PKU Friends

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I wish

LilacDreamer
LilacDreamer Posts: 1,364 Member
in Social Groups
I wish this group wasn't specifically aimed at those with PKU...there are other metabolic disorders such as MSUD which should not be excluded. PKU and MSUD are supposedly "allied" disorders, but MSUD is always overlooked.

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  • geminigirl1979
    geminigirl1979 Posts: 38 Member
    Sorry Dreamer. I didn't mean to exclude anyone when I created the group. I thought by including "friends" in the group name it might appeal to those with allied disorders. And though I only check in here every once in awhile (I wish they would notify me when a new post occurs), I'm happy to support you any way I can. You are more than welcome to post any questions or concerns you may have.

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