cidp

jessicajauert1

Curious the pain management all of you are on. I went to one a year ago before i was diagnosed and had steroid injection on my lower back. I currently take synthroid (hashimotos), adderall xl 60 mg, xanax as needed,gapapentine i only allow one a day, ivig every 2 weeks. . gabapentine I use to take 300mg×6,topomax 200mg,modinfinil 200x2,xanax 1mgx3, cymbalta (for pain)-i was unable to function my work suffered,and i had little to no energy. Went to pt and acupuncture for pain, and to help with cleanse from all the medication. My life turned around energy was up, pain on lower back comes in waves , and when it does happens i do pt excerises, yoga, heating pad. Just had my first treatment of ivig this year. Neuro dr is going to perform another emg to see if theres been any change

Cheesy567

Hi Jessica I don't have much to contribute to your question, but wanted to acknowledge your post. My autoimmune disorders thankfully aren't terribly painful, because one of them causes
me to stop breathing if I take anything more than Tylenol or NSAIDs! I'm glad you found the PT and acupuncture helpful-- I rely on massage therapy, and also do some PT/stretching exercises for the joint pain.

I'm on SCIG to manage Myasthenia Gravis-- it's like IVIG but I can infuse it into my skin, at home, no IV or nurse needed. It's freed up my schedule a lot! I heard recently it was approved for CIDP, that's how my neuro knew about it. (It isn't approved for MG yet).