Welcome!!

RoseTears143
RoseTears143 Posts: 1,121 Member
NO bashing or negativity allowed here or you WILL BE BANNED from this group. We all get enough negativity from Dr's and our friends/family as it is. Welcome to the group!!! And I look forward to getting to know you all. ^_^

Well, my story started back when I was about 15 or 16. I didn't know it at the time but looking back I can pinpoint that time in my life as to when I started having symptoms (this is 12 years ago now). Even looking at my junior and senior years pics I have the typical "moon face" with the squinty almost swollen shut puffy eyes to complete the look. Other than being super tired I had the horrendous acne and I was tired all the time. Of course, the family Dr blamed the acne on being a teen and me being tired was because I was a lazy teenager - even though I was a cheerleader and ran track. I also had migraines. Want to know what my Dr told me to do to alleviate those since no meds worked for me? She told me to eat chocolate and drink a coke -_-. For time framing - this was in around 2000.

Go to 2003 and this is when I had my first ballooning period as I call it. I got up to about 180 lbs from about 130-140. My hair was falling out, I had a hard time getting up to go to work, I was miserable. I discovered using Proactiv which helped me with my acne issue temporarily, but I really feel it was barely keeping it at bay. Then in the same year all the weight just fell right off and I got very skinny. I don't even know what i weighed as I didn't have a scale. But I didn't diet or exercise to lose the weight.

In 2005 is when I started getting VERY tired, like it was a battle to keep my eyes open. I had grown used to running 3 miles a day at the gym and I ended up having to give it up. My hair was falling out, migraines, acne came back, I couldn't hardly remember what I ate for breakfast by the time lunch came around. After several visit to the Dr complaining of fatigue my TSH was finally checked and I was just barely outside of the normal range at 5.something. But it was enough for Synthroid to be Rx'd to me. I took that for a few years and it stabilized my TSH and I felt better for a few months but it wore off and I went back to feeling like I wasn't taking anything anyway. So I stopped taking it, several times actually. Between 2006 and 2009 I was off and on meds because it didn't make a difference in the long list of symptoms I was having.

In 2009 I got fed up with my Dr trying to convince me I needed antidepressants and a therapist and demanded to see an endocrinologist, and I got my wish! The first thing she did was test my antibodies and all my other thyroid hormones. Lo and behold, my TPO antibodies were around 244 or so. She immediately doubled my meds to suppress the thyroid attack and holy crapola! I felt human....for a few months. In early 2012 I asked if I could try a T4/T3 combo, so she let me add Cytomel. It made me CRAZY!! I felt like a basket case, I don't know what my problem was...but I didn't like it.

In mid 2012 I had my endo switch me to Armour and after 8 months I started feeling MUCH better. Of course I changed my diet, albeit it temporary. But there was still room for improvement. So once Westhroid-P was released I pounced and begged my endo to let me try it. I've been on it since March this year and I love it. I think I have an issue converting T4 to T3, that or a combo of that and my body doesn't use synthetic meds very well and it just took awhile for my body to wake up.

I was able to lose 50 lbs this year by working hard and tracking here. Although the last 2 months or so I have completely fallen off my new lifestyle and started stress eating due to some personal events in my life. I have gained back around 20 lbs, which sucks. But I am getting back on it. I am starting the Whole30 next week after I go shopping this weekend to get myself back on the grind and hopefully resolve some lingering symptoms which i am certain are food related flaring up my Hashi's.

Replies

  • Grumpsandwich
    Grumpsandwich Posts: 368 Member
    Hi there! Thanks for having me :D
    I have had Hashimotos for 22 years now. I was diagnosed when i was 17 after gaining 80 pounds with in 1 yr. Suffering hair loss, reduced circulation and couldnt pull myself out of bed. Not long after i was diagnosed other family members got checked and well it runs in our family! Me, my brother and my father have it.
    After all these years my doctor trusts my judgement ( MOST of the time) About when i need med changes. Its just something you know and feel after awhile. The extra hair on the bathroom floor, yellow peeling nails. frozen feet ( my husband LOVES that one lol im a heat vampire). I also notice when its tanked that little things like bending my arms or raising them causes pins n needles. Like total circulation system has taken a dump. I tell him i need the lab work and get the script for it usually with little issue.
    I have started my weight loss journey just over 13 weeks ago with a pretty strict diabetic diet ( because i also have polycystic ovarian syndrom, often linked with insulin resistance so diabetic meds n diet help it alot ) I have struggle with my weight since my late teens. Never have i taken such a firm, hard and intense stance against it as i have now. Im down 30 pounds now, about 40 more to go.
    I will be nice to go through this with others that understand its NOT JUST AS EASY as everyone says it is. When you have hypo its not just STOP EATING! God why dont you work out? ect ect.


    Welcome to the group!!! I know exactly what you mean about all the little signs you start to notice when you need a med adjustment. I LOL'd at your heat vampire comment :D hehehe CONGRATS on your success so far!!! It must feel great seeing your hard work paying off. Because as we know, losing weight is hard, but when your thyroid is being eaten away by your own body it brings on a whole new set of challenges. So kudos to you for sticking with it!

    <3 Sara
  • Hello!

    Let's see, I wasn't diagnosed with it until after my last child was born, but I've *very* rarely had medical insurance or care, so it's not really surprising that it took so long. I've been struggling with fatigue, cold-sensitivity, hair loss, bad nails and weight issues for as long as I can remember. My first child was born when I was 19, but they never tested me for TSH, so I had no idea that it might be the issue. Lost insurance, had another kid and despite me telling them something was wrong, they STILL wouldn't listen to me.

    I used to work from home and I remember days when I'd get up at 8 to start work and by 10, want to go right back to bed. I fought for so long, thinking I was just *lazy* and then getting depressed about it. When I was finally diagnosed, I was so ridiculously happy, just to know that I wasn't really lazy or crazy or any other -zy.

