My story...
jove102
Posts: 68 Member
hi everyone! I have been on this board for some time so I decided to tell everyone my story!
In 2008 I had a kidney transplant...I had to take prednisone and I started gaining weight...I gained over 60 pounds...
Last year I found out I needed another transplant and was told I could not get on the transplant list until I lost weight.
Well this was damn near impossible because of the prednisone and the yucky feeling I have because of kidney disease.
So last year I got the ok from my nephrologist to have bariatric surgery...
The bariatric team knew I needed this done quickly and sped the process along for me!
I had bariatric surgery this January, I had a lot of complications. I became so dehydrated I had to be admitted to the hospital. I also had severe pain where they did the surgery. They say it was because they cut through nerves. It was horrible! I also had thrush and c-diff. It took me 6 weeks to normalize, I feel fine now.
I went through the testing at the transplant clinic a month ago and got the call today that I am officially on the transplant list!
I am nervous and happy at the same time. I am nervous because I am going to have to go on dialysis soon. Happy because I made it this far.
The average wait on the list is 2 years but it's better than not being on it!
Thanks everyone for support and advice!
Oh I also bought roller skates today! Can't wait to use them!
In 2008 I had a kidney transplant...I had to take prednisone and I started gaining weight...I gained over 60 pounds...
Last year I found out I needed another transplant and was told I could not get on the transplant list until I lost weight.
Well this was damn near impossible because of the prednisone and the yucky feeling I have because of kidney disease.
So last year I got the ok from my nephrologist to have bariatric surgery...
The bariatric team knew I needed this done quickly and sped the process along for me!
I had bariatric surgery this January, I had a lot of complications. I became so dehydrated I had to be admitted to the hospital. I also had severe pain where they did the surgery. They say it was because they cut through nerves. It was horrible! I also had thrush and c-diff. It took me 6 weeks to normalize, I feel fine now.
I went through the testing at the transplant clinic a month ago and got the call today that I am officially on the transplant list!
I am nervous and happy at the same time. I am nervous because I am going to have to go on dialysis soon. Happy because I made it this far.
The average wait on the list is 2 years but it's better than not being on it!
Thanks everyone for support and advice!
Oh I also bought roller skates today! Can't wait to use them!
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Replies
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Wow. Sounds like you went through the wringer. Thanks much for the intro and WELCOME!!
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I'm hopeful the tough times are past now pertaining to the VSG and your health is improving. It's great that this surgery helped you get onto the transplant list. I hope you can get your new kidney soon. Keep us updated. Sending best wishes!!0
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YAY, YAY, YAY!!! You are going to do great! I love happy stories! Best wishes can't wait to hear the rest!0
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I'm so happy you were able to get on the transplant list - I hope that works out quickly for you. I'm a nurse and read medical records all day and see a lot of people who've done wonderfully post-transplant. Sounds like it's been a rough road for you, but there sure is light at the end of the tunnel!
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Thanks for sharing your story. You have been through a lot and continue to fight the good fight. Welcome to the site. 0
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That is amazing!!!!0
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What a journey you have had! Congratulations on everything! Roller Skates? That sounds like great fun!! Keep posting so we can see how well you do with all this.0
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So glad you are on the transplant list! Sounds like you did go through the wringer! May the rest of your journey be smooth sailing. You are a gorgeous girl! Good luck!0
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We've all overcome obstacles to get to "healthy", but wow! You've really leapt some big hurdles--in roller skates no less. 0
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your story is very similar to mine
I have one more test to do before they put me on the list, the vein surgeon says I don't need the test, but the transplant team says I do before they put me on the list, go figure LOL. I have been on peritoneal dialysis for 4 years, I was on Hemo for 3 months following the vsg surgery, if you have questions please feel free to ask me. Congratulations on getting on the list 0 -
I was on peritoneal before...just sucks...do you do yours during the day or night?0
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i do 2 manual exchanges starting at 7 pm with a change at 12 am and a drain in the am and empty all day wooo hooo for that, so I sleep for most of mine, Hemo and I did not get along, I had 1 day of feeling good for the whole week0
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I used to do four exchanges during the day...I never did hemo...I told them I want to do it at night this time around0
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on the cycler? I tried the cycler for a week or so we found out I need to dwell at least 6 hours preferably 8, my numbers are great with two ... so far fingers crossed it stays that way0
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Jove, your picture is beautiful you posted! I'm so glad your surgery is behind you and you are on transplant list again. So sorry for all the complications you've gone thru.0
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When I did it I did the exchanges myself...I only was on it for a few months so I don't know all the different things that are out there now0
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It's so hard to do excersice with end stage renal failure...all I want to do is sleep...I still work full time so it's really hard to do anything...hopefully my roller skates help0
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as soon as you start the dialysis you should start to feel better, not so tired all the time. and omg I wish I had the balance to roller skate. I am hoping when I lose a bit more weight I will be more comfortable on my bike. I ride it, but I am not nearly as confident as I used to be.0
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