Introducing myself to Dysautonomia Group - gazz777

gazz777

Hi all,

I did not know there was such a word, so out of curiosity I had to search what it meant.

According to the Wikipedia article I have a mild form.

When REALLY stressed out I collapsed once last year. Usual stressors want me to sleep or I feel pain in various joints.

I have loose joints (Hypermobility Syndrome) which can loosely be associated with other connective tissue disorders.

Feel free to friend me if this sounds similar to yourself.

Thanks,

Gazz

pickledginger

Hello, everybody.

I have postural orthostatic tachycardia syndrome (POTS), and it is eating my life. I am eating low-carb, high-salt, and wearing support socks, to try to fight back.

I also have hypermobile joints and thin / see-through / velvety skin, like a lot of my family. We haven't been diagnosed with any collagen disorder, but that may just be because we avoid rheumatologists. ;-)

heatherrottenberg

Wondering if anyone is still active in this group. I was originally diagnosed with POTS, but more recently docs have been leaning toward generalized dysautonomia. As many of us do, I've got a trail of other dxs to go with that. Main concern here is weight management despite severe exercise intolerance.

pitzerja

Yikes, 7 years since the last post. Bummer it's not more active. I have neurocardiogenic syncope (NCS) and was diagnosed in 2002. I am cardio-exercise intolerant (adreneline), can't stand for more than 4 minutes, and can't bend over without having an episode. But, I do manage!