heatherrottenberg

I take provigil for my narcolepsy as well. I actually have another rare neuro condition on top of narcolepsy with cataplexy, so I'm the wrong person to give exercise advice. However, I know top experts in narcolepsy recommend scheduling brief naps into your day at the times when you naturally hit the wall, so to speak.…

Wondering if anyone is still active in this group. I was originally diagnosed with POTS, but more recently docs have been leaning toward generalized dysautonomia. As many of us do, I've got a trail of other dxs to go with that. Main concern here is weight management despite severe exercise intolerance.