Haha - I had the exact same sentiment!

I joke that the only weight I lost was from the hair on my head! I gained 10 lbs. during treatment. When I was diagnosed, I was 25 lbs. heavier than where I wanted to be. So after treatment, I was just fat and bald. Oh, and going through psuedo menopause because chemo played havoc with my hormones.

Now I can laugh, looking back at where I was 7 months ago. I've lost 17 lbs. total (chemo weight plus some), my hair has grown back (and is super curly), and my hormones got back in check, so I'm not having hot flashes, etc.

I think you have to look at the funny side of some of this stuff or else you will just lose it. We adopted a rescue puppy a few months ago. My hubby was a little hesitant about getting dog number 3, but then told me - "Well, I can't tell the cancer lady she can't get a a puppy." But my surgeon joked to me yesterday - "You don't even look like you had cancer. No more sympathy votes for you." Someone else might have taken that the wrong way - but I was thrilled!

I went from 215 when I started treatment down to 155 by the end of it. I like to joke that cancer was the most effective diet I've ever been on.

Sadly I gained almost all of that back, got back up to 195 before I got my eating habits under control. I went so long being unable to swallow anything, and then unable to keep anything down, that actually being able to eat again was AWESOME and I was going to finish EVERYTHING.

I looked pretty good (aside from the whole bald and sickly part) at 155 though.

Prior to my diagnosis I liked to think of myself as pretty healthy, exercised 5-6 times a week and had been gluten free by choice for about 7 months. When I started treatment I lost weight the first round because of nausea so my Doctor ended up prescribing 3 different anti nausea meds which made me want to eat pretty much everything in sight. "This isn't a diet plan" one of the nurses told me. Fatigue, treatments and the added bonus of a blood clot in my picc line lead me to live as a couch potato for basically 6 months, gained 25 pounds, grr. I'm trying to get back to exercising, it's been very humbling so far, I feel like an old lady full of aches and pains but I'm determined to keep at this. Glad to know there are others out there who experience similar challenges/feelings.

I lost weight and then gained weight as I recovered (anti-nausea meds helped and I was home for weeks just watching TV). Now I'm working on losing the weight I gained and then getting back on track to what I was trying to lose before the cancer hit.

IT does seem unfair.. I had high activity levels prior to diagnoses and had a great attitude about it when I first started chemo. Unfortunately once I started the nausea set in, the port was uncomfortable, and I was pretty much exhausted all the time. I tried my usual workouts- running, insanity, etc., but I got frustrated when things just weren't working. I wasn't drinking nearly enough water to get through insanity, running hurt my port and made my whole neck bruise, not to mention every other week I had chemo and could barely move. After all these discouraging experiences, I sort of gave up and decided "hey, I have cancer, I can eat whatever I want." Bad choice. I have lost so much muscle, but not lost any weight because I've been gaining so much fat. This is depressing, and just made me feel worse. Finally after my 4th treatment (2 weeks ago) I decided I needed to stop feeling like a victim, and take control of this madness! Last Tuesday I started counting calories again, and getting small 20 minute workouts in every morning before work. I also just signed up for some yoga classes. I realize now I can't continue like I did prior to diagnosis, but that there are other things out there that I'm capable of doing, I just also need to listen to my body and eat healthier.

It's important to maintain weight during treatment, period. The weight loss is muscle mass mostly, or comes from psychological issues. It's better to deal with cancer first...then rebuild!!!

I hope 2014 brings everyone a better sense of self, that we each find something that works for us in our daily lives to give us back some of the control we feel we lost when we were diagnosed. I have found using mfp and walking has been really helpful over the last few months of 2013. Here's to 2014, good health, happiness and living life to the fullest - cheers