Need to vent

Sorry, I can't really do this on Facebook or on my status on MFP, I just need to vent somewhere.

Before my PCOS, I had awesome hair - I'm sure that's the case for most of you who have suffered from hairloss. In the space of just over a year, I've lost what I would say is about 40% of my hair, and I'm devastated by it. I get by with cutting it short, which is horrible because it was the only thing I could make look good, having been overweight all my life. You know it's such a comfort and easy way to make yourself feel good by doing your hair nicely, right?

So, I haven't mentioned to any of my friends about it, I'm sure they've noticed but I haven't been open about it apart from with one mate, and she has masses of hair, like it takes her 3 bottles of hairdye to do her hair, and it's only just below her shoulders in length. And every time I mentioned anything about my hair loss, which I don't do that often, she always goes on about "Oh I wish that would happen to my hair, I have so much of it and it's a hassle. I wish I had your hair". I mean, I love her and everything but what the hell?!?!?!?!?

Replies

  • Need2lose456
    Need2lose456 Posts: 131 Member
    okkkkk.......I think she is probably just trying to make you feel better by talking about how crap it is to have such thick hair(and it really is crap, im an ex-hairstylist). I am losing my hair as well, so i understand how you feel. For me, the facial hair is what i hate the most. What i have found is speaking of your condition and helping those around you understand it too, will ultimately help you. i used to hide, be ashamed, stay away but now i talk about the facial hair to people, i explain whats happening in my body and how it makes me feel, and i find that once people understand, they are less likely to be judgmental.

    Hang in there, you have started a journey to tackle the PCOS, things will come right, just be positive and have faith!
  • WifeofPJ
    WifeofPJ Posts: 312
    I'm sorry I know how selfconcious hair issues can make a woman. I think my hair has started to thin a little as well, I also suffer from the facial hair. But as missvee said it is a little easier on me when I talk to people about it. And after finding out that I had PCOS I started mentioning my hair issues, and actually i am less selfconcious about it because people know about it and know why.
  • wizkklx
    wizkklx Posts: 19 Member
    Personally I find short hair way sexier but I get that our society tells women that long hair = sex appeal. Anyway, rant away, we hear you :) Well meaning friends... sigh

    On a practical note get yourself some good make-up like an extra stupidly long/think mascara for times when you need to feel extra fancy. Get your nails done or a pedicure (from a friend or sweetie if you don't want to spend a lot). If you can spend some money, get some sexy shoes; shoes look great on everyone no matter what size they are!
  • I just popped in to say how wonderful people seem on this forum. I am not diagnosed with PSOC ..at least not yet. I have a Dr. appointment on Tuesday and will know more from there, but I have a strong feeling about it and I have to say that if I do have it ....I am happy to know there are such fantastic caring people here to share the ups and downs with.

    P.S. I very much like the idea of the previous post in finding a new way to feel sassy/sexy. Stand tall but know that there are people to catch you if you fall.
  • I just popped in to say how wonderful people seem on this forum. I am not diagnosed with PSOC ..at least not yet. I have a Dr. appointment on Tuesday and will know more from there, but I have a strong feeling about it and I have to say that if I do have it ....I am happy to know there are such fantastic caring people here to share the ups and downs with.

    P.S. I very much like the idea of the previous post in finding a new way to feel sassy/sexy. Stand tall but know that there are people to catch you if you fall.

    PCOS...correction. lol
  • helengetshealthy
    helengetshealthy Posts: 171 Member
    @missvee85 - Yeah I guess she is trying to help but at the same time, she seems to be trying to convince me that it's not happening, which is kind of stupid :/ I just hope that getting my health on track will reverse the symptoms!

    @WifeofPJ - I think that telling even some of my friends has actually made it a little more easy on me, like I'm still not okay with it, and never will be, but I guess it's made me feel a bit less stressed about it.

    @wizkkix - Thank you, I just can't really rant about this stuff anywhere else, sometimes I get so.... ARGH! I'll take that advice about other ways to feel good, make-up would be a good start lol. It's just so hard to get over not having loads of hair to play with, you know?

    @photojunkie28 - I'm not technically diagnosed either, but there's no doubt in my mind that I have PCOS, all the symptoms are there and a family of diabetes means I am likely to be insulin resistant. Boooo to pcos :( I hope your doctor's appointment goes well, and we're all here whatever your news it :)

    Thanks to you all for replying :) I reeeeally needed to vent!
  • CysterWigs
    CysterWigs Posts: 136 Member
    This thread is so familiar. I could have written your post, I swear. I have AA from PCOS and now I am a full-time wig wearer.

    I actually recorded a video about the whole thing here:
    http://youtu.be/2AvizrFxqWM

    I went to dozens of doctors between 1997 and 2007 before someone FINALLY diagnosed me with PCOS. That whole time my hair kept falling out and I felt completely helpless to stop it. Now that I'm on spiro and watching my diet, the hair loss has slowed, but the damage is already done. Unfortunately, once a hair follicle dies, that hair doesn't come back. You can see how thin it is in the video. I channeled my frustration with the whole ordeal into opening my own PCOS wig store. I tried to rock the short hair, but the thinner my hair got, the shorter my hair had to be to hide it. Then I had to start applying make up to my scalp to camouflage the blad spots. THEN I had to start bleaching it to puff up the hairs. I finally bought a wig and realized it was 100 times easier...and I got better looking results. Now I play with my bio hair any way I want because - who cares? It's under a wig most of the time. I also have some wig reviews on YouTube. You can definitely tell the difference. I also don't worry about people noticing it's not my "real" hair. I mean, my "fake" hair looks better than their biohair most of the time, so I feel like I win. ;)