Told to get a sleeve
ImaWaterBender
Posts: 516 Member
Hi, I am Jan. I went to a GI surgeon today for a consultation on fixing the diverticulitis that has been dogging me for a year. I have been in the ER and hospital three times and another time with a flare that didn't require hospitalization.
This surgeon told me that in his opinion, the surgery to remove the colon that has the diverticula is too dangerous at my weight : 280 and I am 5'8". He told me to get a gastric sleeve (he does not do them and is not affiliated with anyone who does) and then come back to him for the resection when I am down to a BMI of 27.
He told me doing a resection on me would likely result in a colostomy bag and routing that intestine to the surface would be a "Herculean task".
Besides being so deeply hurt by his speech, I am stunned. I have been told by my regular GI doctor that I am basically a ticking time bomb.
I can say this: He is a very good surgeon and he was straight shooting. I know he was. I know I can shop around and find some doctor to do a resection, but I know this guy is right. I don't want to just get anyone to cut me. I want to get over the hurt and learn what my next steps are.
So now I need another surgery. Can anyone help me understand what happens after the sleeve surgery? What have been your experiences? My husband is completely against it, but I have lost and regained the same 50-120 pounds all of my life.
I am allergic to soy and dairy. I can't eat nuts, seeds or gassy vegetables due to the diverticulitis. I have given up red meats ;( due to the diverticulitis and am right now on my fourth flare. High protein is very bad for this disease.
Help!
This surgeon told me that in his opinion, the surgery to remove the colon that has the diverticula is too dangerous at my weight : 280 and I am 5'8". He told me to get a gastric sleeve (he does not do them and is not affiliated with anyone who does) and then come back to him for the resection when I am down to a BMI of 27.
He told me doing a resection on me would likely result in a colostomy bag and routing that intestine to the surface would be a "Herculean task".
Besides being so deeply hurt by his speech, I am stunned. I have been told by my regular GI doctor that I am basically a ticking time bomb.
I can say this: He is a very good surgeon and he was straight shooting. I know he was. I know I can shop around and find some doctor to do a resection, but I know this guy is right. I don't want to just get anyone to cut me. I want to get over the hurt and learn what my next steps are.
So now I need another surgery. Can anyone help me understand what happens after the sleeve surgery? What have been your experiences? My husband is completely against it, but I have lost and regained the same 50-120 pounds all of my life.
I am allergic to soy and dairy. I can't eat nuts, seeds or gassy vegetables due to the diverticulitis. I have given up red meats ;( due to the diverticulitis and am right now on my fourth flare. High protein is very bad for this disease.
Help!
0
Replies
-
I'm sorry to hear of your medical troubles. I can tell you about my experience with getting sleeves a little over 3 weeks ago. I've had a few surgeries - ankle, shoulder, gall bladder and pancreas and this was by far one of the easier surgeries. Seven small laproscopic incisions that are already healed up. I was nauseas for the first few days but I am after every surgery. It was a one night hospital stay. I didn't take pain meds once I was home (they made me sick too). I was sore for about week but was back to my regular schedule after a week. I liked afternoon naps for about the first two weeks. Now, at a little over 3 weeks, I feel good, no pain, no soreness, no fatigue. I walk about 10 miles a week. And I've lost about 15 lbs since surgery (10 lbs during the pre-op diet.)
I don't think being allergic to soy will be a problem but a lot of the protein drinks are made with whey. Are you allergic to all dairy or can you have lactose-free milk and such? They do make egg-based protein drinks, you will just need to be careful about seeking them out. The first week or so post-surgery is clear liquids and protein, the 2nd week is full protein drinks, then you move on to pureed foods, soft foods, and then regular food. I am on about 700 calories now and aim to get at least 70 grams of protein. For example, this morning I had protein powder mixed with lactose-free milk, lunch was tuna and mayo, and dinner was some hummus. I don't think the nuts, seeds, red meet, or gassy vegetables will be a problem. Chicken, fish, turkey, eggs, egg whites, yogurt (if you can have it) are all good sources of lean protein.
