Anyone else out there HYPERthyroid?
1LRoy
Posts: 95 Member
I see so many posts in this group from people who are hypothyroid. I think that more people are hypo than hyper just in general. Is there anyone else out here who's HYPERthyroid like I am? I'd like to make a couple more friends who can understand the particular dieting challenges that this end of the spectrum creates.
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I am
(and I'm very proud to have you on my friends list :flowerforyou: )
If there is anyone else out there like us please feel free to add me too, I'd love to have more people on my friends who understand so we can all help and support each other0 -
I am
(and I'm very proud to have you on my friends list :flowerforyou: )
If there is anyone else out there like us please feel free to add me too, I'd love to have more people on my friends who understand so we can all help and support each other
Aw, thanks! 0 -
I'm in a tricky situation where no one quite matches me (I'm hypothyroid as a rule because I had a complete thyroidectomy, but have suffered from "hyper" symptoms for the past year or so because of overmedication).
I'm interested in what "dietary" things you've tackled. I've had every hyper symptom (including constant bowel movements!) but no weight loss, and in fact, weight gain (which might be adrenal).0 -
I have Graves, which is hyper, but I've had RAI so now it's all about maintaining levels. Add me if you'd like!0
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I think my biggest frustration is the weight gain I experienced after they started treating me. I'd never had to diet before. I still haven't lost all the weight, and I keep wanting to lower my medication to help but then I go back to being hyperthyroid.
What's been the biggest frustration for you?0 -
I'm in a tricky situation where no one quite matches me (I'm hypothyroid as a rule because I had a complete thyroidectomy, but have suffered from "hyper" symptoms for the past year or so because of overmedication).
I'm interested in what "dietary" things you've tackled. I've had every hyper symptom (including constant bowel movements!) but no weight loss, and in fact, weight gain (which might be adrenal).
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.0 -
I also have hyperthyroid (because of Graves Disease) -- was diagnosed a few months ago in February 2012 after being sick since September 2011.0
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I'm in a tricky situation where no one quite matches me (I'm hypothyroid as a rule because I had a complete thyroidectomy, but have suffered from "hyper" symptoms for the past year or so because of overmedication).
I'm interested in what "dietary" things you've tackled. I've had every hyper symptom (including constant bowel movements!) but no weight loss, and in fact, weight gain (which might be adrenal).
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!0 -
I also have Graves' disease/hyperthyroidism...I was diagnosed in August 2011 and my thyroid levels have been okay since January...please add me if you'd like!0
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I was hyper until I had 1/2 of my thyroid removed (could not take radio active iodine and am very glad had surgery instead). I could NEVER loose weight. I was hungry ALL of the time and I gained a lot of weight. I was tired and irritable. I think for some it is very difficult to loose when you are hyper or hypo, but for different reasons.0
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hyper.. Graves been in remission for over 5 years.. but not feeling well lately.. they are rechecking levels this week..
did not have it removed or radiated. so still in tact.
i am having a heck of a time losing weight.. which i always found annoying since one of the side effects of being hyper is to lose weight.. i never got that one!!0 -
As someone that wasn't technically hyper, but had "hyper" symptoms for nearly two years from medication (I had a complete thyroidectomy nearly a decade ago), I also never got the "lose weight symptom." I literally got every crazy, weird hyper symptom BUT the weight loss, which many doctors joked about with me.
