Day at the spa

rob_v
rob_v Posts: 270 Member
edited November 9 in Social Groups
Well that's what I call it! At the hospital right now getting my monthly Tysabri infusion. Worked out this morning which was good, b/c when I get home I usually crash for the rest of he day. Just curious, Anyone else on tysabri?

Replies

  • Benji49
    Benji49 Posts: 419 Member
    Nope, but one injection a month sure sounds better than daily!
  • rob_v
    rob_v Posts: 270 Member
    OMG - you have no idea. I was on 1 every other day w/ BetaSeron. This is SOOOOOOOOOOO much better. And the side effects are basically nill which I absolutely love!
  • Yellerie
    Yellerie Posts: 221 Member
    I have been on Tysabri since July of 2009 & I love it! Depite the fact I was terrified to try it the only side effect I get is a headache the day of the infusion(nothing so bad motrin can't handle) but after being on Copaxone, Rebif & Aveonex this is like heaven. I was also thankful that they dicovered the antibody test so that I can continue my treatment & for the last 2 & 1/2 yrs no new lesions yay!
  • KerrieB40
    KerrieB40 Posts: 13
    How long does it take for the injection?
  • rob_v
    rob_v Posts: 270 Member
    For me - the entire process takes 3hrs.

    1 hr is check in and wait for the meds to arrive (nurses orders the meds, normally arrives in about 30-40 mins)
    1 hr for the actual infusion
    1 hr after the infusion for observation.

    I just bring my XOOM and watch some movies.

    I feel better than I have felt in years.
  • rob_v
    rob_v Posts: 270 Member
    I have been on Tysabri since July of 2009 & I love it! Depite the fact I was terrified to try it the only side effect I get is a headache the day of the infusion(nothing so bad motrin can't handle) but after being on Copaxone, Rebif & Aveonex this is like heaven. I was also thankful that they dicovered the antibody test so that I can continue my treatment & for the last 2 & 1/2 yrs no new lesions yay!

    That is great news! The only downside is that it kills the rest of the day for me. For somereason my body is just exhausted when I get home. I usually lay down in bed and don't wake back up until morning. But I wake up with no issues at all and feel great from a 15 hr sleep!
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