Gluten-Free and RA

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Hi everyone,

I have lupus and RA. I have been wondering about gluten-free diets and RA. I work in the science research field, specifically MS research, but there is a lot of cross-over in research with autoimmune diseases. I know that I have read a scientific article that indicates that gluten can exacerbate psoriasis--maybe that extends to psoriatic arthritis? So I'm wondering if a gluten-free or gluten-reduced diet would help RA sufferers as well? I've seen lots of what I consider bogus research online--mostly by people who just want to sell you their book. In the academic scientific world, research is generally free to everyone to benefit from, once it is published, so I guess I just trust it more than someone trying to sell me their book. I've been dubious about all these claims of vegan and gluten-free diets that cure lupus and/or RA. Has anyone had an experience with gluten-free diets and do you feel consistently better when you don't consume gluten?

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Replies

  • chauncyrenayCHANGED
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    I'm so curious to see what people post here.

    I am currently on a gluten-free fast for 4 weeks to see if it is a good option for me.

    No luck yet, but they say it takes about 3 weeks to see a difference. :)

    I'll post again when I get my results.
  • cedelaney
    cedelaney Posts: 7 Member
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    The Lupus Canada website has information written by specialists for sufferers and one doctor says that if there were such a diet that could cure lupus, he would definitely prescribe it, but according to him, no such diet exists. This confirmed my suspicions of these diets. However, doctors are notorious for not believing in alternative therapies, so I too am curious to talk to someone who truly believes that it has consistently helped them in the long-term to be on a gluten-free diet.
  • chauncyrenayCHANGED
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    Exactly. My doctor dismissed me when I mentioned it, but I've heard of the gf diet working wonders for others.
  • Lorijo50
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    I asked my doctor about diets and he said there was nothing that they know so far that would make any difference, just eat a well balanced diet.
  • nabooth
    nabooth Posts: 9 Member
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    My first rheumatologist says that it's not proven, but that some people have relief from some symptoms from eating gluten-free. He didn't say it was a cure, or even that it would work for me. He said if you're interested, you might try it and see if it works for you at all.:smile:
  • SamanthaWrenn2012
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    When I stay away from gluten it helps immensely. Along with RA and i also have allergic to gluten. So obviously for me I feel better when i don't eat it. My step-mom is an RN and my dad is a Paramedic and they both said that staying away from gluten can lessen swelling. Even my Rhuematologist mentioned this. I think it all depends on your body. My swelling is much less when i stay away from processed foods that contain a lot of gluten. :) I say go for it. There are many cook books that are gluten free so you can still eat "normal" foods. Also eating gluten free can be healthier since you eat more baked and roasted chicken, fresh fruits and veggies. :)
  • Amayrial
    Amayrial Posts: 139 Member
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    I was diagnosed with RA in 2005. Full meds, the whole nine yards. it was horrible. in 2010 I stumbled across a book about curing fibromyalgia which I also have been told I have. In it was an elimination diet. So for two weeks I did the elimination diet. After 4 days, I felt like I did before I was diagnosed with RA. No pain. No aches. nothing. It was crazy. I slowly started adding stuff back in and found that when I eat gluten I start to loose muscle function. I've been gluten free for nearly two years now, and I'll never ever look back. Ive regained all that I lost in the 6 years between diagnosis and giving up gluten.

    All I can say is give an elimination diet two weeks to find out if it affects you. It is SOOOOO worth every second of the difficulty of being gluten free. I will NEVER go back to eating gluten. period. :)
  • cakeums
    cakeums Posts: 231 Member
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    I get skeptical when people say their RA was cured by going GF...the people I have met who have told me that also admit that they have not seen their rheumy in X amount of time, do not get their labs done, etc. So I feel like for some - not all, but some - it is a bury-your-head, out-of-sight, out-of-mind kind of thing. I am totally willing to try dietary changes to help my symptoms, but I am starting by eliminating beef, high-temp-cooked meats, as much processed food as I can, no white potatoes, eggplant, tomato, and a few other things. Eliminating gluten right now is out of my reach financially and as far as practicality goes. I would be willing to try it and see if it helps, but I am not going to discontinue my meds or seeing my rheumy...reduction of symptoms in my joints does not necessarily mean my heart, lungs, etc. will be okay.
  • cakeums
    cakeums Posts: 231 Member
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    I also wonder how many people who achieve total remission via a GF diet are seronegative for RA, or which markers they have that are positive. My anti-CCPs are very high (>250) and suggest that I will never achieve remission, but what about someone who has joint swelling, pain, stiffness, elevated ESR and CRP, maybe a slightly high ANA at 1:80, but no other markers? Maybe their abnormal labs are due to something other than RA.
  • Amayrial
    Amayrial Posts: 139 Member
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    I didn't achieve total remission of my RA via a GF diet but reduced my medications by nearly 80% and nearly completley stopped my fatigue, muscle pain, aching joints. I was once again able to resume a lifestyle I had prior to my RA diagnosis. I feel as though I got back the 6 years I lost while working through my diagnosis. I still had occasional flares when my stress level got too high.

    I see my rheumy every 3-4 months and have blood work done every two months to follow up on my levels. I am seronegative, and always have been.