I'm starting to feel that losing weight isn't really as common a hyper symptom as it appears--I feel like thyroid problem = weight problem.0 -
I am also hyperthyroid and Graves disease. I was checked 6 weeks ago when I started this program and my TSH was 0.015, I got re-checked this past week and it was exactly the same even though my dose of Levothyroxine was decreased. I just decreased the dosage again. I am really frustrated with not losing my baby weight. Over the last 7 weeks I have lost 3 pounds. I am working out 6 days a week for 45-60 minutes at a time. I am watching my calorie intake which is about 1700 per day. I recently decreased it to 1500 per day because I am so frustrated over the numbers. My genereal practitioner said my weight has nothing to do with my thyroid, I beg to differ.0
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I am also hyperthyroid and Graves disease. I was checked 6 weeks ago when I started this program and my TSH was 0.015, I got re-checked this past week and it was exactly the same even though my dose of Levothyroxine was decreased. I just decreased the dosage again. I am really frustrated with not losing my baby weight. Over the last 7 weeks I have lost 3 pounds. I am working out 6 days a week for 45-60 minutes at a time. I am watching my calorie intake which is about 1700 per day. I recently decreased it to 1500 per day because I am so frustrated over the numbers. My genereal practitioner said my weight has nothing to do with my thyroid, I beg to differ.
In regards to your issue, I'd def. try and go to an endocronologist. There is no way a GP/Internist is equipped to help someone with real thyroid issues (I can't believe people stay at GPs for years once they're diagnosed!). Plus, something seems up if your TSH is that low and still isn't budging--hyperthyroid generally recorrects much faster, which means your dose isn't being changed enough, your medication needs to be changed, or perhaps radioactive iodine/thyroidectomy could be in order.
For your weight issues, though--I looked at your food diary, and it looks like you eat quite a bit of processed foods, and your carbs seem very high. Even though your exercising and limiting your calories, you might have to limit THOSE things to see any gains (thyroid issues and carbs just don't get along).0 -
Would love to join this group. 54 years old and had a total thyroidectomy due to goiter and hyperthyrodism. I suffer quite a lot with overmediction and Endo having to constantly adjust my medications. I'm currently in hyper mode with no weight loss and currently started to gain back weight. I'm on 1200 calories and I exercise about 60-90 minutes a day. Last year I lost 30 lbs without knowing it but then gained it all back within 2 months with just regular eating. I would appreciate any advice or help anyone could provide. Currently, I am a walker and cyclist. Blood sugar is in the borderline area so I'm cutting back on carbs.0
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I've finally had mine confirmed as Graves last month. I had my check up yesterday and Dr said she is very happy for me that I have maintained my weight since being on meds. I think its just plain frustrating though...I strength train 3 times a week and stay around 1700 calories a day. I've basically lost about a pound since the end of April.
But I just have to keep remembering that as long as I'm not gaining any then I'm on the right track. Makes me wonder how much I could have gained though if I stayed eating the amount I was before and without the exercise....0 -
I'm HYPER and 4 weeks post a SECOND RAI treatment. Seems I have a thyroid that likes to stay hyper.
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I was diagnosed with hypothyroidism in 2007 and was on Synthroid to treat that and was able to get off the meds in 2010. Well during my physical in 2011 my doctor noticed my levels had increased so she referred me to an endocrinologist and through them i had the thryoid scan done and yup i went from being hypo to hyper. I am currently taking methamizole and it has been a rough journey for me, I gained 16 lbs during the first 2 weeks of taking it, my doctor lowered my dosage and it has been under control and since then I have lost 37 lbs, but that was a hard 37 lbs to lose. This has definitely been a struggle, but I will not let it defeat me. Please friend me!0
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I've also got Graves, also on methimizole. After starting on it, I promptly gained 10 lbs and it has been a struggle since then. I'm currently 5 down (got up to 160, trying to get back to 150; I am 5'9'' and 42). Other than the weight gain, the methimizole has been fine. I don't really want to do the radioactive iodine if I can help it. I guess I am hoping for remission, or hoping my endo will let me stay on the methimizole. Happy to be friends with any other Graves sufferers -- but note that in friend request please!0
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My last blood test showed my TSH was .004, so I guess I get to join the Hyper club!
I've had thyroid cancer multiple times, and the docs try to keep me at a "therapeutic" dose of replacement thyroid hormones. Basically, the glut of excess hormones that causes hyperthyroidism keeps the TSH levels down, which works as a suppression system for any lingering cancer cells. When I can go for a full five years with clean annual cancer scans, the docs will finally let me
The ten years of hyperthyroidism has taken a toll on my body. It's damaged my heart and central nervous system, and made it very difficult to lose weight since my blood sugar bottoms out super-fast if I don't constantly have calories coming in. It's ironic that the excess weight was caused by severe HYPOthyroidism, brought on by the many cumulative months of cancer treatment.
