What is your TSH?

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TXBelle1174
TXBelle1174 Posts: 615 Member
I just went through all my lab work and realized my TSH was just above the normal range. I am wondering why my Dr. didnt adjust my meds since I have overwhelming HypoT symptoms. What is your TSH and do you feel "normal" at that level?
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Replies

  • BehindBlueEyes988
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    Mine is 3.18 as of August 29th (may be higher now), but me Endo won't treat
  • steviecooke1985
    steviecooke1985 Posts: 68 Member
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    I started at 6 when I first went to the doc, then it shot up to 8 in a month - so started getting treated. I'm on 100mg now and my TSH is between 0.5-1.0 and that is where I feel good. I was lucky to have a doctor who agreed to up my med from 75mg, when my TSH was 2.3 as I still didn't feel good. it isn't an exact science and not everyone is the same. I think if your doc won't listen, you should try someone else?
  • katapple
    katapple Posts: 1,108 Member
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    Mine was 3.4 when I started getting treated. Last couple of tests I'm right around a 1, and I feel ok....but I have other issues right now. I did start taking cytomel in June or July and helped me feel better for a while. Now after reading about adrenal fatigue I am going to ask my doc about it in November.

    Sorry your doc is unwilling to adjust. Mine likes to see my levels at 1.
  • x4mygirlsx
    x4mygirlsx Posts: 129 Member
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    Mine started out at 177 a year ago when i was diagnosed with hashimotos. got it to 5.8 within 3 months and i got pregnant. then they increased my dose and kept it below 2 through my pregnancy . now 7 weeks after giving birth its 0.01 so my dose has been reduced cause apparently that means im hyper not hypo. although i dont feel any different.
  • Dlacenere
    Dlacenere Posts: 198 Member
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    I am on armour after many years on levothyroxine. Mine is usually around 1 and that is where I always feel the best. I look at my T3free and t4free closer than my tsh.
  • firstsip
    firstsip Posts: 8,399 Member
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    I've been as low as... over 100 I think? Back when my adrenals crashed and I almost died, lolol (trust me, I laugh now). I've been as high as 0.00 (where I also ended up in the hospital). Throughout all of that, I had no thyroid :P It was all due to misdosages from two different endos (ten years apart, as well).

    Right now I'm hovering between .5-1 on 100mcg Levothyroxine (the lowest dosage I've been on since the "2mcg of Synthroid" that made my TSH so crazy back in the day).

    The "TSH" normal levels changed within the last 2 years; I notice that some endos people mention still follow the old one (Normal range = 1-5) while the new one is much smaller (Normal range =.5 to 3).
  • BehindBlueEyes988
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    Pardon, I am now at 3.25. Still no treatment though. Guess my Endo wants complete system failure before doing anything. Shall I say, my old Endo
  • fiberartist219
    fiberartist219 Posts: 1,865 Member
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    I don't know the actual number... but my labs usually show that my TSH is a little hyper and my T3 and T4 are normal. I feel fantastic, so my doctor keeps prescribing the dosage that works for me.

    Ask your doctor about your Free T3 and Free T4. If those numbers are still hypo, you need to adjust your dose. If they are normal, then maybe look into T3 meds or some lifestyle changes like weight lifting or reducing carbs.

    Feeling good is important! If you feel like crap, make sure your doctor knows it.
  • survivor1952
    survivor1952 Posts: 250 Member
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    My TSH on 9-25-12 is 1.18 (Reference range is 0.40-4.50)
    My T4, FREE is 1.3 (Reference range is 0.8-1.8)
    I am on 50 mcg. of Synthroid
    My endo is great, she believes what is "normal" for one person is different for another so she focus's on entire health issues.
    She was the only one to determine I was also having pre-diabetic issues. I guess my thyroid & pancreas were kind of fighting each other...I am showing good numbers for both glands now. Might be a question to pursue also. By the way, I have Hashimoto's also, had 1/3 of thyroid removed last year. You have to have an endo who listens to your needs & you need to have trust in him/her.
  • firstsip
    firstsip Posts: 8,399 Member
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    Pardon, I am now at 3.25. Still no treatment though. Guess my Endo wants complete system failure before doing anything. Shall I say, my old Endo

    That's a oretty normal TSH by both ranges (most doctors would agree that a .25 could be a minor spike in levels. even people without thyroids get these, and you could go test your bloodwork again in two weeks and be 2.75... that's how small of a change that is within an overall range)--I doubt you'll go into system failure. What's your T3 or T4 though? I'm assuming you feel crappy if you're insistent on your endo treating you, but your levels appear normal.

    Obviously we all know that everyone reacts differently to different levels, so if you feel crappy at a TSH of 3.25, that needs to be resolved. But make no mistake: just because you have symptoms of hypo or hyper still, doesn't mean your body will "fail"... I was 100+ and 0+ for a long, long time before anything happened (and I have no thyroid)... and those are very extreme levels.

