Multiple Sclerosis MFP's

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femmyreyn
femmyreyn Posts: 7
in Social Groups
I am a 45 year old female and have just received a diagnosis of MS or other demyelinating disease this month :frown: I have a lesion in my spinal cord that was biopsied Nov 16 because they weren't able to determine what it was. I am still recovering from that. I wont see the MS specialist until Feb 7th and have no idea what to expect. I saw this group and hoped to find a little support for both my weight loss and disease. I want to shed about 25-30 lbs but am not able to excercise much more that slow walking with the right side numbness. I look forward to meeting you all :flowerforyou:

Replies

  • Benji49
    Benji49 Posts: 419 Member
    Welcome.

    It's frustrating not having a definite diagnosis, I'm sure when you see the MS specialist you will get a lot of answers to questions. Don't be afraid to ask though, a lot of seemingly unrelated things turn out to be a part of MS. I have a great relationship with my neuro, and the staff at the MS Clinic in Calgary are fantastic.

    One bit of advise I would give you is don't try and push your body too much too fast. You will find with MS that when your body is tired it will send out a little message saying "I'm tired, I should rest" and if you ignore it, at least for me, it just shuts down. I've gone from feeling a little tired and trying to get something finished to just falling asleep where I sit and my husband waking me up 4 hours later! I have learned over the last 3 years to listen for the little messages and make sure I'm somewhere I can rest.

    After you see your MS doc and get a confirmed diagnosis you might want to log into mssociety.ca (Canada) mssociety.com (US). There is a lot of good info on that site and a Q & A section that is actually monitored by medical staff so you can trust the answers you get.

    All the best in your journey. I have a couple of friends on my list that have MS - send a friend request if you would like. :smile:
  • zenzoes
    zenzoes Posts: 187
    Welcome! :) You've had a stressful time of late I see. Take a breath and know your amongst friends :) Like Benji said, the mssociety websites are very formative and a great place to start! My best advice is be informed, be your own advocate because when it comes down to it, your the only one who knows truly how you feel. This is a great little group with quite a few friends living with MS. I am sure that everyone will help support you in your journey in some way. One great thing about the MS communities is it's full of amazing support and a amazing source of empowerment. There is A LOT of information out there, take it slow it can be overwhelming at first. And always feel free to ask any questions you have. I look forward to being friends here and helping how ever I can.
  • femmyreyn
    femmyreyn Posts: 7
    Thank you both so much :happy: I am very happy to be here and I will probably be asking questions along the way. Like: Are there foods that aggravate MS?
  • Benji49
    Benji49 Posts: 419 Member
    Thank you both so much :happy: I am very happy to be here and I will probably be asking questions along the way. Like: Are there foods that aggravate MS?

    I haven't found any specific foods yet - but alcohol seems to make the fatigue worse. Also if I don't have protein in the morning I am really worn down by 11 am.
  • psmd
    psmd Posts: 764 Member
    Hi there and welcome to this group. Sorry to hear about what's going on with you. I will say for me though, although things have not been easy I've started to really learn and believe that things are what you make of them. So you're doing the right thing by being proactive about your health no matter the limitations. Feel free to add me if you like and hope things go well for you!

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