We are pleased to announce that as of March 4, 2025, an updated Rich Text Editor has been introduced in the MyFitnessPal Community. To learn more about the changes, please click here. We look forward to sharing this new feature with you!
A little about Me:)
zenzoes
Posts: 187
Hi my name is Zen and I have MS. A lot of you are my friends and know a little about me already. Those who are not yet, lets Be! Feel free to add me as a friend I would love the support, friendship and understanding that comes with either having MS or knowing someone who does.
My Story
I am 33, diagnosed at 27. I have primary Progressive MS, but was first dainosised with relapsing remitting. The first two years I was on two disease modifiers but both Avonex and Compaxone really brought my quality of life down. The flu like side effects were a horrible experience for me, even after a time on each drug. I do though have a low tolerance for many types of medications and side effects usually seem to effect me. Once I was dainosied with Primary Progressive, I had already been off any sort of disease modifying therapy for a couple years.
I was dianosied after a episode of optic neuritis which came on suddenly at work while driving to see a patient. I was feeling very woozy and just plain exhausted that morning and pulled over and put my head between my knees. When I pulled my head back up I had total vision loss in my one eye. Very frightening.
ER, Lumbar puncture, MRI, later I was discharged from the ER and sent to a neurologist who after a VER, history, and more MRI's sat down with me to discuss the diagnosis of MS. I was diagnosed within three months. I also have disease called CMT which is categorized in the muscular dystrophys which I have had since I was young.
It's strange to say to people, but the diagnosis of MS was a kind of relief to me. I had been having what I now know were symptoms for almost two years prior. My vertigo was diagnosed on it's own way back in 1995. Other symptoms were just not fitting in the CMT category.
I was upset, mad for the first years. Really mad. But a lot was going on also in my life. I had just gotten divorced after 7 years just months prior to my diagnosis, I was finishing nursing school, while working for a local Hospice, and just trying to get my life re-organized. I realize now how strong I was/am for withstanding it all while having my body yank the floor out from under me.
It took MS and myself awhile to come to terms, and a little while longer to be at peace with it. I am now at peace with myself. All the changes I had to overcome, the inconvenient timing, (ha! timing and convenience are not my concerns any longer) are no longer eating at my happiness.
I am happy. I am strong. I have a fulfilling life which I am constantly working on and adding to. I also am weak some days. But I've learned so much with help of the many others with MS. I constantly learn. The greatest thing I've accomplished is becoming my own informed, strong advocate. I control my life. I can't say I had this much control before.
A little about me.
My Story
I am 33, diagnosed at 27. I have primary Progressive MS, but was first dainosised with relapsing remitting. The first two years I was on two disease modifiers but both Avonex and Compaxone really brought my quality of life down. The flu like side effects were a horrible experience for me, even after a time on each drug. I do though have a low tolerance for many types of medications and side effects usually seem to effect me. Once I was dainosied with Primary Progressive, I had already been off any sort of disease modifying therapy for a couple years.
I was dianosied after a episode of optic neuritis which came on suddenly at work while driving to see a patient. I was feeling very woozy and just plain exhausted that morning and pulled over and put my head between my knees. When I pulled my head back up I had total vision loss in my one eye. Very frightening.
ER, Lumbar puncture, MRI, later I was discharged from the ER and sent to a neurologist who after a VER, history, and more MRI's sat down with me to discuss the diagnosis of MS. I was diagnosed within three months. I also have disease called CMT which is categorized in the muscular dystrophys which I have had since I was young.
It's strange to say to people, but the diagnosis of MS was a kind of relief to me. I had been having what I now know were symptoms for almost two years prior. My vertigo was diagnosed on it's own way back in 1995. Other symptoms were just not fitting in the CMT category.
I was upset, mad for the first years. Really mad. But a lot was going on also in my life. I had just gotten divorced after 7 years just months prior to my diagnosis, I was finishing nursing school, while working for a local Hospice, and just trying to get my life re-organized. I realize now how strong I was/am for withstanding it all while having my body yank the floor out from under me.
It took MS and myself awhile to come to terms, and a little while longer to be at peace with it. I am now at peace with myself. All the changes I had to overcome, the inconvenient timing, (ha! timing and convenience are not my concerns any longer) are no longer eating at my happiness.
I am happy. I am strong. I have a fulfilling life which I am constantly working on and adding to. I also am weak some days. But I've learned so much with help of the many others with MS. I constantly learn. The greatest thing I've accomplished is becoming my own informed, strong advocate. I control my life. I can't say I had this much control before.
A little about me.
0
Replies
-
Thanks for posting this. You are a very brave individual and I wish you all that is good. I always say that the more you can accept what life hand you the less power it has over you. We have MS - it does not have us!
:flowerforyou:0
This discussion has been closed.