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_dadgad
_dadgad Posts: 23 Member
edited January 4 in Social Groups
Blah, blah, blah. Be nice to each other. The possibly of sudden cardiac arrest is a serious topic. But we can have fun with this. You know the drill.

Replies

  • Can I share this group and it's existence with the Hypertrophic Cardiomyopathy Association page on FB? I don't know if you are still wanting a group, but I've spent the past 2 days searching for support groups for 2 reasons. One, I want to stay and keep informed on any and everything related to HCM. Two, our youngest son just had an ICD/Pacemaker put in for his HCM and it runs in our family. Have you been able to exercise and stay active with it?
  • _dadgad
    _dadgad Posts: 23 Member
    Sure we can share it out. There's a ton of groups for HCM and ICD folks out there. I got my ICD last December. And with the help of Metoplorol and Verapimil, I lead a pretty active lifestyle. I'm a scout leader (Venturing crew) and I play bagpipes in a band. I've had a couple of spells, but drugs and devices keep me on a even keel, somewhat.
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