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Jill_Nicolette
Jill_Nicolette Posts: 15 Member
edited August 2017 in Social Groups
My son has cleft lip and palate. He eats through a G-tube. The doctors have diagnosed him with Wolf-Hirschorn syndrome. I'm still trying to learn about it.

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  • mrshuerth
    mrshuerth Posts: 1 Member
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    Woah!! It was like meant to be. I just literally decided to try this weight loss thing again and was checking out the groups and this was the first one that popped up! I have two boys with special needs. My 12-year-old has Bannayan-Riley-Ruvalcaba syndrome, and my 7-year-old has autism. Hi!
  • Jill_Nicolette
    Jill_Nicolette Posts: 15 Member
    edited August 2017
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    Hi! Hmm that syndrome is new to me. Quite a mouthful. I have a 30 year old brother with autism.
  • KerrieA87
    KerrieA87 Posts: 167 Member
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    Hi, I have a daughter with special needs, no diagnosis as yet but looking at attachment disorders or autism.
  • emmealtemus
    emmealtemus Posts: 3 Member
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    Hi there, i have a 5yo son who has Chiari 1 malformation and autism. My 8mo daughter hasn't been diagnosed but she is having to go into physical therapy and will have to get braces for her legs since her ankles are so weak. Still waiting on a course of action with her.So happy to see there is a group for us special needs mommas.
  • Jill_Nicolette
    Jill_Nicolette Posts: 15 Member
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    You bet!

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