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ravenclawseekergirl
Posts: 342 Member
Here is a list of resources that you might find useful. As i live in the UK many of these will be British based. Feel free to add your own links to useful sites below. More to be added as i find them.
http://www.autism.org.uk/
We are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.
http://www.autism-resources.com/
Website offering extensive links, book recommendations and other resources on autism and Asperger syndrome.
http://www.radar.org.uk/
Radar is the UK’s largest disability rights campaigning network, with a membership of 800 organisations and individual campaigners. We are a pan-disability organisation led by people with lived experience of disability or health conditions. We work in broad partnerships to have the widest impact.
http://www.relate.org.uk/home/index.html
Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through this website.
http://www.communicationmatters.org.uk/
Communication Matters is committed to supporting people who find communication difficult because they have little or no clear speech.You will find here information on methods of communication which can be used to supplement the more usual methods of speech and writing. These methods are called Augmentative and Alternative Communication, or AAC for short.
http://www.makaton.org/
This is a site that offers information, support and some free Makaton resources
http://www.autism.org.uk/
We are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.
http://www.autism-resources.com/
Website offering extensive links, book recommendations and other resources on autism and Asperger syndrome.
http://www.radar.org.uk/
Radar is the UK’s largest disability rights campaigning network, with a membership of 800 organisations and individual campaigners. We are a pan-disability organisation led by people with lived experience of disability or health conditions. We work in broad partnerships to have the widest impact.
http://www.relate.org.uk/home/index.html
Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through this website.
http://www.communicationmatters.org.uk/
Communication Matters is committed to supporting people who find communication difficult because they have little or no clear speech.You will find here information on methods of communication which can be used to supplement the more usual methods of speech and writing. These methods are called Augmentative and Alternative Communication, or AAC for short.
http://www.makaton.org/
This is a site that offers information, support and some free Makaton resources
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I'm in Edmonton Alberta, Canada the 1st steps I would take after having my child diagnosed (my Son was diagnosed at 3)
1)ALBERTA WIDE: Apply for FSCD, they are the gateway to almost all other funding you can get. Respite services, in home education sessions for your child, or if you are lucky enough you can have you child enrolled in an elementary school where they provide SSP services without strangers coming into your home (what we lucked out and got, much nicer)
2)ALBERTA WIDE: Apply for tax reassessment, once a diagnosis is made they can refund the disability ammount back to the month of your child's birth, it's a good chunk of money and can come in use for paying for respite, supliments not covered by FSCD or AB health (ie probiotics).
3)EDMONTON AND AREA: Contact the Glenrose Autism Center and Autism Society of Edmonton and Area. They have many great educational seminars for parents and children. Through both of these agencies I have made great discoveries that have been invaluable. The Glenrose set me up for a diaper allowance, since my Son isn't potty trained yet the province pays the majority of his pull up costs. ASEA hosted a financial advisor who gave a great presentation starting up RDSP's.
4) Talk about it. Even if you just join a Facebook group (ASEA is great) discuss with other parents your feelings, ask for help. Other parents who have been through the hoops of the system are invaluable for finding hidden gems to help your child.0