    I am not insured right now, and I'm trying to fight with a doc I'm paying cash to see who refuses to listen to me, refuses to admit I just *might* know what's going on with my body and know when something's not right. Whee!

    Thanks for this group! I'm glad ot know it's here. :)

    Welcome aboard! :) It can definitely be depressing when you want to get things done but physically just can't do it because your body is so burnt out from fighting itself. I remember crying when I got my hypo Dx because it finally made sense after going years wondering what was going on. When I got my Hashi Dx I hardly reacted at all because I had a gut feeling I had it, it was just confirmation of what I felt already.

    If you are already paying cash to see a Dr, perhaps going to see a Naturopath would work better for you. I would go to one if I could afford to pay cash for treatment because I've heard a few good ones will actually help you find and treat the CAUSE of your Hashi's, not just patch you up with T4 meds. Good luck to you!!

    -Sara
  • KariD1114
    KariD1114 Posts: 1,244 Member
    For the last 10 years I've had symptoms off & on which (in my reading) could be either the thyroid hormones or the "female" hormones. My old doctor just did the basic blood work, saw nothing amiss & suggested I try walking or playing with my dog to help with the anxiety/depression part of it. End of 2011 I switched doctors & they did an extensive blood panel on me. Besides the female hormones being out of whack, my vitamin D was too low, ferritin was too low and my TPO was elevated; not a lot but too much for their liking. After explaining what this meant, they suggested I cut gluten from my diet, increase my iron intake and vitamin D. Another suggestion was to stay away from any antibacterial soaps. I have my blood work done every 6 months & slowing my TPO has risen. So far my thyroid numbers have stayed within the range they want. At a doctor visit in April they felt a small goiter.

    Right now I'm not on any thyroid meds but am taking bioidentical progesterone for my perimenopausal issues. It's hard because so many of my symptoms could be A) Hashi's or B) perimenopause....Next month I'm getting another full panel to see how the ferritin/TPO/thyroid are coming along.

    I'm so glad this group was formed. I've read the posts & have been saying, "yep...yep...yep" to everyone's various symptoms. My cold hands are waving hello to all!
  • RoseTears143
    RoseTears143 Posts: 1,121 Member
    For the last 10 years I've had symptoms off & on which (in my reading) could be either the thyroid hormones or the "female" hormones. My old doctor just did the basic blood work, saw nothing amiss & suggested I try walking or playing with my dog to help with the anxiety/depression part of it. End of 2011 I switched doctors & they did an extensive blood panel on me. Besides the female hormones being out of whack, my vitamin D was too low, ferritin was too low and my TPO was elevated; not a lot but too much for their liking. After explaining what this meant, they suggested I cut gluten from my diet, increase my iron intake and vitamin D. Another suggestion was to stay away from any antibacterial soaps. I have my blood work done every 6 months & slowing my TPO has risen. So far my thyroid numbers have stayed within the range they want. At a doctor visit in April they felt a small goiter.

    Right now I'm not on any thyroid meds but am taking bioidentical progesterone for my perimenopausal issues. It's hard because so many of my symptoms could be A) Hashi's or B) perimenopause....Next month I'm getting another full panel to see how the ferritin/TPO/thyroid are coming along.

    I'm so glad this group was formed. I've read the posts & have been saying, "yep...yep...yep" to everyone's various symptoms. My cold hands are waving hello to all!

    Kari welcome!!!! SO MANY Dr's do exactly what you are saying, see you have the antibodies but won't treat because the TSH is "in range". This makes me want to rip my hair out and punch those Dr's in the face!!! smh. TSH is a pituitary hormone, not a thyroid hormone, I wish they would wake up to that.

    They should Dx and treat based on antibodies, free t4, total t4, free t3, and total t3..and some use reverse t3 to assist with treatment. Combine that with getting iron, vitD, B12, and adrenals all optimized and so many more people would start to feel better. Of course none of that would matter if we didn't fix out diet to help control the AI side of it.
  • fayeded2
    fayeded2 Posts: 10 Member
    Hello! I am have been diagnosed hypothyroid for about 5 years. I am currently on Levothyroixine. I have never been very good about taking my pills until recently. I joined a page on Facebook that had me thinking about talking to my doctor about switching to a natural thyroid. But then I realized that I should at least try and be consistent with my current meds, change my diet, add exercise. That way I can see how I feel and go back to doctor and talk to him after exhausting all avenues so I can go in educated, informed and look like I am ready to take control of my health. My ultimate goal is to lose 35 lbs.

    My doctor has never diagnosed me with Hashimoto's but my mother also has hypothyroidism and she just recently told me that "she tested positive for an autoimmune disorder". When I go to my doctor I am going to discuss this with him but from everything I have read and other family history I am pretty positive with both have Hashimoto's.

    I have cut out gluten and diary (I have known for sometime that dairy does not agree with me). I am considering cutting out more grains once I get further along. The Whole30 program you mentioned looks interesting. (just googled it.)

    For exercise I am training for a 5k that is only about 2 weeks away. I have done one 5k a few months ago but was in such terrible shape I walked almost the whole thing. Not this time going to try to jog/run more of it.

    Please feel free to add me as a friend too. I could use more motivation from people in similar circumstances.
  • RoseTears143
    RoseTears143 Posts: 1,121 Member
    I see the group has grown overnight, that's fantastic!! Please introduce yourselves. I'm excited to get to know you guys <3 Welcome everyone :)
  • MarthaAnn8186
    MarthaAnn8186 Posts: 84 Member
    Looks like I started on the wrong place.
    I found out I had Hashimotos about 6 years ago. I was going through menopause also, and I really went a little crazy, couldn't control my emotions, I would start crying and would not be able to stop, so had to leave work. I went to my obgyn, and she noticed my thyriod was enlarged, and they put me on an antidepressent. Not prozac, but something like it.
    Went to the endocrinoligist, and that is when I found out I have hashimotos, also lumps in the thyroid, so I was sent for testing for cancer, no cancer thank goodness. Hypo thyriod.
    So here I am.
    Thanks for the invite.
  • AlyssaDarby13
    AlyssaDarby13 Posts: 158 Member
    I've started writing this a few times...I tend to write WAY too much, so I'll try to keep this (relatively) short.

