Info on new approach to MS therapy I am trying.

Hootsmamma

:bigsmile: Whirlwind ride on the MS bus. 1st – got the MRI results back and no new lesions. Whoohoo, yeah, yeehaw, happy happy! Okay you get the picture. J Neurologist said that the continued leg issues could be secondary progressive stage MS, we don’t think that is it, nor does the toxicology specialist. He believes that the loss in weight over the past year has caused an increase in toxins and free radicals to be released into my system thereby exacerbating all the symptoms.

Okay the environmental and toxicology stuff from Dr. Gray. There were a lot of tests, but the one that sort of brings it all into focus is one part of the blood test known as HTGF–B1 (Human Transforming Growth Factor – Beta 1) Levels of 344 –2382 pg/ml are considered normal, my number was 27,110 which is a “bit” on the high side to say the least. When this number is way high it means that the body is under great stress from foreign interlopers which is a fancy word for unwanted guests/toxins in the body. Dr. Gray says that the body gets overwhelmed by constant bombardment and it causes the immune system to respond in weird ways including turning on itself as in the case of MS. He believes that by re-balancing the body (which could take up to three years) you can relieve the symptoms of MS and reduce the damage from flare-ups.

Cleaning up/Re-balancing the body consists of the following: staying on all Rx as prescribed until your doctor tells you otherwise.

Rx – needed for re-rebalancing, Cholestyramine (for Oral Suspension USP)All supplements are taken twice a day once in the am, then again in the pm.

1. Drinking a Bentonite clay mixture twice a day. The mixture is 2 tsp. clay & 1 scoop Cholestyramine with 1 liter water and some type of flavoring. You start drinking it two hours after your morning meds and must stop two hours before your evening meds, then start up again two hours after evening meds until all the mixture is done. !!The 2hours windows are Critical!!!

2. Take 4 250mg activated charcoal tablets twice day.

3. Take one 100-150mg CoQ10 twice a day.

4. Take a multi-vitamin twice a day. According to Dr. Gray Kirkland is best made vitamin.

5. Calcium citrate 400-600mg twice a day.

6. Carlson’s Fish oil 2tsp twice a day. – According to Dr. Gray the best.

7. Alpha-Lipoic-acid 250mg twice day.

8. Guaifenesin 400mg take two by mouth every 12 hours.

9. Twice weekly IV infusion of Glutathione which is done quickly in outpatient took about 20mins for first one. Some flushing (like niacin).

http://en.wikipedia.org/wiki/Glutathione

http://www.medicinenet.com/script/main/art.asparticlekey=50746

http://ivtherapycenter.com/IVGlutathione.cfm

http://en.wikipedia.org/wiki/Coenzyme_Q10

http://en.wikipedia.org/wiki/Lipoic_acidhttp://en.wikipedia.org/wiki/Fish_oil

http://www.healingdaily.com/detoxification-diet/bentonite-clay.htm

ruststar

Hmmm...when my chiropractor was trying to sell me on taking Glutathione (conveniently available for sale in his office!) he couldn't produce any evidence that it had ever been tested and proven to be beneficial in MS patients. I don't know about all the other stuff, but that was the one that jumped out at me. Do you feel better?

Hootsmamma

Actually, I am feeling better. I had my first infusion on Thursday, and my legs started to feel better yesterday (Friday), and today I felt good enough to go outside and groom 2 of our 3 horses.
I had a really bad Flare in Jan, and since then, my feet have been numb and my legs were so heavy it was difficult to walk. I had to go back to using a cane--which I haven't used in awhile.
I have my next infusion on Monday.
Do I think it's due to the glutathione? Honestly, I don't know. Realistically I think it's too soon to tell. Could it be my mind playing the "placebo" effect? Possible. It could also be due to the fact that I have been down for so long--that it was just timing and my body was going to come out of it anyway. I don't know. What I do know is this...I'm just very happy to be feeling better and walking better again.
I made a commitment to God, myself and my husband to do whatever I could to keep my body strong and healthy for as long as I can. Conventional MS treatments weren't working for me. I am willing to try just about anything as long as it's not illeagal, or something that could harm me.
Everything Dr.Gray has me on is pretty natural and won't cause me any damage. He doesn't sell any of the supplements. Instead he wrote me Rx's for everything and advised me to look on line for the best pricing on several of the items. One item (the cholestyramine) I definitely had to fill at the pharmacy, and the IV's I am having done as an outpatient at our local hospital. All the rest of the items I found on line. I figure it's worth trying to see how I do. MS is so very different for each of us. What works for one, may or may not work for another. I was just sick and tired of pills and more pills that 1) didin't work and 2) made me dizzy and sleepy. I figure that has got to be a better way , and my husband and I were determined to find it. I am hoping this is it.

rob_v

It is great to hear the you are feeling better. Keep us posted.

Tari150

Did your toxicologist explain how weight loss could cause the release of toxins? Are they thinking the toxins are more food related or environmental or both?

Hootsmamma

He's pretty sure it was/is enviromental. Esp because for the past year my husband and I have cut out gluten and 95% of all processsd foods.

lorib75

So interesting. I am not in an area where I know very many MS patients. I work with a woman whose husband has MS but like you said it is so different for each person. I love reading all of the posts and messge board in this group. I am convinced I've had MS longer than I've been diagnosed. I am also pretty sure it started when I had mono in '98.
Thanks for giving us new info to look up and try for ourselves. It is much appreciated!