I'd be tickled to connect with anyone out there who shares my experiences. I'm new here and would be appreciative of friendship and support. 0 -
So now that we all have said yes we are hyper, what sort of health issues are you experiencing?? Since being diagnosed in March of 2010, meaning I was probably hyper since the previous August, I have developed an inverted T-wave. Drs started being concerned until they realized it had been the same for 2 years and finally accept the thyroid connection. My weight has been yo-yo-ing up and down from a high of 195 to a low of 135ish and back up again. It's slowly going down again,. thanks to tracking calories. I take atenolol to help keep my heart from beating out of my chest and I'm consistently stable with it so I finally got the okay do cardio!! I'm up to 25 minutes on a treadmill at a fairly moderate pace for me with bad ankles. and I can take walks now and not feel like I'm having a heart attack!
As I wait . again . . to see if RAi take this time I'm doing some yoga for balance, and breathing, free weights and circuit at. the gym as well. Dr said I could exercise and I'm taking to it like a fish to water. LOL
How about everyone else?0 -
I used to be hyperthyroid, then in 2010 had radioactive therapy to partially kill my thyroid ... and at the moment it's in the realms or 'normality'.
This option was taken becuase i'd developed THYROTOXIC MYOPATHY (Thyrotoxic myopathy is a neuromuscular disorder that may accompany hyperthyroidism (Graves' disease, caused by overproduction of the thyroid hormone thyroxine). Symptoms may include muscle weakness, myalgias (muscle tenderness), wasting of the pelvic girdle and shoulder muscles, fatigue, and/or heat intolerance. Thyroid myopathy may be associated with rhabdomyolysis (acute muscle breakdown), damage to the muscles that control eye movement, and temporary, but severe, attacks of muscle weakness that are associated with low blood potassium levels (known as periodic paralysis). )
... well worth a google for hyperactive thyroid sufferers that are gaining weight, having bowel/digestive problems or sore/aching muscles etc0 -
I have had graves,now I'm hypo due to thyroidectomy I'm on the low end with labs...so they tend to keep me near hyper...end I just want to get to feeling my best and get off the weight,hoping it's possible to loose 45 lbs!0
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I guess it's fair to say I have lived with both hyper/hypo they are both hard sometimes...I had more energy when I had graves but I really wish I still had my graves and was on PTU....because the radio iodine was a nightmare for me,living without a thyroid( sigh)I guess I'm glad it's something I can live with, but it's a frustrating condition at times.0
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I am Hyper. you can add me. 0
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I was diagnosed with hyperthyroid last November after becoming very ill and loosing lots of weight very quickly. Started drug based treatment and had a couple of months when I started to feel better and could eat just about anything I wanted and stayed same weight but after that (Once I had gotten into bad habits!) I was overmedicated and became hypo, thus piling on about 30lb. Tests say my block and replace regime is working and my throid levels are normal but no sign of excess weight coming off so time to join myfitnesspal and see if I can get back to my normal weight. Wish me luck! How are you doing? Is there anyone else out there on block and relace regime and if so does dieting work for you?0
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I was just diagnosed with Hyperthyroid after feeling like I was loosing my mind - my body has been betraying me for the last few months but more so in the last few weeks. I went to my doctor crying because I thought I was entering early menopause or had blood pressure problems or worse. I hadn't been sleeping because I wake up ROASTING at night and am jittery all day. My heart rate has been over 100 resting for quite a while. My wonderful doctor prescribed an extended release drug for anxiety that has helped me to sleep the last week and a half, and after getting called back by my doctor after my blood work on Tuesday (which has NEVER happened in my life time!) I was very worried, but suspected that it might be something with my thyroid. He has put me on Beta Blockers right now to reduce the jitters and lower my heart rate, and I will soon be seeing a specialist endocrinologist. The Beta Blockers seem to be helping quite a lot, even after only one day. I am really hoping to get on a good treatment plan that isn't too invasive, my GP suggested that I might need surgery to reduce my enlarged thyroid. It's terrifying! I've always used more natural routes for my health, and it kills me to be taking drugs, but if it makes me feel better, I have to give it a try. I can't continue with the way I've been feeling or I will surely lose my mind! I'm sad to see that Thyroid issues are becoming more prevelant, but hopefully sharing will help all of us.0
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I was hyperthyroid on and off for 20 years. Just recently had a total thyroidectomy as anti-thyroid meds were no longer working; plus had a cancerous nodule.