    Childhood - fit, happy, active, mild sleep troubles (but generally well-rested feeling), exceedingly healthy (like, I rarely even got a cold), super skinny.

    Puberty - went through most of the "normal" hormonal changes, got massive cramps with my periods, got cramps/diarrhea various other times. A lot. Less healthy, happy and active, but not "unhealthy" (just more "normal"), depressed, or lethargic.

    Age 16 - After having the worst sore throat of my life for several days I went to the doctor, because it was an emergency visit I couldn't see my regular doctor (who I have been going to since I went through puberty at age 10, and who has been seeing my parents since I was about 6 or 7) and had to be seen by one of her associates. She looked in my ears, nose, eyes and throat and said "You have strep." and gave me a Rx for Amoxicillin. Over the course of the next two weeks I had a severe rash over my entire body. I went crazy trying to figure out what from. I thought it might be from my boyfriend's pets (he had a long-haired dog and 4 little kittens, and I spent a LOT of time at his apartment), or some allergen from the outdoors (it was June, I think), or maybe I had developed a food allergy? The next month I had a physical with my Primary. I told her about the strep diagnosis, the Amoxicillin, and the mysterious rash. She informed me that since I had not had a throat culture (seriously, who Dx's strep when there is no history of it WITHOUT a culture?!) she probably would not be able to tell for sure whether I had actually had strep, but the Amoxicillin can cause rashes in people with mono and that she would run the blood test for that. It came back positive and I spent the rest of that summer in a really weird, sleepy state.

    16-19 - Through these years I got progressively more tired, no matter how much I slept/napped. I also started getting colds more often, and nearly every cold I got turned into a severe sinus infection. I also was taken to the ER during the time for severe abdominal pain that would not subside with heat (how I would usually deal with it) and was "A TEN! A GODDAMN TEN!!!!" The attending physician diagnosed me with IBS-A (to be followed up with my doctor to rule out Chron's, Celiac, etc) and gave me a shot of an anti-spasmodic. Followed up with the doctor, and was officially diagnosed with IBS-A. A couple of months before my 20th birthday, I finally got my first "real" job.

    20 - At first the adrenaline/excitement of working for the first time in my life and bringing in a real paycheck to save up for my first apartment kept me from being too exhausted at work. However, I would come home and absolutely crash. I was physically in a lot of pain, and emotionally I was severely depressed. I started dating a new guy, and stopped getting along with my family entirely. As soon as I had saved up $1000, I moved in with him.

    21 - I continued feeling sick/exhausted nearly all the time. My doctor tested me for several AI problems (OA, MS, Lupus, a few others that I can't remember because they weren't the ones you hear about all the time) and they all came up negative. During this time, I did have the energy to get married. Which was the biggest blessing of my life.

    22 - This is the year I was officially diagnosed with PCOS (I had been "tentatively" diagnosed with it at 17, but was told I had "too many" periods.) I had to quit my job (for various reasons, mostly health related) and my husband and I had to move in with my parents (who we now get along with better). Because I no longer worked full time, I lost my insurance and suffered in relative silence for a couple of years. We bought a dog with the last of our savings in hopes that having him would lift my spirits (in a way, he does. But, as you all know, there is no magic that can make you feel better).

    22-24 - Lots of sleeping. Lots of crying. Lots of "feeling stupid". Lots of forgetfulness, edginess, anger, depression, you name it...

    24 - New laws went into effect that let my dad put me on his insurance even though I'm married. Took advantage and went to get a physical (my first one in 4 years), told her of my increased exhaustion. She ran what she calls a "full blood panel", but there are still things it doesn't test for, obviously. But, she said she would specifically look at my thyroid levels and Vitamin D. She found my thyroid to be low (I was ecstatic to finally have a name for my issues, but I quickly found that people still think it's "all in my head"), and that I was deficient in vitamin D. I started supplementing the D and taking Synthroid 25mcg. She wanted to test me every month for the first while, and the next month my levels were still low, so she upped me to 50mcg. I tried to make some lifestyle changes, but found I was still exhausted. I had already enrolled in school and was quickly falling behind. I had also gained about 50 pounds in a single year, which scared the crap out of me since obesity runs in my family.

    25 - Still exhausted by the time my physical rolled around. Upped the Synthroid to 75mcg (because my levels were still normal, but she found the antibodies suggesting Hashi's) and upped the D (I had gone from "deficient" to "severely deficient", as I had stopped supp'ing). A few months later I was the most exhausted and depressed I had ever been, but my insurance was about to run out (It was mid-November, and I only had coverage until December 31st), so we did what we could do before I lost my insurance. I did agree (after much deliberation...Like...Years of it) to try a very low dose of antidepressants. I am now on 50mg of Zoloft, which does help balance my emotions to a controllable level. She also tested me for CFS and I have the markers for that as well. Another invisible illness that so many people try to tell me isn't real...*sigh*

    26 (aka: now) - I am finally at a mostly stable point emotionally. My husband and I had a weird falling out the day after our anniversary, but it let us rebuild in a much stronger way and we are now much more supportive (he also has CFS, and he has CP from encephalitis, so he is a paraplegic) and understanding of each other in addition to being much more honest and open in general. We're also starting a business, which is stressful sometimes, but very fun and rewarding, and we can work from home. I'm still chugging away at my schoolwork, with the knowledge that I simply might not finish, and that if I don't it doesn't mean I am dumb or a bad person, it simply means I have an illness that slows me down and I will have that many more credits toward my next try if I decide to go that route. I have slowly, but surely been making healthful changes in my life as far as my nutrition and exercise go. I don't want to do too much at once and sabotage myself. "Slow and steady wins the race", I find that to be super true in regards to AI problems. I am now drinking more water, and drinking tea or coffee (instead of Pepsi or Mountain Dew) if I need a caffeine boost (though, I try to avoid caffeine as well...Right now I'm "fixing" my sleep schedule, so I'm kind of living off of it for a while...lol), I'm eating more veggies/fruits/whole foods and less processed foods, etc. I have cut out all soda pop except for the occasional Sierra Mist Natural, I am getting my oral health taken care of (I have severe decay), I am taking my dog for at least a half mile walk every day, etc.

