Sorry for being rude ;)

squeakyfish

I guess I should have introduced myself before posting here....oops. I've been diagnosed with RRMS since 2001. It was found accidentally. I went in with no MS symptoms, no exacerbations, just headaches, which were actually the result of a sleep issue. I walked out with MS. I had a brain full of silent lesions. Over the years, I've been on Avonex and Rebif and did amazingly well on them. They worked much better than they normally do, in that I didn't have any new lesions, any symptoms or exacerbations. I quit Rebif in 2009 and got my first exacerbation 5 months later (optic neuritis). I didn't have my next exacerbation until 2012 (some hand numbness and tingling). I have yet to restart any meds. I have no problem injecting, but the side effects were unrelenting for me. 6 out of 7 days were bad. I'm heading to the neuro in May and I'm sure we'll be talking about medication.

Personally: I'm married to the military, so we move...a lot. I have a daughter who delights me every day, a mom with very severe SPMS, and a brother with RRMS. I am extremely fortunate in that my MS doesn't limit me in any way at this point. My only symptom is a slight residual tingling in a few fingers. My biggest problem with MS is the concrete block of fear that hangs over my head and bugs me from time to time. I look at how well my mom was for so many years and how poorly she is now. From time to time, I still worry that it will happen to me. I'm here to try to relearn how to have a good relationship with food. I'm not "dieting" per se, but tracking everything has really helped me to make some positive changes in my diet and how I think about food. So far it seems to be working. Nice to "meet" you all.

Benji49

Hi, it sounds like you have a fairly good handle on how MS works. The "block of fear" hangs over all of us. The trick is to just keep going and deal with things as they happen. Optic Neuritis was my wakeup call, MS dx came right behind.

There are a lot of new meds out there since 2009. Maybe one of the oral ones will work to help slow down the progression for you and not have side effects. I've been putting a lot of thought into them myself, currently on Copaxone after failing on Rebif (side effects). Copaxone still seems to be working but not as well as before and having read a lot of comments from people on here and other sites I'm not as leary of the oral drugs as I was. I would think they would be easier for you than the injections moving around all the time.

I'm not dieting either - just trying to live my life a little healthier. Lost the first 50 pounds and then started to slide so I reset my counter to zero. It's rather frustrating to have it stay there though :laugh: Apparently I forgot to mention to myself that that was my motivation to get back to it.