Getting fit after diagnosis
pennylaneto
Posts: 4 Member
Hello all!
I am new to MFP...kinda. Joined a while ago, but was feeling under the weather for a long time.
I am 26 years, and was diagnosed with MS 2 years ago, though they believe I had my first flare up when I was 16.
I've had a rough couple of years, but I now I am feeling better, and I want to take advantage of this. I want to become as healthy as I can be, and that includes on getting fit!!
I want to hear the best work outs for all of you. Specifically if you started to get fit after your diagnosis. I use to be athletic, but sadly gained a whole bunch of weight and stopped doing anything. I want to take my life back, but I am nervous about what kind of exercise is going to hurt me. If you have any tips, please let me know
I am new to MFP...kinda. Joined a while ago, but was feeling under the weather for a long time.
I am 26 years, and was diagnosed with MS 2 years ago, though they believe I had my first flare up when I was 16.
I've had a rough couple of years, but I now I am feeling better, and I want to take advantage of this. I want to become as healthy as I can be, and that includes on getting fit!!
I want to hear the best work outs for all of you. Specifically if you started to get fit after your diagnosis. I use to be athletic, but sadly gained a whole bunch of weight and stopped doing anything. I want to take my life back, but I am nervous about what kind of exercise is going to hurt me. If you have any tips, please let me know
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Replies
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Hi,
I'm not the most athletic person on here - but I don't believe any exercise is off limits for an MS patient. It comes down to where your lesions are and what that limits you to. If you have the use of all of your limbs then you should be able to build up your strength and get back to the exercise you were doing before you started to feel the MS. I love to walk, and hike.
The weight will come off slowly as you count your calories and watch what you are eating and the amounts you are eating. Add exercise in at a pace that you feel comfortable with. Don't just leap in and expect to be able to do everything - especially if you have not been exercising for awhile. You don't want to overdo and set yourself back. Your body will tell you when it is too tired to do more. Learn to listen to it and you'll get to know when the MS is active and when it isn't.
Don't stop working out - your muscles need to be kept active if you are going to maintain.
Good luck,
Bea0 -
I lost a bunch of weight before and became athletic for a while, where I'd go running and mountain biking all the time. Then I let the stress of work get to me and I gained all my weight back plus more, and that was all before MS decided it wanted to take over my life. In December, I had a flare that made my lower body so weak, I thought I was going to lose my ability to walk. Just touching something with my left leg would cause me to lose my balance and almost fall over. I couldn't lift my leg high enough to climb into a car either. It was so freaky. I'd had lower extremity weakness for almost a year by that point, but it was never noticeable until all of that happened in December. Then everyone around me could see that I had issues walking. It was so embarrassing. I was 27 years old when I went in to have my MRIs that led to my diagnosis, and the guy walking me to the MRI area actually asked me if I could make it or if I needed a wheelchair. People my age aren't supposed to need wheelchairs. Those are supposed to be for the elderly. That really bothered me.
I had gotten a little bit of my strength back in January and February, and it was February when I started strength training (only very little though because I still had horrible mobility issues). What little I did made me feel like I could take some control back and my whole attitude changed. I kept gradually improving, and then I tried Zumba in April. I started out only being able to do half the class before taking a break, then I'd come back and finish it. I wouldn't lift my feet up off the floor and modified some other stuff to my ability, but at least I was moving. Each class I could tell I could do a little bit more, and after a couple weeks, I started moving my legs around some. Now I do most of the moves, with the exception of jumping and maybe a couple other things (for some reason, I can't jump anymore, but I wonder if part of that is my weight). The only time I need a break is if my legs feel like they want to give out on me (I've been having that issue a little bit lately), but that doesn't usually happen. I now walk completely normally unless I've been walking too long and have worn myself out. People are shocked when they find out I have MS because nobody can tell when they look at me that I have physical limitations. They're also getting to the point where they're surprised to hear me say I don't really know what I'm doing in the Zumba classes because I've done a pretty good job of getting the moves down.
I love dancing, so this was a great option for me. I also do 1-3 aqua classes a week, depending on how tired I am and if I can actually get out of bed in the morning to do them. That way it mixes up my workouts and the water makes things so much easier. Anything I can't do on land, I can in the water, and I don't suffer any weakness afterward either like I do in Zumba or my strength training sessions. My trainer saw how bad my mobility was early this year and she is shocked to see how far I've come these past few months. I still have a long way to go, but I have made such a huge improvement already.