    So...That was the short version...Are you scared of my wordiness yet? lol :laugh:
  • Hi, I was diagnosed with Hashimoto's years ago. My Dr. had noticed my thyroid was enlarged, ran the basic thyroid tests which were normal and then she did the antibody test and it was definetely NOT normal. she put me on synthroid (now levothyroxin) and that is where I've been ever since. The Dr. I had then moved away and now it's only the basic thyroid panel that the Dr's do to track how I'm doing. I have been tired for ever and have gained about 50 lbs, but over time. After reading some of your posts I think I'll see if I can get another antibody test ordered. Nice to meet you all. Gail
  • katscoots
    katscoots Posts: 255 Member
    Hi again - I too posted my "hola I am here" message in the wrong thread...but anywho...I was diagnosed at age 19 during a physical for college after a very serious case of mono. I look back now and see all of the symptoms in pictures, weight gain - even though I was always athletic, chubby face, dry brittle nails and skin, thinning hair, no energy etc, etc, but it was ultimately the very enlarged goiter that tipped off my doctor. I haven't experienced a multitude of negative symptoms over the last 20 years - probably because I tend to think that all of these things are "just who I am" - always cold, especially after eating, symptoms mimicking depression and anxiety, insomnia, and exhaustion are what I am dealing with the most as I enter into my 40s in a few months. I have gained and lost weight many times - but luckily for me - I don't have a huge problem losing weight after I gain it....I just gain it really fast and really easily...stray only a little from my "normal" eating and exercise and BAM I puff up like a dang blow fish.

    My "levels" are steady and within normal limits - which are ridiculously ambiguous and too broad of a range if you ask me. I have already received some amazing advice on natural hormone products on this thread and will be talking to my doctor about it at my next visit. I am excited to join you all and look forward to getting to know you.

    Interesting thing I've noticed so far - a lot of people are diagnosed after a bout with mono....not sure what the connection may be...just thinking out loud here...
  • plipsurt
    plipsurt Posts: 185 Member
    Hello everyone! I was diagnosed as hypothroid 20 years ago and have been taking Levothyroxine ever since. Initially I gained about 50 - 60 lbs, My hair fell out, my skin was dry and just plain horrible. My memory became very unreliable and I was beyond exhausted all of the time. I take 175mg daily and have been on this dose for most of the last 20 years. About 10 years ago I paid to see a specialist and was informed that my meds were all wrong and that I have Hashimotos. The specialist wrote to my GP and informed him of his findings (including a change in my medication). However my GP disagreed and my meds have remained the same.
    Lately I am feeling 'rough' to say the least. I keep putting it down to the possibility of menopause (I am now 48) but I'm not sure. I have stalled in my weight loss (despite being under my calories daily) I can't sleep, am headachey and so tired I could cry.
    My bloods are tested once a year (only TSH though as my GP believes nothing else is necessary). Am looking forward to sharing with people who know what it's like to be me.
  • KariD1114
    KariD1114 Posts: 1,244 Member
    Hello everyone! I was diagnosed as hypothroid 20 years ago and have been taking Levothyroxine ever since. Initially I gained about 50 - 60 lbs, My hair fell out, my skin was dry and just plain horrible. My memory became very unreliable and I was beyond exhausted all of the time. I take 175mg daily and have been on this dose for most of the last 20 years. About 10 years ago I paid to see a specialist and was informed that my meds were all wrong and that I have Hashimotos. The specialist wrote to my GP and informed him of his findings (including a change in my medication). However my GP disagreed and my meds have remained the same.
    Lately I am feeling 'rough' to say the least. I keep putting it down to the possibility of menopause (I am now 48) but I'm not sure. I have stalled in my weight loss (despite being under my calories daily) I can't sleep, am headachey and so tired I could cry.
    My bloods are tested once a year (only TSH though as my GP believes nothing else is necessary). Am looking forward to sharing with people who know what it's like to be me.

    Are you in a position to possibly change GPs? It's really aggravating when they will not look outside their "box." I ended up changing docs because my old one just told me to have a glass of wine or walk my dog to help me feel better. :grumble:
  • RoseTears143
    RoseTears143 Posts: 1,121 Member
    welcome everyone!! I got a little emotional reading everyone's stories. It really gets to me when I read how much people have struggled trying to get proper care for this condition. :( But I am so glad we found each other!!! We can overcome the difficulties we encounter on a daily basis. Thank you everyone for sharing <3
  • Well, since I'm new to this group I figure I might as well share some insight on my story as well.

    When I was younger, I was always a bigger girl. By 5th grade (11 years old), I was the tallest in my class at 5'6. Being this tall, playing basketball was basically a given. I wasn't very good, but because of my height, I played every game. Throughout the rest of middle school, I began playing soccer, softball, and volleyball on top of basketball and was pretty athletic. My team went undefeated a whole 28 games my 8th grade year :) At this point, I was a little heavy, but with my activity level, my doctor said not to worry about it.

    High school is when the problems came. I went from having 25 kids in my graduating class to have 678... Needless to say, I developed extreme anxiety and depression just from pure shell shock alone. I went from being friends with everyone to being friends with no one. None of my former teammates went to the same school as me, so I opted out of playing sports. When the weight began slowly creeping up on me, a former friend of mine and I decided to stop eating together. She was already a twig and she would call me about how "good" she was doing at not eating and I just couldn't help myself. My parents would notice if something was wrong, so I resorted to purging. This is where my relationship with not only food, but my body as well, took a turn for disastrous.

