Looking for some P.C.O.S friends
SuperMammaLeah
Posts: 93 Member
Hello all my name is Leah and I have been dealing with P.C.O.S. since I was a teenager. I will be 32 this year in October. Anyways I have gone through hell and back with doctors.
Two years ago a doctor decided she wanted to try to aggressively treat my P.C.O.S. she put me on Meformin when I did NOT have an insulin problem, spironolactone, and B-yaz.
Well the Metformin caused me horrible intestinal problems which then flared up my ulcerative colitis that I had no idea that I even had at the time. The spironolactone made me feel constantly dizzy and the B-yaz made me have periods for 33 days straight and 3 days of no period.
When I would bring up these concerns to the doctor about the issues that were going on she would just keep telling me that my body needed to get used to it. Well over 6 months went by and there was no improvement in any of the symptoms and I actually ended up gaining a lot of weight.
Finally I all together just stopped seeing that doctor and stopped taking all of the medications. I started working out and two years later I was down almost 30lbs.
Recently I have started to see a new doctor as no matter what I do I don't seem to lose weight. Doesn't matter if I calorie count or watch carbs or how hard I work out at the gym. Losing weight with P.C.O.S. has been an absolute challenge and while I watch normal folks get the results they want I struggle.
Well the doctor I started seeing she decided to start me off on a birth control called Previfem. The first month I had a 14 day period but I honestly had welcomed it after not having one for about 3 months. This month I seem to be going through the whole birth control pack with no extended periods. Next week will be the test to see if I actually get a normal period which would be refreshing.
Well the doctor also wanted to help me with my weight loss issues so she started me on Phentermine, Topiramate, and Naltrexone.
Well I had a horrible allergic reaction to Naltrexone with in 20 minutes of having half a pill so that got cut out immediately. Around day 15 I started having horrible issues with the Topiramate from issues with not being able to sweat to extreme anemia to headaches and extreme weakness and not being able to taste my food.
On day 25 of being on medications they took me off the Topiramate because I couldn't handle it any more. Now I am just on the phentermine and finally starting to feel better. The doctor told me I have about another week of dealing with withdrawels from the topiramate but other then that I should be able to begin working out.
In the 25 days I was on medications I lost 9lbs. Which is great however the side effects for me personally were awful.
The doctor and I both seem to be on the same page and agree that the birth control I am on and the one medication to help with weight loss is all I should need. In about a weeks time I will be able to start working out again and I am looking for friends that understand my struggles. I am tired of being judged by others who do not understand. I feel like there are some people who just frown at me for even seeking help from a doctor.
Well I need women who understand. I can also provide the same understanding in return. So if you need motivation or would like to help motivate me on my journey please add me. I would deeply appreciate it.
Two years ago a doctor decided she wanted to try to aggressively treat my P.C.O.S. she put me on Meformin when I did NOT have an insulin problem, spironolactone, and B-yaz.
Well the Metformin caused me horrible intestinal problems which then flared up my ulcerative colitis that I had no idea that I even had at the time. The spironolactone made me feel constantly dizzy and the B-yaz made me have periods for 33 days straight and 3 days of no period.
When I would bring up these concerns to the doctor about the issues that were going on she would just keep telling me that my body needed to get used to it. Well over 6 months went by and there was no improvement in any of the symptoms and I actually ended up gaining a lot of weight.
Finally I all together just stopped seeing that doctor and stopped taking all of the medications. I started working out and two years later I was down almost 30lbs.
Recently I have started to see a new doctor as no matter what I do I don't seem to lose weight. Doesn't matter if I calorie count or watch carbs or how hard I work out at the gym. Losing weight with P.C.O.S. has been an absolute challenge and while I watch normal folks get the results they want I struggle.
Well the doctor I started seeing she decided to start me off on a birth control called Previfem. The first month I had a 14 day period but I honestly had welcomed it after not having one for about 3 months. This month I seem to be going through the whole birth control pack with no extended periods. Next week will be the test to see if I actually get a normal period which would be refreshing.
Well the doctor also wanted to help me with my weight loss issues so she started me on Phentermine, Topiramate, and Naltrexone.
Well I had a horrible allergic reaction to Naltrexone with in 20 minutes of having half a pill so that got cut out immediately. Around day 15 I started having horrible issues with the Topiramate from issues with not being able to sweat to extreme anemia to headaches and extreme weakness and not being able to taste my food.
On day 25 of being on medications they took me off the Topiramate because I couldn't handle it any more. Now I am just on the phentermine and finally starting to feel better. The doctor told me I have about another week of dealing with withdrawels from the topiramate but other then that I should be able to begin working out.
In the 25 days I was on medications I lost 9lbs. Which is great however the side effects for me personally were awful.
The doctor and I both seem to be on the same page and agree that the birth control I am on and the one medication to help with weight loss is all I should need. In about a weeks time I will be able to start working out again and I am looking for friends that understand my struggles. I am tired of being judged by others who do not understand. I feel like there are some people who just frown at me for even seeking help from a doctor.
Well I need women who understand. I can also provide the same understanding in return. So if you need motivation or would like to help motivate me on my journey please add me. I would deeply appreciate it.
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Replies
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I too struggle with weight and the insulin resistance. This weekend my sugar jumped to 412 on Sat and 395 on Sun. I have been blessed with two beautiful children, with no medical help. People see me and I get "the look". I am a short chubby chick. My husband is maybe 135. So people see us together and we get the stares. My husband is my rock and helps me not freak out too much when I struggle to keep the weight off. It seems that whenever I drop 20lbs, my thyroid starts acting up and then I break out and get cranky. Then I get discouraged and gain the weight back. After this weekend, I am committed to getting healthy. I cannot live like this.
I will add that I am also a Christian and I pray constantly for God's help. He knows I cannot do this on my own. Those days when I would rather sleep than get up at 6am to work out. He gets me up and gets me going. His strength strengthens me.
I would love to help support you on your journey. We can support each other. People that do not know what PCOS is have no idea just how much we struggle. Even those that have heard of it and know what it is have no clue as to what we go through on a daily basis.0 -
Welcome ladies! Glad to see you posting. Barb, I replied to your other post. Lea, I am really glad you got a doctor that is gonna work with you. Yeah, we here understand needing help. PCOS sucks and people just are ignorant. They just don't understand. Keep us posted on your journey's okay!0
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I am married and I have two children as well. It has been such a difficult road dealing with P.C.O.S. I deal with a very high testosterone issue which I firmly believe has something to do with my lack of emotion on some things sometimes. Since I have started the high estrogen birth control I feel that has changed a lot for me how ever I am still battling other symptoms on a daily basis.0
