten free like me and has been fine just labled gluten sensitive for now. she has some gets a rash on her face and bowel movements cause a rash on her bottom plus all the other fun issues.
  • jus_in_bello
    jus_in_bello Posts: 326 Member
    With such a severe reaction he might have a wheat allergy. If he's doing well on a GF diet I see no reason not to keep him on it, ask his doc about vitamins or supplements if he stays GF, but keep him on it, and tell everyone. I have a few friends who have GF kids and that is a battle, getting the parents of friends to not feed him non-gf stuff, one friend's mom kept feeding her gluten food, that was bad, but tell everyone it's a wheat allergy, people respect that way more than a gluten intolerance, and I'm all about lying to keep your kid healthy. Hell, I lie about it all the time, everyone things I have a wheat allergy because it's easier.
  • hdlb111
    hdlb111 Posts: 20 Member
    With the family history you would think so. I know our Dr will not send My little girl (22m) to be tested she said to wait till she was at least 5. he sounds like she was after we started rice cereal at 6m old. by 8m she was on a gluten free like me and has been fine just labled gluten sensitive for now. she has some gets a rash on her face and bowel movements cause a rash on her bottom plus all the other fun issues.


    Same here. They won't do any kind of allergy testing on young kids here. Honestly I have no desire to have him tested for celiac, wether he has celiac or a gluten sensitivity, it doesn't make a difference. The treatment is the same.
  • Erin1712
    Erin1712 Posts: 21 Member
    That sounds just like my son. Once going GF he has been happier and sleeping and the solid poop! LOL He feels so much better he now knows that gluten makes him sick and he always asks if it is gluten free. I have celiacs and so does my grandma so it is in our family as well and it turns out my sons do as well. My baby got bad diaper rash once wheat was introduced and it finally went away once we went GF.

    My doctor doesn't do allergy testing. He thinks the best allergy test for children is the dietary elimination. If things get better without the food then there is obviously an issue with the food. He thinks diagnoses should be that easy. No poking needed.
  • AlsDonkBoxSquat
    AlsDonkBoxSquat Posts: 6,128 Member
    I'm surprised that with your history your doctor wouldn't assume, mine did. My 3 yo has been gluten free since he was about 5 weeks old and I took dairy, soy, and gluten out of my diet. I know immediately when he's had something he shouldn't. Seems to me like you have your answer.
  • little_miss_panda
    little_miss_panda Posts: 79
    I'm surprised they haven't tested him already with you being celiac.

    Probably would be good to know if he is or not, the treatment is the same for celiac or gluten sensitivity, but there are certain risks associated with celiac that (in theory) are not as great for gluten sensitive people - the malnutrition issues, slight increase in cancer risk for example.

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