    By junior year, I had slowly crept up to 168. Going to a catholic school, my uniform slowly stopped fitting and when friends asked to borrow my gym shorts (also uniformed), I had to make up excuses as to why I couldn't let them just to hide the embarrassment of having to wear a size XL. After a tumultuous breakup with my best friend/long term boyfriend, I was easily at 180 by senior year. I began dating my current boyfriend and I was finally happy. He loved my body which made me love it in return. 6 months after dating, he moved in with my family and I due to family issues. I didn't have a scale, but shortly after I just felt myself getting bigger. I started feeling tired all the time and was moody non stop. I attributed it to taking on some of his eating habits and having to share my bed.

    Fast forward to January of this year. A friend of mine posted a picture of us on facebook from our junior year. I was wearing this cute top that I spent forever picking out. I totally forgot I even had it and quickly dug it out of my closet. What was once a flowy, flattering top turned into a tight and hideous mess. When did I get so big? I bought a scale and to my horror and dismay, topped 210 lbs. It was like I had been slapped in the face with a brick. I joined the gym the next week and worked my *kitten* off. For 7 whole months I went to the gym 5 days a week. I cut out processed foods and soda and started feeling myself getting stronger. I took measurements and weighed myself once a week. The results? After 7 months, I lost .5 inches overall and 1.4 lbs.

    ...WHAT?!

    I was heartbroken. I was working so freaking hard. My boyfriend even LOOKED thinner and he stopped working out with me months ago. WHAT THE HELL. Finally, I gave up and "accepted" I would always be fat. After speaking to a family friend who was a pharmacist, I began researching hypothyroidism. I was literally the epitome of this disease. I was moody and depressed, I couldn't lose weight, and I would fall asleep 3 minutes into any movie despite just having woke up from a 14 hour slumber. I went to my Dr. and after running tests, confirmed my TSH was at a whopping 27.1 (as opposed to 1.1-4.0). I was put on 50mcg synthroid, 7 pills a week. Then after another test, 50mcg 8 pills a week. Then 50mcg 10 pills a week. And finally today, 75 mcg every day. At my last endo visit, it was also confirmed I have thyroid antibodies, confirming my suspicions that I had Hashimotos as well.

    Hearing you have an autoimmune disease is a huge shell shock. I decided to stop TRYING to lose weight and focus more on being healthy. I hated hated hated going to the gym and decided to find other fun ways to workout. Thus, I took up pole dancing. I have never worked so hard for anything in my entire life. The community is absolutely amazing and helpful and understanding and accepting and honestly, life changing.

    So here I am today. I love my body and what it is capable of and that's something I haven't been able to say my whole life.
  • RoseTears143
    RoseTears143 Posts: 1,121 Member
    I love your upbeat attitude at dealing with this mess. It really does help when you focus on being healthy and not just the number on the scale. Working towards feeling good brings around a lot more success and better results than trying to figure out what technique/diet/or pill will make you lose the most weight. Thank you for sharing!!
  • G30Grrl
    G30Grrl Posts: 377 Member
    Hi. I'm I was just diagnosed with Hashimoto's last Thursday. TSH levels were 55, so it's pretty bad. I knew something was wrong, since my skin has been unusually dry (even for desert living), I have gained a lot of weight, and can't seem to lose it even when I AM exercising, and worst of all (sorry, guys), I was having **extremely** heavy periods that lasted about 28 days per month. We found out my TSH levels were high and vitamin D was deficient earlier this year, and I started on 50mcg Levothyroxin and 100mcg of vitamin D, but when they just retested me, my levels had skyrocketed, they did a more thorough panel, and that resulted in the Hashimoto's Dx and a 100% increase in dosage. She wanted to jump it up to 125mg, but I asked if we could wait for the retest in six weeks. I'm already feeling a little jiffy at 100mcg right now, but hope it will settle down as I get used to it. They are also scheduling me for an ultrasound of my thyroid to see if there are any goiters(?).

    Although Hashmoto's runs in my family (something I just found out this summer from a half-sister I met for the first time), I made it worse because as a gluten intolerant person (which I've known for many years), I chose to return to eating gluten about two years ago, despite the negative symptoms it caused. What I have learned in some of my research is that the gluten antibodies cannot differentiate between gluten and my thyroid, so they try to kill both. All because I couldn't resist the damned bread, which I have long used to self-medicate, since it acts as a sedative for me. It would be nice to connect with other folks on here who also have Celiac's or are gluten intolerant. My last two partners in relationships never really understood the gluten intolerance thing, and perpetually offered me things I should not be eating, and after a while it was just easier to say yes. That doesn't make it their fault. My diet is 100% my responsibility. But I am someone who grew up associating food with comfort and safety, and I have a tendency toward addictions anyway. I'm a recovering alcoholic with almost 6 years of sobriety. It would be great if I could use the same recovery-based thinking to get past this gluten/grain/sugar thing as I did to stop drinking, but I guess the diet never seemed as significant as the drinking did. Maybe it will now.

    There are too many big changes to make all at once, so although MFP set me a caloric target, I don't care if I go over in calories right now, and I am not focused on working out, since I'm so busy with projects around the house that are keeping me moving. My main focus until the 6-week follow-up in mid-January is to stay 100% gluten free, and follow an anti-inflammatory diet, eliminating most grains and refined sugars. The diet will help with the joint pain and all of the gluten symptoms I have been ignoring so I could keep eating crap (brain-fog, rash, chronic tiredness, and intestinal issues).

    Fortunately, I really love vegetables and healthy lean proteins, I drink tons of water because I like it, and I enjoy cooking, so it shouldn't be too hard to get back on track now that I am single and living alone again. Any other suggestions would be appreciated. Other than that, I will be poking around here for a while trying to learn more about how others have successfully lived with Hashimoto's. That's all for now. Thanks for being here.
  • swisswife
    swisswife Posts: 47 Member
    Good Morning,

    I've used MFP on and off for a couple of years but this year has been the worst of my life and I let everything slip, and also gained a few more kilos !!

