Vune Member

You're body is going to heal itself with the food you eat, so be mindful when you do go down the chips and soda aisle! I've had major abdominal surgery (kidney transplant), and I was in as good shape as an underweight woman on dialysis could have been. A week after the surgery, I was travel out of town to attend the…

I've begun to understand that there's more to it than this--in a good way! Yes, I'm more than Alport Syndrome, but I'm also a face of Alport Syndrome. I am the face of hearing impairment, renal transplantation, and mental illness. What I do tells the world what I'm capable of. My medications have become part of my body,…

I've been on Cellept (mmf) for almost 15 years. Does your doctor plan for you to be on this long term? Start keeping an eye on your iron intake now. It can cause anemia in the long term (I've read the packets that come with my immunosuppressants and they are not meds to be taken lightly), and I am getting Procrit shots for…

I do agree that this particular situation sounds like a rip off, and the dietitian route would be better. And you can always try eliminating probable trigger foods on your own, if you're reasonable about what you're eliminating and why. I think the mindful intentions behind eastern medicine are more valuable than lists of…

If the OP has stress related GI problems, she should be talking to her GI specialist about fodmaps. A registered dietician would be of help for her nutrient needs. Ancient eastern philosophy is great and can safely work along side modern medical science. I went and took and ayurvedic type quiz, and my main "type" fits what…

I've had multiple hospital stays and surgeries, and I've never been served meals so decadent and large that I felt inclined to overindulge. Maybe I should have my next surgery at your hospital? I have a kidney transplant, too (and, like you, I'm going to be having another abdominal surgery soon), and they always bring me a…

You can add me as a friend. I have a rare disease called Alport Syndrome, and I'm almost 15 years out from my kidney transplant. In addition, I've been diagnosed with bipolar disorder, migraines, parathyroid growths, ibs, and I'm talking to a surgeon on Monday about gallbladder removal. I have a friend with MS. He manages…

I went to the fair a couple weeks ago. We walked the entire length of it before I decided what I wanted to eat. Instead of getting the usual fair food (I already know what that stuff tastes like, and it'll be around all summer), I chose things that would create new memories. In this case, it was two raw oysters, a bite of…

Raw, prepackaged chicken usually has water added to plump it up. That would explain some discrepancy in calorie counts.

In addition to getting a food scale and tracking calories to lose weight, there are workouts you can do to become more fit. I'm also disabled and used to work with the Phamaly Theatre Company (phamaly=physically handicapped actors and musical artists league). We would often do group exercise with either wheelchair aerobics…

I've been in pain for 15 years, and my latest GI doc just suggested the the fodmap elimination diet. And my hida scan was abnormal, so I'm talking to a surgeon about my gallbladder next Monday. When you add in my kidney transplant and impaired renal function, things get tricky. I'm limiting sugars, fats, and protein. I…

Has your doctor suggested eliminating fodmaps, then reintroducing them one at a time? That's what I'm trying to do, along with stress management. I've been in pain for 15 years, dozens of tests and ER visits. Just got introduced to fodmaps about a month ago. I also seem to have an unidentified gallbladder problem, so I'm…

Last night I had 48g of oats cooked in water on the stove, and topped it with a banana, 15g mini chocolate chips, and 10g pumpkin seeds. Then, I gave it a grind of pink sea salt. It was dessert, so the calories were worth it.

My GI doc suggested the fodmap elimination a couple weeks ago, and I already gurgle and bloat less. But it hasn't done anything for the pain yet, and they found a problem with my gallbladder last week, so I'll have to fine tune my diet even more after I have it removed before I start adding things back in. I've also been…

I can only see this through the eyes of my own GI problems, but I'd ask your doctor and dietician about a fodmap elimination. I'm getting my gallbladder out soon (just had a hida scan last week), and my doctor suggested the fodmap elimination because I've been thought some significant trauma, which might point to ibs. But…

It's so nice to know we aren't alone in all this! I wish I had a yard, so I could learn how to garden. I'm technically not allowed to because of my transplant, but I could wear a mask and shower afterward. Goals.

I'm disabled and have been dealing with a roller coaster of trauma for at least the 30 years that I can remember. And my relationship just had a bump a couple months ago. My solutions are ongoing, since the only common denominator in my trauma is me: -I'm trying to identify harmful and racing thoughts as they're happening,…

My GI doc just told me to try a fodmaps elimination. I had been eating healthy, but ended up in more and more pain. Reducing my fodmap consumption already seems to be helping.

It sounds like you're stressed out because you're planning your wedding! Schedule some self care in there, too. Meditation, yoga, massage. Less stress= prettier everything.

Ask for a really nice set of knives. The kind that are supposed to last forever. So worth it.

I'm just starting it at the suggestion of my GI specialist. I've been in pain for 15 years, so I'm pretty open to anything new at this point. I got the Simple Fodmap app for my Galaxy, and I've been doing my share of research. Since I've eaten many of these things my whole life, I'm also finding new ways to reduce stress.…

I've lost 20lbs since just before Christmas just by changing my diet and being a pedestrian. I'm trying to remedy both weight gain and health problems. I'm planning on adding yoga in for some gentle stress relief.

I eat a large variety of foods, but I prepare them simply. Fresh fruits and vegetables, eggs, some meats and non meat proteins, grains. Always sauteed or grilled with oils, vinegar, and different herbs and spices. I just buy whatever looks good and is on sale. Before my diet overhaul, I didn't eat much variety during the…

The homemade strawberry daquiri smoothies are merely an enhancement for my herbal meditation treatment. o:)

I had brisket, mixed grains with onions and bacon, sauteed mushrooms, and a salad of romaine. To hungry to take a picture tonight... I saved 400 calories for booze and dessert.

I had strep last week, so I stayed in bed, grumbling. The boyfriend has a day off tomorrow, so we're going to try to take a walk. I almost cried when I looked out the window today! Ten more pounds by beach weather!

I've had everything except the ketchup on mac and cheese, but my roommate does that. Chicken cooked up with salsa is even better with some Dijon mustard in the mix. I'd eat that on anything. I also used to put mustard on pasta with asiago cheese, then top the whole thing of with an egg. Sometimes I'd even blanch some…

I've been using a couple tablespoons of seasoned rice wine vinegar on almost everything raw. Not the best if you're super strict with your sugar and sodium, but those aren't issues for me. I also make a sauce out if a red bell pepper, a quarter cup white vinegar, 1-3 tablespoons sugar, crushed red pepper, salt, and pepper…

I'm dealing with strep and gastritis simultaneously right now. I fasted for 24 hours from the onset of the gastritis, drinking only water and chamomile tea, then blended a banana and some fresh pineapple, sipped some grape juice, and had a shot of some ultra vitamin cherry smoothie thing. Yesterday, I had a banana, a…

I have a naturally teensy waist and flat stomach. It can't actually do much anymore due to chronic illness, but I'm an avid pedestrian and do my best meditating when I'm walking.