I know that was a long story, but if you could have seen how bad I was at the end of last year, it's amazing to see how far I've come these past 8 months. That is enough motivation to keep me going.0 -
It's really individual...whatever works for you. If you have problems with your MS when your body overheats, then maybe extended bouts of cardio are not for you! Swimming or water aerobics or yoga or walking on a treadmill with a fan might be more your style.
At this point, I do a little of everything. I like spinning, kettlebell class, strength and sculpt classes, yoga, pilates, swimming, running, eliptical, hiking, golf, and kayaking. If there's something you like to do but you're having trouble with it, then modify it so that you can continue to do it. I had sciatic and elbow problems for awhile a couple of years ago so that limited me to walking and yoga until it healed. It's really all about listening to your body and if you feel like testing your limits, go for it. I am often surprised by what I can do these days.0 -
Best of luck to you.... I have been way overweight now for 10+ years, since I got my wonderful desk job
Needless to say, in October I went numb down the right side of my body, ignored it for weeks and decided to finally get it checked out. The doctor in the walk in clinic said its probably stress and all your vitals are normal so go home and rest... Another couple weeks pass and a very good friend who's a doctor was completely adament that I should go get checked out again and request Neuro as the walk in doctor had never even done a neuro exam on me. I was then sent for a MRI, which detected between 5-10 lesions. Fast forward to March 2nd MRI completed, 1 more lesion formed and we have the diagnosis of a very ACTIVE RRMS. WAKE UP CALL
I was officially diagnosed in April... Thought about it, started Copaxone right away... Toyed with the idea of diet etc.
Then in June I was ready... Taken off my nightshifts and I now work straight days (helps tons with sleep & eating), started MFP like an obsessive habit, and took my big butt to the gym. Since the 2nd week in June i have lost 35 lbs with nothing but following my calories, and working out at the gym. We can beat this and how I am going to do it is by staying active, I go to the gym EVERY day I am off, and I walk on my lunch breaks when I work with the occasional gym time after or before work. I am going to log my calories, and forgive myself and move on when I eat something undesireable.
Reference the activity, what is acceptable definately depends on what stage you are in with MS or your symptoms. I do between 1-1.5 hours of cardio every day off, plus weights... I do mostly free weights, and I have a goal to lose 100 lbs I am not finding overheating an issue for me, and hopefully it stays away.
Wishing everyone the best in your journeys. Please feel free to add me if you like
Cheers
Val0 -
Wow! Thank you so much for the response everyone! It's really inspiring to hear all that you guys have been doing. It's definitely time to get this stuff going for me, and to see what works, and what doesn't. Thank you!0
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Water aerobics water aerobics water aerobics. I did that for six months after I decided if I can't contol MS maybe I should take control of my body in the only way I could. When I was first diagnosed I had a lot of problems with being dizzy and losing my balance. Water aerobics really helped with that, even if I fell over I was in the water.
After that I did more "normal" exercise (treadmill, walking, elliptical, etc). I felt a little silly because I was the youngest person in the class by 20 years. DO NOT let the older people in the class, as sweet as they are, talk you into a sauna after water aerobics. It does feel great, but I couldn't get out of the tub without help and had to sit in the locker room to recover. Stupid MS sensitive to tempature. Stupid me for not thinking it through.0 -
This is my first ever forum post, you've tempted me out from where I've been lurking on MFP since May (must sort out a profile pic etc!) I've lost 12 pounds taking me just into the top of the healthy weight BMI range and am feeling healthier than I have for a few years. MS has been rumbling away since my late twenties when I had optic neuritis with another 2 relapses of numbness/weakness and balance problems in the 4 years since but I feel pretty lucky to have bounced back well recovering from the relapses.
I got back to exercising in May, starting out with swimming and aqua zumba to keep cool as other posters have suggested. I've been doing BodyPump weights classes for a few months and I've got stronger/firmer and balance is improving so I'd recommend these or similar! I find it a bit embarassing to have to keep explaining to the gym instructors that I might have to stop and rest for a minute if my vision is too fuzzy or balance too wonky so I've found 2 instructors particularly that know my situation and are really helpful with suggesting alternatives where needed (like I really can't do lunges without falling over sideways - not good with a barbell up on your shoulders!)
I've found exercise that doesn't get my heart rate up over about 150 bpm is ok for me, and no running on treadmills as I fall off!
Basically, try a few things to see what suits you and stick at it. Don't worry if you have a tired week, sometimes you just need to rest and not overdo things and not feel guilty for doing nothing. Slow and steady wins the race when it comes to getting fitter and weight loss and MS! Good luck with your fitness goals :-)0