Celiac vs Gluten Free

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Replies

  • mkeihle
    mkeihle Posts: 2 Member
    I agree with the people who have said it is not worth going back on gluten to get the official diagnosis. I got referred to an allergist by my DR who was less than helpful, and said since I didn't get "hives" despite my previous allergy tests, I was probably fine. Obviously I wasn't fine since I was going to a DR to figure out why I was always tired, all my blood work came back showing I was super low on pretty much every nutrient despite eating a healthy diet, and I was always sick to my stomach, along with other symptoms. When she did get the blood test she finally did back she left a voicemail consisting of "yeah, you should avoid gluten" ????? I had already started eating gluten free and felt so much better, so when I found out later (from a different doctor, definitely did not go back to that one!) that I would have to go back on it to get an offical diagnosis, it just isn't worth it. My cousin has it, the more I read about the symptoms I believe my father had it, and I have the symptoms so I just assume I am. Either way, it won't change the fact that I have to eat gluten free for my health.
  • canadjineh
    canadjineh Posts: 5,396 Member
    Celiac disease has a genetic component. What 'they' suggest is that if someone in your immediate family has been diagnosed, everyone related should get tested too. The quicker you find out/go totally GF, the less likely you are to get the nasty life threatening cancers etc that arise from untreated CD.
  • MartiB856
    MartiB856 Posts: 85 Member
    I am gluten free, due to autoimmune disorders. If people ask why I say due to medical conditions.
  • canadjineh
    canadjineh Posts: 5,396 Member
    @MartiB856 many, if not all autoimmune disorders are tied to leaky gut which is often caused by gluten/gliadin proteins in grains. If I was someone newly diagnosed with an autoimmune disease that would be the first thing I'd eliminate. Sure helped all my autoimmune issues!
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