Introduction!

carolose46

Hi,
My name is Carolyne from Canada.
Single mom of a beautiful 13 years old boy with cerebellar hypoplasia. he does not talk or walk but pushes his wheelchair. He loves to cuddle but has the adolescent changes bring his temper on each end of the spectrum.
because of severe hypotonia, just a simple cold brings his system low and for exemple he is often out of school because too tired to sit in his wheelchair all day.

I struggle to find some time where I am not exhausted to try to lose all the emotion eating binge weight I have put on in the last 13 years!

I am glad to be with other super moms.
Thanks,
Caro

MrsR0SE

Nice to meet you Caro xx

carolose46

Nice to meet you all! :flowerforyou:

carolose46

Nice to meet you! I'm Melanie. I am the mother of a Special Needs daughter, 18 yrs old. I live in Scottsdale, AZ My husband is currently having to live in Beaufort, SC, because that is the only place he could get a job. I guess services for special needs kids are pretty bad in SC. They are pretty good in Arizona, but she still takes up most of my time, except for when she is at school. Here they can continue to go to school until they turn 23. My daughter is partial trisomy 13. She is deaf/blind, non verbal, mild CP, seizure disorder, and developmentally about 18 months old. Has many, many other problems, but these are some of the major ones.

Most of the time, she is so sick that it takes all of my energy to just care for her. At least that's what I tell myself. I think I just feel overwhelmed by all there is to do and there doesn't ever seem to be a break in it. Right now, she is doing better physically, so I am trying to get my act together and get healthier for her and for myself. The doctor says that I'm not going to be around to care for her if I don't change my eating/exercise habits. Then he said,"Maybe that's the way you want it...." No, that's not the way I want it. It's just one more thing that I have to pile onto my plate!

I think I understand in my own way. My son doesn't walk, talk and he has little muscle tone, he is in diapers and is not able to feed himself alone. He is 5,4 tall at 13 yrs old and already weigths 165 pounds. I am a single mom. He is at home since two weeks because of a bronchatis .
As soon as he gets something, his muscle tone drops and he cannot be in his wheelchair for more than an hour at a time.
Like you I am exhausted most of the time but see life very positively. ( that I don' know how Lol!)
Since every bit of movement counts for calorie burning. I log ex: cooking prep 15 min. when I transfert him it is like lifting 160 pounds each time so I log this as lifting and I follow the 1300calories (for me) plus eating my exercice weight.

I encourage you to keep going to your own pace. Each grams lost is an even bigger victory because it is so much more difficult since everyday is also a mental challenge as well.
I am sending you lot's of love.
Take care,

Carolyne (french from canada so excuse my writing) :flowerforyou:

mmommymusings

I have five kids ages 18,10,7,6 and 18 months. The first two are girls and the rest are boys. The youngest two have special needs. Our 6 year old has sensory processing disorder, ADHD, developmental delays and Artrial Septal Defect. The baby also has ASD but he also has Spinal Muscular Atrophy which is a rare form of Muscular Dystrophy (http://en.wikipedia.org/wiki/Spinal_muscular_atrophy)
I am a SAHM who likes to collect antiques books, read, travel and spend time with my family.
I weigh 180 and would like to get to 110.

marinatan1982

i'm a mom of a 20 months old boy. He was a micro-preemie, plenty surgeries, lots of time on vent. He is g-tube dependent and might have a mild cp and dev delays... takes a lot of time to go to all the therapies and med appointments. The first year was particularly hard.

Hopefully, I can find some time to get myself in a better shape.

Weeblessings

I'm new to the group. My name is Carlena. I'm a SAHM of 4 kids( 15.5/13.5/6.5 and 3), who have a varity of needs. On top of many food allergies (gluten, dairy, egg, peanut, and we follow the feingold diet), my oldest and only daughter has Asperger's, my oldest son has 2 TBI's and a birth injury to the brain, we suspect the 3rd child of having ADHD like me, and our youngest we also suspect is on the Autism spectrum. We are currently on waiting lists to have the younger two evauated. My husband works for one of the Railroad companies and therefore is gone 75% of the time (only home on weekends)

It's nice to find a group of parents trying to get healthy and lose weight all while trying to care for the kids.

ashleyneumueller

Hi everyone my name is Ashley! I am 24 years old and a mother to a very special little boy born with a very rare genetic growth disorder, Russel Silver Syndrome. He is the bet thing that has ever happened to me but with everything we face with him it it hard to find time for myself. I can't live this way any longer and need to get this weight off! I hope I can do this so I can be a better mom for him!

Trishrunnerhi

Hi Ashley,

I don't know how active this group is, but I'd love to "chat". Sometimes this can be a lonely road, so I welcome the camaraderie.

I have 4 kids and my youngest, who just turned 13, was born with a single ventricle heart defect. He only has his right ventricle, the smaller of the two. He's had 4 open heart surgeries and barely survived 3 of them. It's been a rough road. I can only pray that the worst of it is behind us.

But because of all the complications and months and months on a respirator... I don't think there's any medical procedure or device my son hasn't encountered along the way-- he's left with a lot of issues. He has global learning disabilities, sensory issues, cognitive delays, bilateral hearing loss, paralyzed vocal cord, he's thankfully off the G tube that he had for 5 years, and I could go on and on and on.

So try to lose weight with that in the background? Sometimes I can, sometimes I can't. I lost 60 lbs 4 years ago, and then this last year had a string of deaths and tragedies that got the best of me, and I gained back 30 of it.

so I'm back to keep trying.

I've heard of Russel Silver Synrome-- I think some of the people on the Gtube yahoo group I was on had kids with that diagnosis, but I don't know a lot about it. It's neurologic, isn't it?

Is anyone else still here? I'd love to meet other moms with special kiddos.

Trish