Newly diagnosed hypo looking for support

Hi all,

I'm very recently diagnosed as hypothyroid (level is 5.9) and am looking for some support/friends on MFP with either experience dealing with this or who are also newly diagnosed. Please add me :)

The last few years I've had a difficult time losing and weight and this year, despite watching what I was eating, I gained almost 30 lbs. Initially, I attributed this to coming off a bunch of meds--I got married in March and we want to start a family. But despite all of my attempts at calorie counting, counting points, increasing activity, the scale wouldn't budge. Turns out I have hypothyroid (my mom has had it 20 years, plus both sides of my family have a history). Also, diagnosed with "fatty liver" although I suspect a lot of that is due to the sudden increase in weight in such a short time as my levels are regulating.

I'm cutting carbs and sugar, eliminating soy (what little there was), quitting my Splenda addiction and trying to increase activity. Basically adopting a clean eating plan. Anything else anyone can recommend, either for hypothyroid or fatty liver? Supplements? Specific types of activity (my motivation to exercise is horrible; I'm so tired!).

Oh, just started 50 mcg of Synthroid as well :)

Thanks!

Replies

  • dwn2erth
    dwn2erth Posts: 144 Member
    Welcome to the group!!! I think you'll find a lot of support from everyone... Feel free to friend me if you'd like!!!
  • babynew
    babynew Posts: 613 Member
    I'm NEW too. 6.75... & just went for my second blood test & talk. Because of what I read here I ask for the free ts to be tested and cortisol. .she'll do the ts but said she didn't believe in the cortisol. .. shrug? .. I haven't heard back yet from 2 days ago. ..Add me if you like. This is all NEW. Appreciate you all sharing!
  • Welcome to the group! We are all very supportive! I've found out a lot of info from people here, as well as getting support from people who know what we are going through. I was just diagnosed in October. I was at 8.3 then, and at my last blood test I was at 3.9. My doc was going to keep me at that number, but I pleaded my case because I was still having symptoms. Fortunately she agreed that there was enough wiggle room to up my dose a little and see what happens. There is a great patient advocacy website called stopthethyroidmadness.com that has a lot of great info. :flowerforyou:
  • Welcome! There are alot of people on here who have some great words of wisdom. Friend me if you like! :) I've been hypo for ~4 years. When starting out, be patient. I started on a low dose of Synthroid, but the higher the dose, the worse I felt. When I switched docs and meds over to Armour, it made all the difference in the world. Best wishes!
  • islandmonkey
    islandmonkey Posts: 546 Member
    First, I'd recommend getting your free T3 and free T4 tested - TSH isn't a great measure of thyroid function since it's a pituitary hormone. It can also be quite suppressed in people supplementing with thyroid hormone so you can continue being hypo.

    Second, I'd make sure that your free T3 and free T4 are in optimal range before you start trying to have a family. Hypothyroid can cause infertility, but also miscarriage (early and late) and birth defects. So it's best to get them optimal before trying! Optimal is NOT the same as "normal"....always make sure to get a copy of your labs and don't just accept them saying you are "normal". That just means you are within the normal range, but optimal is in the top 1/3 of the range your lab uses.

    Third, I'd consider switching to a natural supplement like Nature Thyroid, that contains both T3 and T4. Synthroid is only T4, so if your body doesn't convert T4 into T3 properly you can still be hypo (even if your free T4 test is optimal).

    Fourth, I'd join this group:
    http://community.babycenter.com/groups/a3695/thyroid_issues_concerns
  • debbylee22
    debbylee22 Posts: 456 Member
    :flowerforyou: Welcome!
    I'm so sorry you're having trouble with your weight. It is a big side-effect of hypothyroidism.

    I see its been recommended before, but I would STRONGLY urge you to read stopthethyroidmadness.com, if not the book too!! :happy:

    I was just diagnosed with hypo this spring (have no idea how long I had it though). My Dr. automatically put me on synthroid & that threw me into hyperthyroid very quickly. (which is miserable)! Meantime, I was researching, and trying to find a "cure" for hypo. I've always used natural cures for my health & pms, etc. So reading that web-site & the help I received here sent me looking for a naturopath, to get advice. I'm so glad I did!!
    Turns out I had adrenal fatigue, which Dr's don't really know anything about treating. Then I learned that without treating the adrenal fatigue, the thyroid would not be able to respond correctly to the treatment.
    I've been receiving treatment for the adrenals and its amazing!! I'm actually a different person now! Besides going on the Natural Thyroid, which is so much better then the synthetic that the Dr's are taught to "push."
    I have energy, I want to do things, and I'm not freezing anymore. Its really amazing.
    At the stopthethyroidmadness.com they show you how to find a Dr that will treat you for your symptoms, and how to demand the proper tests. Please read it.
    I hope your health improves soon! :smile:
    Blessings,
    Debby
  • megawatt259
    megawatt259 Posts: 10 Member
    Great! Thanks. I'm going to check out those websites and resources and have added many of you as friends. Please feel free to do the same for me.

    Any advice you can give on whether to stick with your family doctor or find a specialist for this would be great. My mom is hypo and sees a specialist, but isn't thrilled with him. I'm in the Erie, PA area but would easily go to Cleveland, Pittsburgh or Buffalo is someone has a specialist they recommend.

    Thanks!
    Donna
  • islandmonkey
    islandmonkey Posts: 546 Member

    Any advice you can give on whether to stick with your family doctor or find a specialist for this would be great. My mom is hypo and sees a specialist, but isn't thrilled with him. I'm in the Erie, PA area but would easily go to Cleveland, Pittsburgh or Buffalo is someone has a specialist they recommend.


    Honestly, even a "specialist" is usually an endo who will likely focus on diabetes and not be up to speed on current thyroid management.

    This website lists doctors who are open to prescribing dessicated/natural thyroid meds, and therefore will be more likely to be better educated on thyroid management. I would start there for finding a thyroid doctor:
    http://www.thyroiddoctors.com/