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Hi all, so pleased to be able to share in this journey with others that suffer with Lupus too. I am 39 years old and was diagnosed 9 years ago. I have been particularly poorly over the last few years and am on a fair amount of medication including mycophenolate, hydroxychloroquine and the dreaded prednisolone (have been on prednisolone for 4 years now and its likely I will have to stay on long term). The problem, as you will understand, is the weight gain but I am determined that I am going to lose weight, I need to as it is making the health problems so much worse. I have a long way to go, and really need support and encouragement from those that understand how difficult it is to lose weight when you have health issues, if I can help anyone in return I will happily. Thanks for listening and please feel free to add me as a friend
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Hi everyone - glad there are others here who know what a ***** prednisone is! I'm a 32 year-old mother of one, diagnosed at 19 with SLE and Reynaud's and at 24 with lupus nephritis. I've been on prednisone since my first diagnosis and have tried/rejected almost every conventional lupus medication out there. I started Benlysta last year as a last-ditch effort to control my symptoms and it's made me into a new woman! I'm hoping this is the year I can finally get off the bloat-coaster, but I also want to get in great shape so that if I ever start to get really sick again my body will be ready for it. I want to stay healthy and happy for my husband and son. :-)
...and also to fit back into my skinny jeans. I'm a little vain.0
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