    I have sadly come out of remission, my RA is in full swing but it's because my stress level is so out of control. I still eat gluten free because I feel 100% better when I do.

    I too would be skeptical if someone told me their RA was cured by a GF diet. There is no cure, only the illusion of control. And because I do see my rheumatologist every few months she works hand in hand with me to manipulate my medications as needed to keep me on the lowest level possible with the best disease control.
  • ndbex
    ndbex Posts: 61 Member
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    Let me first say that I think going GF will not hurt you so it's worth a try. I did try it and I saw no difference other than feeling a little less bloated. I found the diet to be hard to follow and expensive. I also noticed that since celiac's disease has gained more public attention and thus their diet, it seems like everyone swears they are gluten sensitive. It's become a fad, in my opinion. However, as stated above, it doesn't hurt to try! I've been tested for wheat and gluten sensitivities and came back negative. I've been told by Celiac sufferers that the only way to truly find out if you can't process gluten, is to have a small biopsy done on your intestine.

    I've also not seen any medical research about diet eliminating symptoms of RA but I still think there are certain foods that every RA patient knows will make them feel awful. Too much salt, alcohol, and red meat made me feel yucky, for lack of a better term. A lot of people say that dairy causes inflammation. I think if you want to do an elimination diet, starting with dairy would be more practical and easier, as gluten is in so much stuff! Even vitamins can have gluten in it.
  • babyblooeyes
    babyblooeyes Posts: 67 Member
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    I have been mostly gluten free for the past 3 months. I may falter from time to time. What I did notice was an decrease in abdominal bloating, more energy, and yes, less pain. I did this because it was my only other option at the time as I could no longer afford my treatments. Normally when I go off of meds I am debilitated within a few weeks. This time while I could tell that my RA was progressing the level of pain was still decreased in some of the worst joints affected which allowed me to continue working and moving. When I have had gluten I usually feel it within 24 hours and literally will feel as if I had been hit by a truck along with the GI symptoms. I am very happy that I made this decision to be honest. The thing is if you don't have a sensitivity to it then going gluten free will likely have no effect. But if you are sensitive to it then it would explain why you would have improvements since it causes an autoimmune inflammatory response.

    Theresa
  • chauncyrenayCHANGED
    chauncyrenayCHANGED Posts: 788 Member
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    Thank you for the explanation and for sharing your experience. That definitely makes sense.
  • MJLPAA
    MJLPAA Posts: 32 Member
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    As a child I realized that I just didn't feel good when I ate processed meats like ham, baloney & hot dogs and avoid those with the exception of an occasional hot dog. Six months ago I tried going gluten-free and found that I not only had less digestive issues but also less inflammation. I stayed gluten-free for 4-5 months and really felt good, then I went on vacation and fell out of step. It has taken me several months of feeling poorly to muster the determination to get back on my whole foods & gluten-free diet. Today is my 7th day and I am feeling much better and more confident about staying focused on health and losing 80-100 lbs.

    My family doctor discounts everything I ask about and continues to blame my RA pain and occasional immobility on my weight. Last year he put me on a 400 calorie a day diet for 5 months. Yes, I did lose 70 lbs in 5 months but we all know it quickly found me when I began to eat 1200 a day. When I ask for information, he repeatedly tells me the "you have to count every Skittle you put in your mouth" story. Wish I could afford to shop around for a new doctor, but I can't.

    Thanks everyone for sharing. I am eager to get to know you and learn from your experiences.
  • chelseagirl82
    chelseagirl82 Posts: 6 Member
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    Hi all. I've had RA for 2 years and have, until recently, been successfully treated with Methotrexate. Lately, though, the side effects of Methotrexate are catching up to me, so at my latest Rheumy appt, she had me lower my dosage and schedule another appt in 4 weeks to talk about adding an additional DMARD. Up until that point I had been trying the "Mediterranean Diet' (whole grains, veggies, fish, little to no red meat, and no refined sugar) but, while I did lose some weight, there weren't any obvious improvements in my RA symptoms. After my appt, I decided to try one of the more "extreme" diets, at least for the interim between appointments -- I figured 4 weeks would be enough to see some kind of difference, plus I had blood work done at the last appt and will have it done again at the next, so I'd have more definitive proof to see if diet was affecting my overall inflammation levels. So I've been gluten-free vegan for the last two weeks, and will continue for the next two weeks til my next appointment. Gluten free hasn't been terribly hard nor expensive for me, but I don't buy any "processed" gluten-free food (gluten free bread or anything made to imitate something that has gluten). Basically it's brown rice and quinoa for me. So far, so good. I don't know, though, if it's because of the gluten-free, the lack of red meat, or the lack of dairy, but I do feel like my symptoms are better. I'll know more in a couple weeks when I get my blood work done.

    More than anything, I think the gluten free vegan diet just requires a lot of planning -- I really have to think about my meals for the day to make sure I get all the vitamins and minerals, etc. that I need. But if it helps me lose weight (which I think will naturally help with RA symptoms, as well as a host of other things) and especially if it helps reduce my inflammation, I am all for it. I'll let you know what I find out.
  • ndbex
    ndbex Posts: 61 Member
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    Good luck, I look forward to hearing about your experience. I hope you get some relief soon.

    I'd just like to go low-carb in general. Maybe just start with cutting carbs from my evening meal.