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Hi. I had Graves. Was finally diagnosed in 2001, but got sick in 1992 - undiagnosed for 9 years. After I had RAI treatment my thyroid is 100% dead so my endo has me on synthroid. For a while I was on generic, but developed a reaction to it that caused my hair to fall out. So I'm on synthroid proper now. Other than that…
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Question for you: are you on synthroid proper or a generic? The reason I ask is I lost half my hair while on a generic. After much hunting I finally found in tiny print on the pharmaceutical company's website "a small percent of users report the dermatological side effect of hair loss". I was so mad. I now only take the…
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I just saw this thread, just recently back on MFP. Don't be afraid of RAI treatment. I had it almost 13 years ago, and am on synthroid now. Yes, I will have to be on it the rest of my life, but that's a small price to pay for still being here. I went undiagnosed with Graves for almost 10 years, so when it was finally…
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It can certainly take time for the RAI to take effect. It isn't automatic. I had monthly blood tests for a long time after to check where my levels were. I think it was around month 2-3 when my thyroid finally died and I was started on Synthroid. That was about 13 years ago. Having an endo that you're comfortable with is…
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I had RAI therapy 13 years ago to combat my advanced Graves. Once my thyroid died and I was put on Synthroid I gained a significant amount of weight even after the correct dose was settled on. A month ago I decided enough is enough and religiously started back with daily exercise & logging in what I eat. I'm finally…
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It will take some time for you to start feeling better even after RAI. My Graves was undiagnosed for almost 10 years because I moved many times. By the time I got back to CA and found a new doctor it was very bad. Had RAI treatment within 3 weeks of my official diagnosis. It took about 4 months post RAI for my endo to get…
