arsenaultmom Member

Thanks everyone! I am glad I am not here alone with the struggle of unknown or rare conditions. POTS may not be rare anymore (just got off the rare list a year ago). I will be adding friends as I go. Thank you for sharing your health struggles with me. Lets see what this year brings us.

I have a daughter too with general dysautonomia and Ehler-Danlos- Hypermobility. It is a struggle as she looks normal from the outside but is in so much pain in the inside. She struggles just like I do get out of bed each day but does it with a smile. Thank you for sharing!