I think a consult with a bariatric surgeon is your best move. S/he can address the diet questions and how they relate to your other medical issues. Good luck to you!!0 -
Thank you, and I hope more members will help me, as well. I did do the online video program which is required before getting a consult at the hospital here in Pittsburgh.
Large amounts of protein are the kiss of death for diverticulitis. I am not sure how I could manage that. It builds pressure in the bowel. But I am sure that others who have this have had to have the weight loss surgery.
I have tried so many time and now it seems to hard to have to go six months of medically supervised dieting just to even get started. Did everyone have to do that to get it covered?0 -
There are rice and egg based protein powders. I know you say no gassy food now but when you eat as little as we do I don't think gas is gonna be a big problem. You may find that beans aren't problematic at all when you only get a few tbsp. There is also quinoa and kale. How are you with high biologic value protein like fish, chicken and turkey?0
-
i know there is also a pea type of protein. It is possible that I can find a work around. The whole thing is altering my mindset. I was offered pills or surgery.
I never did well on pills, lost 120 pounds, crashed my endocrine system and gained it all back.
I need a new option. The funny thing is that my husband is HORRIFIED about getting part of my stomach taken out, but I am looking at losing two feet of colon, too. If you can live without most of your colon, why not your stomach?0 -
I started out at 5'6" and 235. I did have to do the 6 months of Dr assisted weight loss, (What a crock! After carrying 100 extra pounds for 30 years it should be clear that someting's NOT working). Anyway, it did give me the time to research and educate myself about the process. There were psych evals, nutritionist appointments, support meetings, an EGD, (where they found a hiatial hernia causing GERD) and a pulmonary exam to check out my "uncontrolled asthma", which turned out to be the GERD.
Surgery went exceptionally well. No surprises other than I was released a day early. I returned to work the next week. It's been a learning process as far as how much to eat and how slow to eat, but today, at 10 months out, I tolerate pretty much everything. I am compliant with my protein and vitamin requirements and ecercise daily. To say this has been a life saver is the understatement of the year. It doesn't seem possible that I could feel so good missing 90% of my stomach, but I DO!
Your diverticulitis will present a challenge for you in this, but not necessarily one that can't be overcome. You should chat with a nutritionist with experience in both as well as your bariatric team about you options. Best of luck to you!0 -
Wow. That’s a lot to take in, and I am sorry. What a tough spot to be in – in every way. I’ve had to have a lot of gyn surg, and part of the reason I really got serious about weight loss is because I was told that the next one would be even more difficult, if not impossible with the weight I was carrying- 5'7" and 325lbs. I was actually in the stirrups seeing a new GYN specialist- in the middle of the exam, when he decided to push around my giant stomach and tell me “this, all of this has to go…” it was a horrible moment. I never went back to that GYN- I don’t need to be humiliated to be informed- but, it was a few months after that I had my first WLS consultation. I don’t have the diet restriction that you have, but I would hope that a WLS surgeon would be able to honestly advise you on whether or not you would be able to nourish yourself post-surgery. A friend of mine does have sever food allergies to nuts and diary, and esophageal issues and will be having gastric bypass next month- so I’m hoping there are other options if the sleeve isn’t the best choice.
Overall though- I would say WLS is completely worth it- the time, the cost, the effort- I never thought I would be this successful with it and I am so glad I had the surg.0 -
Sounds like you have a lot to consider. I saw that you are going to a hospital in Pittsburgh. I had my sleeve done on 7/31 at MaGee and the whole experience has been excellent. I did have to go through the 6 month waiting phase, during which I attended Lifestyle classes once a month at the hospital. You basically weighed in and then read a module about diet, exercise and psychological changes and then answered some questions and set some goals. The insurance companies like to see you lose weight during this time, or at least not gain a lot of weight (that would indicate to them that you are not putting forth any change). The 1st info session that I attended, we were presented with the three types of WLS they do, with the lap band not being as highly recommended. I liked the sleeve option because it did not seem to have as many side effects as the bypass.
