You don't sound crazy, the doctors sound crazy for not wanting to test you! I would push once more to get at least the blood test and hopefully an EGD w/ biopsies for celiac. If you absolutely can't find a doctor who will order the tests then go ahead and just eliminate gluten and see what happens. When you do the elimination you've got to be very strict! Even a teeny tiny molecule can cause reactions if you are celiac and you won't be able to accurately gauge your results.

Eggs are the foods most likely to cause headaches, but the rest does sound like gluten or diary issues. (People with gluten issues frequently have issues with diary and eggs too. The proteins are similar in structure.) If you think you have an issue with gluten, just cut it out of your diet. I mean, do your research to ensure you are eating a balanced diet, but stop eating it even without a diagnosis. It took 6 months for the effects of gluten to leave my system, and year for me to start feeling ok again so stick with it. The down side of cutting it? For the blood testing, you actually need to be eating wheat.

You are your own advocate! Gluten intolerance, sensitivity, and celiac disease is a relatively new concept in the medical world. They think everyone is over reacting because of the media coverage but I'm not sure we are! The person your poor health effects the most is YOU. Most doctors' education stops once they leave school/their internship. And consider that a significant portion of their formal education is learning about drugs!!! They don't know everything and too many of them are unwilling to admit that patients have more time and interest in researching conditions that then do. They are a partner in your health journey, but they work for you. Be kind, certainly, but don't give in if your symptoms aren't clearing up.

PS Go see a naturopathic doctor. Mine was able to run additional tests for allergies that my doctor was actually unable to access. Totally worth the money and she was more interested in clearing up the root problem than dealing with the symptoms.

Best to go GF and recheck how you feel in 6 months of being very strict. Easiest if you eat 1 ingredient foods, lol. Like meat, fish, raw nuts (roasted ones are frequently dusted with flavourings that contain gluten), beans, fresh vegetables and fruit. As MeridianGirl noted, try to stay away from GF fakes of processed wheat foods like cakes, cookies, etc. A good GF bread once in a while doesn't hurt, but it is very high in calories & carbs with very little fibre. I eat one small loaf a month.

They can test for Celiac quite easily. Gluten or wheat sensitivity? Eh. My experience and validation comes from an elimination diet that someone mentioned. About 20 years ago, I figured out bagels and pizza did horrible things to my system. I cut them out and the symptoms stopped. I'd have a slice or two and the symptoms returned within hours.

A few years ago, when going GF first became "trendy" (a la Atkins and South Beach) I went to get tested. Since I was wheat free for so long, the gut looked fine. Bloodwork was negative for celiac. Best guess? Sensitivity.

So yeah, if no one is listening to you, maybe elimination IS the way to go.

How can they refuse to test you?? You hire the doctor - he/she works for you. If they don't test what you need without giving you a valid reason, get another doctor. That is only if you need the test results for assistance from your insurance provider for buying gluten free food or for your medical tax write-off (like in Canada). If you don't get any benefits from having the test - don't bother, just eat GF and feel better.