Living with Crohn's
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Kougra
Posts: 358 Member
I was diagnosed over 15 years ago and let me tell you, It has been a crazy journey. It hasn't been easy and I know that it will always be difficult. But I am taking my life back from this illness and do what I can to help in the fight to find a cure. I hope others will join me in fighting these devastating illnesses.
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I've been living with Crohns since 2008 but am sure I've not seen the worst of it yet. Somehow managed to avoid getting too ill or having any operations. I suppose its only a matter of time.
My philsophy is to now get myself into a best shape as I can to help my body and mind deal with Crohns when it flares up.
Funny thing is, the only thing I don't suffer from with Crohns is the "weight loss". Ah well.
Happy for any Crohnsy friend adds - just make sure you include a mesage.
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The best thing you can do is stay stay healthy. My weight is like a crazy roller coaster. Also make sure you practice stress management. Meditation is a wonderful tool.
Glad to hear you haven't had severe symptoms or surgeries. Glad to have you here!! :flowerforyou:0 -
Hi there. My name is Pam and I was diagnosed with Crohn's back in 2005. I have not had any surgeries but have been on all sorts of medications and am presently on Remicade. I have periods of time where I feel like I am doing well ... but other times really quite honestly feel like hell. I have no energy and all I want to do is sleep but can't stay away from the bathroom long enough to get rested.
I have been a heavier set person for as long as I can remember ... and every time I saw the gastro who diagnosed me he would tell me I needed to loose weight ... when I myself could not for the life of me figure out how I was to do that when I as my husband says it "**** like a goose" and absorb none of my nutrition. Awhile ago I switched gastroenterologists and she sent me to a nutiritionist. That nurtrionist told me that I needed to stop worrying about losing weight and worry about being healthy. She put me on a ton of vitamins etc and since then I have started to loose weight. There are some things I know are triggers for me .... and then other times it feels like anything I put in my mouth is a trigger.
I have never been part of a support group for my Crohns but I am frustrated and sick and tired of being sick and tired. Looking forward to hearing from some of you.
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Hey everyone. I'm newly diagnosed (April 1st this year) and its been awful. 3 hospitalizations before finally having surgery last week. They removed almost 3 feet of small intestine, and found 2 abscesses (one was leaking) and a fisture. It's been a long few months, but now I am finally able to focus on being as healthy as I can through diet and eventually exercise. I still have a section with active Crohns, so I'm not out of trouble yet. Just hoping to hold things off for as long as possible.0
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My bf has Crohn's and I never knew how devastating this disease was until I dated him. I'm here for you!0
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Hey everyone,
I was diagnosed with Crohns in 2009 after waking up to severe stomach pain which lasted about 3mths and 50lbs weight loss. I found out I had a fistula in 2010 and had a bowel resectioning on October of 2011. Im currently taking Remcaide every 8wks, Lialda, and a host of other vitamins. I have flare-ups every now and then but not as severe as they were before the surgery. I have many days a month where I just cant get out of the bed. Whether Im super tired or in pain. I refuse to let my doctor place me back on steroids so Ive been toughing out the pain. Im mostly afraid of gaining more weight back. She told me last week I need to drop lbs but not sure how to do so when the meds makes me gain more lbs. Very frustrasted and glad there is a group I can chat with where others are having the same issues.
Are there any suggestions on what you ladies did to lose the weight?? I have changed my eating although I dont allows follow through with it. UUugh Help0