For all those with hyperthyroid please check out ALL of your options before agreeing to radioactive iodine (RAI) treatment! It's the rare person who doesn't regret getting RAI, and you DO have other options (like taking anti-thyroid meds, or getting a thyroidectomy).
Some people like the weight loss that comes (for some people) with hyperthyroid. Please remember that this is largely due to both muscle and bone mass loss. Your heart is a muscle, so you can end up higher risk for cardiovascular disease, and also for early onset osteoporosis. It is NOT healthy weight loss!!
Dietary challenges: for uncontrolled hyperthyroid my challenge was to stop eating all the sugar....I was so hyper that's all I could eat, just to keep functioning. I gained about 20 lbs in 4 months because of it; way more than I ever gained while being hypo after my thyroidectomy.0 -
I was just diagnosed with Hyperthyroid after feeling like I was loosing my mind - my body has been betraying me for the last few months but more so in the last few weeks. I went to my doctor crying because I thought I was entering early menopause or had blood pressure problems or worse. I hadn't been sleeping because I wake up ROASTING at night and am jittery all day. My heart rate has been over 100 resting for quite a while. My wonderful doctor prescribed an extended release drug for anxiety that has helped me to sleep the last week and a half, and after getting called back by my doctor after my blood work on Tuesday (which has NEVER happened in my life time!) I was very worried, but suspected that it might be something with my thyroid. He has put me on Beta Blockers right now to reduce the jitters and lower my heart rate, and I will soon be seeing a specialist endocrinologist. The Beta Blockers seem to be helping quite a lot, even after only one day. I am really hoping to get on a good treatment plan that isn't too invasive, my GP suggested that I might need surgery to reduce my enlarged thyroid. It's terrifying! I've always used more natural routes for my health, and it kills me to be taking drugs, but if it makes me feel better, I have to give it a try. I can't continue with the way I've been feeling or I will surely lose my mind! I'm sad to see that Thyroid issues are becoming more prevelant, but hopefully sharing will help all of us.
I was in your exact position about a year and a half ago. My anxiety level was so high that I would fly out of my seat at the sound of a door closing, my heart rate was 124 resting, and I couldn't stop shaking. Just some things for you to expect. The beta blockers work nicely to bring down the side effects of hyperthyroid but do not treat the thyroid. Your endo will most likely order a thyroid scan and suggest options such as surgery, radioiodine or medication. I was very scared by the whole process because I had a newborn to worry about. Consider your option carefully and do your best to be well informed. Each method of treatment has its benefits and its drawbacks. Talk to folks that have had experience with each.
I was diagnosed with Graves' Disease about a year and a half ago after the birth of my son. I was so glad that I had lost my baby weight within 6 months but then I had to start medication. Since then I have gained 30+ pounds. I am just now coming to terms with this and am reclaiming my body. Anyone that is on a similar mission, please feel free to friend me.0 -
It's amazing to hear your story, thank you for sharing! That is exactly what I am experiencing! while I was RELAXED last night, i suddenly felt like I could almost hear my heartbeat it was pumping so loud and so fast - I checked and I was 123 bpm. I'm just starting this journey, and I'm glad to be able to share that with those who have experienced it, thank you!0
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