I did not have my first appointment with the surgeon until about 2 months into the lifestyle classes (you need to attend 6 in a row...if you miss one, you start over). At that appointment, they go into much more detail about what the surgery entails and answer any questions you may have. They will also give you all the scripts you will need for the different tests that are required before surgery, including an appointment with the nutritionist and therapist for a psych eval.
My surgery went well. They generally keep you for two nights (longer if you are not tolerating liquids). I went in on Thursday and went home on Saturday. Really felt pretty good but have to agree with an earlier post that I felt I needed a nap every day. I went back to work this past Monday (really missed that nap). I only had 5 small incisions, which healed very quickly and other than trying to find a protein drink that I don't gag on, things have gone very well.
Please message me if you want to know more about the program I went through at Magee. One big difference I have seen is that there was not 2-week pre-op liquid phase, they just wanted you on liquids for a day or two before the surgery to empty your system.0 -
I don't have any experience with your specific set of issues, but another good resource for support and a much larger pool of people to ask questions is the obesityhelp.com forums. There is a VSG forum that was/has been invaluable to me both before and after surgery. It also has a very handy search function so you can look back over old threads.
Having this surgery was absolutely the best decision I've ever made. I have not had any issues and I thought it was a much easier recovery than the gallbladder surgery I had the previous year. So far, my experience has been textbook - down to the amount of weight my surgeon predicted I would lose by now. There are certainly those that have had complications (the main ones are food intolerances/nausea, dehydration, and staple line leaks), as there are with any surgery, but even most people who struggled with post-op complications will eventually be glad they had the surgery. Best of luck to you and keep us updated!
April0 -
Thank you all for your replies. It has really encouraged me. I was stunned by my doctor's recommendation, but even more stunned when my sister and aunt also encouraged me to have the surgery.
There is so much to learn about the way life changes after the surgery. Where did everyone get their information? It sounds like the hospital will be a super resource.0 -
The protein issue will be the most difficult to overcome. Roughly 70% of your calories need to be protein while you're reaching goal weight (varies by Dr). When you meet with the bariatric people make sure you let them know your sensitivity to high protein diets. Good luck!0
-
Thank you all for your replies. It has really encouraged me. I was stunned by my doctor's recommendation, but even more stunned when my sister and aunt also encouraged me to have the surgery.
There is so much to learn about the way life changes after the surgery. Where did everyone get their information? It sounds like the hospital will be a super resource.
http://www.vanderbilthealth.com/surgicalweightloss/15825
I also cruised the web. I was most concerned with what caused WLS failure. That was just my personal thing. Many people want surgery details. I discovered more of what I had already found to be true. Obesity is mostly caused by medicating with food. Failure to stop medicating with food will lead to WLS failure. As my surgeon says "Anyone can out eat WLS"
Also you can go back thru all the old MFP posts and get lots of info.0 -
Mangopickle, thank you so very much for posting that site. :flowerforyou:
I've already bookmarked it and will go through it in the coming days before I meet with the surgeon in early September.
I've been looking for some credible online sources to read up on RNY and VSG.
I can't thank you enough.0 -
ImaWaterBende, I too have diverticulitis, not as severe as yours, but still there. That said, I was sleeved 3 years ago and have not had a flare since the surgery. I eat red meat and occasionally nuts or seeds. I don't do a lot of nuts or seeds, maybe once a month or so. I get my fiber from vegtables, triscut crackers or quest bars. And I eat more chicken and pork than red meat. Avoiding constipation for me is the best way to handle my diverticulitis.
My suggestion to you is to look at all of the weight loss surgeries. Although I am partial to the sleeve, there are other surgeries out there that may be better suited to your diverticulitis.
I had the same conversation about a surgery I needed that they wouldn't do because of my weight. It is heartbreaking to have a doctor tell you you're too fat for something. As hard as it was to hear, it was true also. And since losing 162 pounds, I no longer need the surgery I was denied, so I'm not complaining either!
Feel free to message with questions if you want and good luck with your decision.
Pat0