    Anyway, my doctors have been 'watching' my TSH levels for a while and I started on Levo. Then I lost faith in my doctor here in Switzerland and changed to a thyroid specialist, who diagnosed Hashimotos, without the goiter. He has upped my levi dose slightly and will do another round of tests in Feb along with an antibodies test. He did an ultrasound and said my thyroid is small and not the right tissue density compared to a properly functioning one. :(

    So thats kind where I am at. I 'need' to loose 5-8 kilos but would 'love' to loose 10.... however I'm just bobbing between 81-83 KG and its driving me mad. I can't get anything to work.
    I eat fairly clean, just because I am a bit anti additives and preservatives, I don't work so have lots of time to cook 90% of our food from scratch. I need to get more active and am going to dust down the wii fit for the winter. (I live in Switzerland and its already snowy and freezing out)

    I am starting to do some research online but all the information I see is quite contradictory, eat veggies, but don't eat green, don't eat pulses, but eat lots of fibre..... Its good to find a group where everyone is in the same boat !!

    If anyone wants to friend me I that would be great as I REALLY need some motivation !!!
  • RoseTears143
    RoseTears143 Posts: 1,121 Member
    welcome to both of you ladies. Thanks so much for sharing your stories!! <3
  • G30Grrl
    G30Grrl Posts: 377 Member
    A few days after I joined this group, my dear friend, and very recent ex-boyfriend died from a massive heart attack. for about 40 minutes around the time of his death, I was experiencing some very scary heart palpitations at a party in another state (where I ate no sugar or gluten). I remember thinking how serious this is, that according to the doctor, TSH levels as high as mine can cause cardiac arrest, and that it is time I make a serious formal commitment to my health.

    The next day, when I found out about Miguel's death, it felt like that bout of scary heart palpitations and the subsequent thoughts were a message from him. We spent over a year learning to cook and eat better together, but we both had very weak will-power and a very strong association between rewards and food. I feel partially responsible in that I could have pushed harder for both of us to stick to our diets, but I didn't.

    Now I am the only one left. And I am going to stick with this for him. I am not ready to die yet. So this round of health and wellness is in honor of Miguel.
  • calippincott
    calippincott Posts: 7 Member
    Hi everyone, I was diagnosed in the spring of 2010 after probably having hypo for about 2 years before that. My junior year of college I gained 50lbs in about 6-8 months. I attributed it college and partying, but I wasn't doing anything differently from my friends, and couldn't understand why I was ballooning and they weren't. I graduated in May 2009 and that was when I really started to notice some symptoms and just chalked it up being out of college and in a different lifestyle. So after sleeping for hours on end and still being tired, crying and hating everything including myself, for no reason and finding clumps of hair all over the bathroom, my mom made me go see my doctor. I was then told I had hypothyroidism. I have been trying to figure out my levels since then, I was just upped this past week to 175mcg and finally had a sonogram done. I was finally confirmed that I have hasi thyroiditis. I am so tired of feeling sick and tired that I have decided 2014 is my year to fight for my health. I have started to clean up my eating, cutting out the unhealthy stuff and adding more of the healthy stuff. Getting to the gym 5 days a week and making sure I drink plenty of water. My doctor keeps telling me to lose weight and get my bp under control....well duh...that's what I'm trying to do, but it's an uphill battle. Today was what I like to call a zombie day...I was exhausted, in a fog, and just couldn't bring myself to really do much of anything. (thanks goodness it was a snow day...I'm a teacher) Finding this group was exactly what I needed today. Thanks for making this group, and here's to a happy healthy 2014!
  • Momofgenerals
    Momofgenerals Posts: 3 Member
    Hi Everyone!

    After years of suffering with weight and energy, like many of you, I kept insisting to see someone. Blood tests a year ago confirmed Hashi's. I am currently on 125mcg of Levothyroxine and gluten free. Still struggling with weight and some energy levels so I am hoping that the next round of blood work shows the endo that something else needs to happen.

    I want to thank all of you for sharing your stories. Hashi's has a way of isolating you an it's great to have a place to come an not be alone.

    I am a working mom of two hockey playing boys (9 & 6) who is always on the go. Fitting in fitness has been tough, going gluten free has been an interesting and sometimes frustrating adventure. I look forward to connecting with all of you!

    Samantha
  • KariD1114
    KariD1114 Posts: 1,244 Member
    Welcome to the group ladies! It seems the activity in the group is up and down. It is nice to have a place to talk about some stuff that others might think you're just off your rocker. :smile:
  • soupandlettuce
    soupandlettuce Posts: 114 Member
    Thanks to all of you for telling your stories!

    It gave me the courage to go back to my doctor and he started me back on meds.
    I really appreciate the openness and honesty and courage I see here.
    I hope to be feeling better soon!
  • _Pseudonymous_
    _Pseudonymous_ Posts: 1,671 Member
    I just realized that I DEFINITELY posted in the wrong area. So I will introduce myself HERE lol.

    I am Mia and I was diagnosed with Hashimoto's on November 22nd. I figured all the things in my head were all things related to me not living right. My bad skin and hair was from those years that I had smoked. My lethargy was because I didn't sleep enough and that I had no one to blame for being overweight. I didn't even entertain the thought of hypothyroidism because I didn't want to make excuses for myself. I suppose I might have been a bit hard on myself... lol. Looking back I see all the symptoms.

    I remember getting really sick when I was 18 and having the worst sore throat I could ever imagine. I took meds, made it worse, finally after nearly 2 weeks I went to the doctor and they diagnosed me with Mono. The weird thing was that shortly after that I was fine, just really tired. It was the weirdest bout of mono I ever heard of but I thought very little of it. After that I went through many different stressful situations and was depressed and tired and my psoriasis started flaring up.

