To give you a brief background. I was diagnosed with Hashimotos 2 years ago about 8 months after I had my second one. Although I think I may have had it since I had my first but was undiagnosed.

My dr (GP) initially prescribed a very high dose (125 mcg) of synthroid for me and I reacted very badly to it - I was jittery heart racing just generally unwell for a couple of weeks before I just could not continue on it any more.

I stopped using it and started going to an endo (went through two at the time). The second endo I saw came highk=ly recommended but wanted to always follow everything by the book. my TSH was essentially within range and therefore she said I dont need any medication because my thyroid was working. After the intial testing she would only prescripe the TSH tests - she never even checked all my other levels because apparently they dont need to be checked if the TSH is normal. This went on for a couple of years till recently I found this forum and a whole bunch of information on the internet about gluten intolerance and hashi. I quit gluten, started doing my own research and found a very famous dr - Kenneth Blanchard in my area who specializes in this very condition and an underactive although still functioning thyroid.

I thought I had finally hit the jackpot and was shown the way to feeling well again. The dr is very expensive he does not take insurance any more and you have to pay out of pocket. Meeting him was great - he said all the right things and said I could have pretty much walked in with a big 'H' on my forehead because my symptoms so fit the bill. Before meeting him I got TSH, free T4 and vitamin D testing done because thats all he does/needs (he says free T3 tests are very 'in the moment' and not a true indication of your conversion ability).

Anyways he gave me this T4 medication - 25 mcg - Tirosint which is a pure form of levoxy. with no fillers in a gel form. This is supposed to be better for you. The first two days I took it I did not feel very well - very sleepy within an hour of taking the meds, very irritable. That seemed to go away after two days but then the heart racing, palpitations, anxiety, restless legs etc. started. I lasted for about 9 days before I just could not take it any more and last night I didnt take my normal dose (he told me to take it at night with food because its potent in the gel form). The night before I stopped I did not sleep until 3 a.m. because of my racing heart and anxiety.

I talked to him this morning and he is now prescribing me a compounded, slow release form of Armour. I will get it next week and until then I should stop taking my meds. He said becuase of how strongly I reacted to such a low dose of T4, I probably am a poor converter of T4 to T3.

I am so depressed that what I had pinned all my hopes against is not working for me. I really thought this dr was going to be my life savior and that my first trial of whatever he prescribed would just work. Naieve, I know but thats how desperate I am for help!

I am just looking for some succcess stories on what has worked for you if you experienced something similar? Or even if your story is not the same, just in general what worked for you with getting your thyroid function under control!

Thanks