Any 50's sisters?
GalatiansTwoTwenty
Posts: 28 Member
I am new to MFP, new to this group, but unfortunately not new to having PCOS. I was diagnosed in my 30's - why not earlier? I was too ashamed to go to the doctor. And since my diagnosis, it seems that the PCOS diagnosis is ignored as having anything to do with all of my health issues - diabetes, high cholesterol, depression etc. Am I alone in this? I am living with what develops after many years of having PCOS - now that I am older I feel like when I mention PCOS I get, "you are old and you think that is a problem for you?" One time I even heard, 'You're not trying to have kids now are you?'
Requesting comments from anyone who can relate or empathize - and also from anyone who would like a friend.
Thanks!
Joyce Ann
Requesting comments from anyone who can relate or empathize - and also from anyone who would like a friend.
Thanks!
Joyce Ann
1
Replies
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Joyce Ann, aka @GalatiansTwoTwenty ,
I just turned 40, and I was also diagnosed in my 30's, mid-30's, but just from simple ignorance - I had no idea what PCOS was, really, aside from my former SIL having cysts burst, and in fact, that was the final straw that lead me to researching PCOS... It's been heck on wheels getting treated, but luckily, I don't have the problem of getting discounted. I am done with children, but I am not done getting this handled.
I have an endocrinologist whom I went to for hypothyroidism initially, but he's treating my PCOS along side it, and in fact is the one who formally confirmed the condition. Given your history with diabetes, high cholesterol, and depression, it is very likely that you also have a companion thyroid issue. My understanding is that at our age, our TSH test should be well below a 2 on the range scale. Many of us have a thyroid problem for 10-15 years before it shows up on the standard tests.
stopthethyroidmadness.com is a fairly comprehensive site that can give you a lot of good information to get started in confirming this or not. If you can get a good endocrinologist (this one is my third, and he's worth his weight in gold!) to treat you for PCOS, diabetes, and/or hypothyroidism, I think you will start to regain some of your health.
I'm kind of an "in your face" "take no flack" kind of person, so I don't put up with anyone saying that kind of stupid mess to me...and most people know all that, so they really don't bother talk to me like that...but I'm a big advocate for this and all manner of female health issues.
I wish you luck in stealing some of your health back!
HUGS,
Carly0 -
Hi Joyce Ann,
I'm 50 and have a similar story-- please read it here: http://community.myfitnesspal.com/en/discussion/10210540/success-stories#latest
When I was FINALLY diagnosed at 35, I was already a mess--had lost much of my hair, was growing it in all the boy places, terrible fertility problems, miscarriages, no period. My OBGYN's words of wisdom? Don't worry about it--you're done having babies and they make good wigs these days... Then a 2nd OBGYN confirmed that.
But there IS hope..again, please read my story and be encouraged! I'm SO much healthier now than when I was in my 20s and beyond. I haven't "arrived" yet, but each step of the journey brings improvement in my health, both physical and psychological. Last Dr. appt he told me I have kicked all risk for diabetes, my bp is now 110/60 and normal cholesterol.1 -
Also, I too have thyroid issues, but they remain undiagnosed, despite numerous dr.s looking at it. I have masses on my thyroid that change every 6 months when I get an ultrasound, symptoms of both hypo and hyper, and an inconclusive biopsy. I also have a heart arrythmia they suspect is being caused by my thyroid. My only options presented to me were--let's watch it or we can remove it. We are watching for now. I'm hoping this may improve also with my other health issues as I get healthier. Btw, all my test numbers show as normal. Knitormiss, I'll have to go back and check that TSH since you mentioned under 2.0
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@JulieSHelms - Yes, the range say it can be upwards for 4 or 5, but that's only safe if you're 20 years old or something. My endo told me that 40 years old, I should be under a 2. Another lady in the low carb group shared that her endo/naturopath doctor said that most folks feel best between 0.5-1.5. I think that is uIU/mL... I can check if you need the measurement. My Endo said that anything over a 1.5 and he wants to increase my meds.
That site I linked above is one of the more comprehensive sites, but most things don't list out what the TSH should be. TSH doesn't even measure the thyroid - it is a pituitary hormone measurement!?!?!?! Like really? Getting Total and Free T4, and Total, Free, and Reverse T3 give a far better picture. If your doctors don't know how to look at all those numbers, get a different doctor or a specialist. My PCP was happy to run the extra tests for me when I asked, and agreed that my Endo would appreciate the results...and he did, including changing up my medication regime. I feel TONS better.
And Julie, I think I mentioned this before, if you have symptoms of both hypo and hyper, look into Hashimoto's. There is an antibodies test that is a simple blood test that can show if you have this... Actually, apparently it is two tests... Hashimoto's Tests0 -
Thanks for the info--I'll check all that. I was checked for Hashimotos at some point and it wasn't that. Mostly, I am hypo, but once in a while hyper symptoms kick in, to the point where my hands are shaking. The theory is that the masses have a life of their own and squirt out hormone unregulated at weird intervals that lead to the hyper symptoms. I was on meds for years, (mostly Armour Thyroid) but nothing really changed. And they had to yank me off of them when the arrhythmia started 2 years ago, because the meds could have been causing it. So now I have a cardiologist in the mix <sigh>. I have another ultrasound coming up soon, so I'm hoping that since everything else PCOS-wise has gotten so much better, that my body might somehow heal itself of this too. I don't notice the arrhythmia anymore, but I'm on beta blockers, so hard to know if I would have it still w/o the drugs. Will talk to the cardio next time about slowly pulling me off them to test this.0
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http://www.stopthethyroidmadness.com/lab-values/
This gives the recommended values. Be sure to read that other link on Hashi's - it seems that the arrhythmia **could** have been triggered by not having enough of a dose of NDT - a lot of mess seems to come from not increasing to symptom relief or not increasing enough...
That whole hypo, then squirt to become hyper, that's signals that your thyroid is DYING, whether or not it's Hashi's.
I'm on beta blockers, too, but it's because being 40, being on birth control pills triggered spiking dangerously high blood pressure for me...0 -
Thank you all so much for your replies - such good encouragement and good information - I am very happy I have found this group! Many, many blessings!1
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