    No keep in mind that I was always a chubby girl. Even as a child I remember being 5'7 at the age of 10 and a size 12/14 in womens. By the time I graduated I was a 16/18. My weight would fluxuate 30 pounds up or down and it was just the way the world worked for me. When I was 22 I moved in with my Dad and his girlfriend (who is now my stepmother). My dad had left my mom the Thanksgiving before and after she left and the house was gone I didn't really have anywhere to go. So I moved in, got two jobs, and walked to and from work (10-15 minute walks). All of a sudden I went from 270 pounds down to 180. My diet consisted of Taco Bell, Pizza Hut, and Schlotzky's yet I lost 90 pounds just from walking 10 minutes a day to work and 10 minutes from! At least that's what i thought. Looking back I see that was just a hyper phase that went REALLY HYPER!!! I platued and stayed around 200lbs for a while. Then about 2 years or so ago I went from weight 220 to 295 in less than a year. I was walking to and from work (now a 45 minute walk) and still gaining rapidly. I worked hard to lose weight but seemed nothing ever worked. I couldn't figure out what I was doing wrong. Diet, exercise, what the heck!?!

    This past year was my first year that I had insurance. I went to a GYNO for a well woman's exam as required by the insurance company and she put me on birth control. After my 3rd time back to change perscriptions she decided to do blood tests. She told me that I didn't have much in my file because I never went to a doctor unless it was an emergency (such as the 2 week sore throat of death!). She saw my symptoms. My psoriasis rashes spreading, my pale dry skin, my brittle nails and hair, my menstrual problems, my weight issues, my depression, my puffy eyes, so on and so forth. A few days later I get a call for another test, they told me my results were abnormal and they needed another test to confirm or deny. So I went back and they discovered my TSH levels were 5.5 and 7.5 from the two tests. My gyno (that amazing woman) forwarded my information to one of the top Endos in our area. Dr. Tan looked over my tests, examined me, asked me questions and did a sonagram of my thyroid. That is when I was diagnosed and put on Synthroid. It was all well and good at first but now all of a sudden I'm really depressed, extremely tired ALL of the time and my neck and throat hurt again and I can even see my thyroid when I swallow. I went back for another round of blood tests to see if we need to adjust my dosage. My next appointment is in February when we do a biopsy of two nodules that have formed on one side of my Thyroid. Wish me luck, Ladies!

    Also, for some reason, this whole thing has been rough for me. I know Hashi's isn't that big a deal, not like cancer. I'm not dying. But for some reason I am having a hard time dealing with it. Maybe it's because I'm scared I'll never feel good. Maybe it's because I feel utterly unattractive from my hair falling out and my weight gain and I just feel like no man will want me, especially if there is a chance that I may have a hard time having kids. It's dumb, I know, but the fact that no one around me understands just makes it all that much worse. Like last night when my brother pointed out how thin my hair is and I explained to him that it's been falling out and I think it's the Hashi's, he told me that he didn't understand the big deal about this, why I have to "ake medicine and change my diet when I've had this for years. It's obvious I'm not dying and I'm just doing it for attention. It hurts to know my family feels that way, just because I won't eat the same things they do, or because my medicine isn't working right and I feel even crazier than before... I just don't want it to get worse. I'm scared if I don't take care of it then I will end up with Diabete's and an enlarged heart with 4 heart attacks like my mom, or lymphoma like my grandmother, or dementia. I know those are extremes but still. Then there is the fact that one day I want to be able to have a family when the day comes. Maybe I am being melodramatic about it? I just hope that by being here I can read and see and know other people and know that I'm not alone and have people to get advice from and discuss things with and even rant and cry about how much this sucks! lol.

    Anyway, Treating with medication and AIP diet so hopefully I can get to feeling like a normal person again (and hopefully stop my long hair from falling out!!!!) lol.

    Thanks for reading, y'all. And Good Health to you all!
  • soupandlettuce
    soupandlettuce Posts: 114 Member
    Hi Mia,
    Hope you feel better soon. Ignore unsupportive family and friends, I even have doctors in my family and they have been far from sympathetic! I find that I doubt myself at times and just 'tough it out', that's the dangerous time when I stop going to the doctor and neglecting my follow-ups.
    Thyroid issues are chronic, lifelong. Symptoms can wax and wane so you won't feel the same all the time so regular bloodwork is necessary and dosage of meds also need to change.
    Autoimmune diseases go hand in hand. I 'just' figured out I have a host of ai issues going back years!
    People can scoff, but if you could see my reaction to eating pineap
  • soupandlettuce
    soupandlettuce Posts: 114 Member
    Hi Mia,
    Hope you feel better soon. Ignore unsupportive family and friends, I even have doctors in my family and they have been far from sympathetic! I find that I doubt myself at times and just 'tough it out', that's the dangerous time when I stop going to the doctor and neglecting my follow-ups.
    Thyroid issues are chronic, lifelong. Symptoms can wax and wane so you won't feel the same all the time so regular bloodwork is necessary and dosage of meds also need to change.
    Autoimmune diseases go hand in hand. I figured out I have a host of ai issues going back years!
    People can scoff, but if you could see my reaction to eating pineapple (it's not pretty), you would never doubt I had an allergy to them. Other intolerances aren't visible, they result in brain fog, fatigue, weight gain etc. even weird things like sensitivity to light and noise, people just think you're crazy or making things up! There are people who understand, though, those with the same affliction! Vent all you want here, it may help you get through a bad day.
    Don't give up!


