I've been on 2.4g mesalazine per day for about a year now for my UC, doubling the dose when I get a flare up. This seems to be working well, but I'd love to get off them because I'm wondering what the long term effect of them would be. Trigger foods for me include corn, cabbage, cream, fizzy drinks, caffeine, excess fat and excess carbs, etc. Strangely (and thankfully), curries, alcohol, milk, eggs and animal protein are all good for me. Most veg is good too as long as I prepare it properly by removing the skins and seeds.

So thankfully, there aren't many things I need to steer clear of and I'm sure the mesalazine has a lot to do with it. Diet-wise, it's been more a case of making sure I eat light but often, and make sure it's prepared properly. Using the MyFitnessPal app on my phone has definitely helped to picture what I've been eating over the last couple of days, so I can make sure I don't go overboard on a particular food type. Variety and smaller portions seem to be the key avoiding flare ups for me.

I applaud you if you are able to manage your disease with diet alone. I cannot.
I am currently taking 2 Colestid one hour before breakfast to tighten things up and 400 mg of Cimzia every 14 days. This makes the CD manageable.
Since your diary is private, will you share some of the foods that are on your specific diet?

AmyMoenae - I'm curious. Have you had any colonoscopies or any medical evidence of the food limitations helping your disease? I'm completely on board with the evidence for most people being their sense of wellness. I get that. But for me I'm looking to see if it's reasonable for me to expect an improvement in my colonoscopy, or at least some evidence to suggest to a doctor that, yes, diet does impact actual health. I never heard of the ALCAT. I want to look into that.

Jaime

AmyMoenae wrote: »

I was following the SCD diet but it wasn't working for me. I was making my own chicken soup, pureeing everything and drinking my diluted Welch's grape juice. I had gone completely off grains and gluten. Everything was organic; sugar and dairy were limited and yet I was in the ER every 2-3 weeks!!! This way of life for me was not working.

I finally met with a homeopathic doctor and he gave me the ALCAT food sensitivity test I realized why... My body was irritated by chicken and especially grapes and garlic and many other things I considered healthy! I have since learned to eat off the foods on my okay list and I am doing really well. I found out I also suffer Adrenal Fatigue. Now that I know how to manage my stress, altered my daily routine and eat what does not upset me and am taking many supplements to combat and support everything, I feel great. The worst part is knowing I cannot get it all done in a day that I would like. I still feel this route was the best for me.

I take both meds and diet, but I hope in time to get off my meds. I don't have any strictures or fistulas, but a lot of inflammation in the colon. I have been through every med, and they saved my life on numerous occasions, but the only time I noticed significant difference in my symptoms were when I changed my diet. I am on the Autoimmune protocol, which emphasizes on eating nutrient dense foods, and to temporarily avoid foods that may aggravate the immune system (I can add them in later if there are no reactions). I have to cook everything, including veggies and fruits, and I still have to avoid some healthy foods like broccoli, cauliflower, and grapes. I love how I feel, and I am starting to become a decent cook, but every once in a while I wish I could dive into a pizza without feeling like crap the next day.

I was finally diagnosed with ibs in 2016 (more consipation now) had my gallbladder removed in 2006 and my bowelmovements were all over the place from not being able to get off the toilet to going weeks without going. They told me to just change me diet, and learn what works, it’s been a long road and I know some triggers but I feel like I still don’t fully have it down still learning. I’ve cut out cows milk and gone to coconut and almond. Also told to increase my fiber when I got told I had IBS, that’s been hard because I hate pills I’m horrible at remembering to take them.

What kind of stuff do y’all do for more fiber?