    Your organs aren't going to explode at 3 :P
  • BehindBlueEyes988
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    I know, I just meant she wants to wait until I'm worse than I am now. Just been a frustrating day being told to just wait and wait. Wanted to just scream all day

    Not failure in the literal sense, lol
  • strawberrytoast
    strawberrytoast Posts: 711 Member
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    I was 150 when first tested upped doses every 6 months now at 2.7 on 150mg levothyroxine rubbish stuff. Dont feel any different. Cant remember my T3 grr
  • kcvance
    kcvance Posts: 103 Member
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    Was at 60 when I got diagnosed, am currently at 0.45. I feel like hell when my TSH approaches 1. Free T3 and T4 are in the high end of "normal", whatever that is - and those are the only two numbers I care about. Also great to find a doctor who treats the SYMPTOMS rather than the lab number.
  • shvits
    shvits Posts: 249 Member
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    my TSH, T4 and T3 are all within normal range. It took endocrinologist about 8 months after surgery removing 1/2 to get the dose correct (she told me it could be up to one year). She added cytomel to the synthroid and that made all of the difference with energy. Synthroid in a.m. with cytomel and more cytomel at 1 P.M. No more hair loss and no more 2-3 hour naps in afternoon and more clear thinking. It is rather complicated and specialized....changes the dose after tests and calculates the dose very carefully using a formula that I do not understand...I had to take algebra over and that was 50 years ago. Good luck with your doc. hunting!
  • firstsip
    firstsip Posts: 8,399 Member
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    my TSH, T4 and T3 are all within normal range. It took endocrinologist about 8 months after surgery removing 1/2 to get the dose correct (she told me it could be up to one year). She added cytomel to the synthroid and that made all of the difference with energy. Synthroid in a.m. with cytomel and more cytomel at 1 P.M. No more hair loss and no more 2-3 hour naps in afternoon and more clear thinking. It is rather complicated and specialized....changes the dose after tests and calculates the dose very carefully using a formula that I do not understand...I had to take algebra over and that was 50 years ago. Good luck with your doc. hunting!

    So are you taking cytomel without a thyroid with good results?

    And yeah, even with Armour, I don't think people realize--thyroid meds metabolize slowly, take 3-6 months to fully enter the blood stream (the entire dosage), and it can take 6-12 months for your brain to finally understand it's getting enough thyroid hormone to function properly. Thyroid is a terrible waiting game.
  • rebecca9341
    rebecca9341 Posts: 66 Member
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    TSH is 32.3, just started synthroid this past week. All my other values are WNL (which i find strange) Had my thyroid U/S last Wednesday and still waiting on results from that.
  • katoato
    katoato Posts: 26 Member
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    Hope you find someone to give you some choices in therapy. I was having horrible hypo symptoms at 2.55 (eyebrow hair and hair loss, low basal metabolic temperature, slow heartbeat, anemia, low energy, abnormal reflex response, palpitations, etc.) and found an angel of an endo that was willing to treat. Don't give up hope! You are actually above normal now according to AACE's 2003 TSH range of .3-3.0 so anyone with knowledge of those clinical guidelines should be willing to treat you.

    Unfortunately, the 2012 guidelines have been revised to treat patients only at above a TSH of 4.5. http://aace.metapress.com/content/b67v7mk73g3233n2/fulltext.pdf

    Best for you to shop around for a new endo before the new guidelines trickle down!
  • debbylee22
    debbylee22 Posts: 456 Member
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    My TSH was 3.13 last time I had it checked. But my naturopath said it doesn't matter what that reading is. It doesn't really tell you anything. Its the other ones that tell the real story. However, my Dr does watch that one. I'm going by how I feel, and treating "symptoms"... still raising the Natural thyroid, hoping to find the amount needed soon. When one symptom leaves, another one shows up... so its still not quite there. My aim right now is to get my temperature reading up to 98.6, also.
    I think it is suggested that most people feel better with a level of 1, or something like it... but each person's different.
  • reptilegrrl
    reptilegrrl Posts: 24 Member
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    These days my TSH is .5 or less. But TSH is really not the right way to measure thyroid function. TSH is a pituitary hormone, not a thyroid hormone. It is more important to measure thyroid hormones, like Free T3s and T4.

    Unlike some people, I started seeing positive results with NDT right away. The T3 definitely kicks in pretty fast. I use my NDT sublingually, which may be why I got quick results. Synthetic T-4 only treatment did not work for me at all, it actually made me worse.
  • anewnam715
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    I was diagnosed in September, and at the time mine was 6.25. It had actually came down some since I was tested in 2011, it was 7.65 (which I was not on medication at the time)