    Sorry for repeat post! It was late and me so tired :)
  • _Pseudonymous_
    _Pseudonymous_ Posts: 1,671 Member
    Hi Mia,
    Hope you feel better soon. Ignore unsupportive family and friends, I even have doctors in my family and they have been far from sympathetic! I find that I doubt myself at times and just 'tough it out', that's the dangerous time when I stop going to the doctor and neglecting my follow-ups.
    Thyroid issues are chronic, lifelong. Symptoms can wax and wane so you won't feel the same all the time so regular bloodwork is necessary and dosage of meds also need to change.
    Autoimmune diseases go hand in hand. I figured out I have a host of ai issues going back years!
    People can scoff, but if you could see my reaction to eating pineapple (it's not pretty), you would never doubt I had an allergy to them. Other intolerances aren't visible, they result in brain fog, fatigue, weight gain etc. even weird things like sensitivity to light and noise, people just think you're crazy or making things up! There are people who understand, though, those with the same affliction! Vent all you want here, it may help you get through a bad day.
    Don't give up!


    Sorry for repeat post! It was late and me so tired :)

    Thank you so much!! I really appreciate that! it's nice to know that there are people out there that actually DO understand what I'm going through. It's just so hard for me to figure out what I'm sensative to. I'm just proud that I am REALLY sticking to this AIP diet, even though everyone thinks it's silly and too restrictive. I can't tell you how many times I've heard "Really? Not even one little bite? That's sillly..." but I'm afraid if I eat anything outside the list then it will mess up the whole testing process to see what I react to and what I don't. How did you figure out what you were sensative to? Did you keep a food diary and a list of things experienced throughout the day? And then try it again to see if you get the same reaction?
  • KariD1114
    KariD1114 Posts: 1,244 Member
    Welcome, Mia! You definitely are not alone! I've had to deal with unsupportive family members too...I think sometimes it's more they refuse to understand what I've tried to explain to them about why it's important to eat the way I do. The hubby tries to be supportive but then he'll make comments to others how when we go out to eat what a pain in the *kitten* it is for him that I'm gluten free - don't get that but oh well, his issue not mine!

    From my own experience, log EVERYTHING that goes in your mouth & the time it does, including supplements & meds. I've found a few triggers that way. I also track if I notice anything off physically or emotionally & the time I notice it. It's anal, but for me it helps.

    No matter what, you need to keep doing what is right for you - sometimes that seems to be the hardest challenge of all.
  • Hello everyone! So glad I found this group!! Here's a little bit of my story...I was diagnosed in college and started on the meds. I was very active in high school and into college, so my weight gain was gradual. I tried may ways to lose and was successful by counting calories, losing 30 pounds. I then gained some back after getting married and even more after my 2 kids (but they are worth it!). I began with MFP and lost a few pounds but plateaued even though I was very diligent with eating only 1300 calories and was working out 60 min 3-4 times a week for over 8 months. I knew that with this and the symptoms I was having that I must need my medication increased. After getting blood work done and not needing any adjustments, I became VERY frustrated! I started doing research and found many suggestions from doctors and research that had been done that pointed to gluten intolerance in those with Hashimoto's. So, in effort and determination to "fix" myself I went gluten free (16 months ago). This was difficult for me to do and I stopped counting calories so that I could focus only on one thing. My exercise then gradually decreased as well. Now, at my top weight, I need to do something! I became active again with MFP and counting calories just 8 days ago. I also bought a FitBit One to monitor the calories I am burning more closely. I will lose weight this time!! After the past 8 days, I have lost 2 pounds, a good start and motivation to continue. I have also gotten more active with MFP in groups and finding support. Thank you to all of you who have shared your stories, frustrations, and motivations! We can do this together!!
  • soupandlettuce
    soupandlettuce Posts: 114 Member
    Hello everyone! So glad I found this group!! Here's a little bit of my story...I was diagnosed in college and started on the meds. I was very active in high school and into college, so my weight gain was gradual. I tried may ways to lose and was successful by counting calories, losing 30 pounds. I then gained some back after getting married and even more after my 2 kids (but they are worth it!). I began with MFP and lost a few pounds but plateaued even though I was very diligent with eating only 1300 calories and was working out 60 min 3-4 times a week for over 8 months. I knew that with this and the symptoms I was having that I must need my medication increased. After getting blood work done and not needing any adjustments, I became VERY frustrated! I started doing research and found many suggestions from doctors and research that had been done that pointed to gluten intolerance in those with Hashimoto's. So, in effort and determination to "fix" myself I went gluten free (16 months ago). This was difficult for me to do and I stopped counting calories so that I could focus only on one thing. My exercise then gradually decreased as well. Now, at my top weight, I need to do something! I became active again with MFP and counting calories just 8 days ago. I also bought a FitBit One to monitor the calories I am burning more closely. I will lose weight this time!! After the past 8 days, I have lost 2 pounds, a good start and motivation to continue. I have also gotten more active with MFP in groups and finding support. Thank you to all of you who have shared your stories, frustrations, and motivations! We can do this together!!



    Hi!
    I have been trying gluten free also. Have you noticed any changes?
    I started it to see what would happen about joint pain( arthritis) that I've had years since being diagnosed with hashimotos.
    I don't want to take arthritis meds at a young age before I try everything else to try to reduce the inflammation.
    So far I found that by removing dairy from my diet my sinus problems have disappeared - I mean completely gone! I used to always have a stuffy nose and need to clear out sinuses in the morning- no more!
    Going gluten free, my joint pain seems to have reduced but not eliminated. But my feet that were very dry and cracked are now smoother without the constant use of pumice stone and lotions, my keratosis piliaris (chicken skin) is reducing and some dark dry patches on my ankles that I've had forever are fading away.
    I seem to have less dry skin than before. Also my digestive problems (a mix of ibs symptoms) plus gas and bloating have also pretty much disappeared. I am so relieved about the gas (sorry, it's so gross!) but I had really thought I was stuck with it forever.
    I was never a believer in restrictive diets, but with hashimotos you are already suffering from one autoimmune disease, and food sensitivities are also autoimmune related, so it's part of that spectrum. I don't think I can cut out much more, though. And if the joint pain doesn't fully disappear after my thyroid med adjustments and two/three months of gluten free diet, I am not confident that I can continue on a strict basis.
    My dairy free diet is less restrictive, and I have dairy maybe once it twice a month or so and can live with that.