Tired of being tired

I have been on a roller coaster with my thyroid hormone levels for a year now. My thyroid function keeps declining and it is all I can do to stay on top of it. Today is one of those days where I am both mentally and physically exhausted for no apparent reason other than the obvious thyroid issue. I am so tired I could fall asleep at my desk. I am so cold I am wearing a winter coat and have a space heater angled directly towards me on high in an already 72 degree office. All I would like to do is go home, curl up on the couch with a nice warm blanket and fall asleep.....for a few days. :huh:

Simply put, I am so tired of being tired all the time. I have my good days but in the last year the bad days far outnumber the good days. It seems I get to the point where my medication is at the right level for me, and then my thyroid decides it wants to crap out a month later and I need another adjustment. I suspect the way I am feeling today and have been feeling for the last week is a direct result of yet another needed medication increase but enough already!

I of course went into the doctor already to donate the needed blood for the required tests to see if my theory is right. The results should come back later today. I am venting because it is healthy for me to let it out and I would rather rant and rave about it than give up. I have so many positive things in my life to focus on, I would hate to spend every waking moment "asleep at the wheel." :yawn:

Thanks for reading! I am now going to pray that this is it for awhile so I can have the energy to give the other things in my life the much needed attention they deserve. :heart: :heart: :heart:

Replies

  • islandmonkey
    islandmonkey Posts: 546 Member
    With symptoms of fatigue and cold that extreme I can pretty much guarantee that your levels are way too low!

    1. Labs: what is your doctor testing? Just TSH, or also free T3 and free T4?

    2. Meds: what are you taking? If it's a synthetic T4-only med like Synthroid or Levothyroxine then it's especially important to get your free T3 tested, because you may need to add in a synthetic T3 or switch to a dessicated med that contains both T3 and T4.

    3. Antibodies: have they tested your antibodies to check for Hashi's? Getting your meds right only to need more is a classic Hashi's trick. If you're positive for antibodies you can do things to settle your immune system, and it should help level things out.

    4. Vitamins/minerals: have you had your Vit D levels checked? Also iron, ferritin, selenium and B12. Vit D is required for the T3 to act on your cells, and most north americans are seriously deficient.


    I think this absolutely deserves your attention, because it keeps you from being able to enjoy other things! And yes, raging about the medical system when it comes to thyroids is much-needed, to stay sane...
  • I have been hypo for 11 years. In 10 years I only had to increase my medication once and that was at the very beginning. Two years ago my doctor discovered a nodule that was tested and found to be a cyst with a small tumor on the top. All non-cancerous but still grew into a large goiter that was causing swallowing and breathing difficulties. I had the right half of my thyroid removed a year and a half ago as a result and I have been on the seemingly never ending roller coaster ever since.

    I haven't heard from the doctor yet so I am still waiting on results from the tests yesterday. I feel lucky to say I finally found a doctor that does listen. In the past, I found doctors would only test TSH and when that came back normal they would just point straight to depression and put me on anti-depressants. She has always been very reluctant to do anything like that because she truly believes this is not my problem. It is not, I had post partum depression with all 3 of my children and I feel nothing like that now. I am generally a very positive person with the will and want to do things that I love I am clearly just frustrated and worn out.

    She always tests TSH, T3 and T4. I take Levothyroxine and my tests on December 19th for all 3 came back within an acceptable range. At that time, I felt decent but slightly tired. I had a full panel done at the same time and they did find I was deficient in Vitamin D so I have been taking 2000IU every day since. I have never been tested for antibodies and would be interested to know what I can do to settle my immune system if I were found to have Hashimoto's.

    I hope to hear back today.
  • islandmonkey
    islandmonkey Posts: 546 Member
    Just note that "within normal range" and "optimal" can be two different things. Most people feel hypo if their free T3 is at the bottom of the range - optimal would be having it in the top 1/3 of the range.

    A lot of people with Hashi's have great success going gluten free. I have graves (also autoimmune) and found that yoga and accupuncture both helped!
  • Well, I am being told my results were within normal range. I will ask what the numbers were tomorrow. This time she only tested TSH and free T4. Now she thinks we need to explore other avenues so I am to go in tomorrow to be subjected to a battery of tests to rule out other things. That sounds fun....:grumble: I think I can humor that action for now. I would like to know why she doesn't think testing my free T3 was important and I will be asking that tomorrow.

    While waiting forever to get these results, I did make an appointment with a clinic in my area that specializes in holistic care of their patients. They did not have any availability until next month but I think they will be worth the wait. They have received rave reviews especially from women that have had hormonal problems. Some people may be put off by the thought of using a holistic physician that specializes in more natural ways of wellness combined with the usage of bioidentical vs. synthetic hormones but I am willing to give it a go. I have nothing to lose and everything to gain.

    I have mixed emotions about seeing another physician to get another opinion. I really do like my current physician. She is the first physician I have had that even listened to my symptoms long enough to suggest running additional tests. She is also the first physician that has agreed with me that depression was not my problem. She fought for me to get the large lump removed from my thyroid a year and 1/2 ago when the surgeon really didn't think it needed to be removed. The surgeon just wanted to continue to watch it and biopsy it until it grew even larger or turned cancerous. That wasn't an option for me and my physician knew that. My breathing capacity was compromised and swallowing my food was difficult. Maybe tomorrow's visit can open up some more doors, maybe it won't but either way, it can't hurt to get a second opinion/option going.

    I am not going to quit. I do not feel right and something is causing it.
  • islandmonkey
    islandmonkey Posts: 546 Member
    Well, I am being told my results were within normal range. I will ask what the numbers were tomorrow. This time she only tested TSH and free T4. Now she thinks we need to explore other avenues so I am to go in tomorrow to be subjected to a battery of tests to rule out other things. That sounds fun....:grumble: I think I can humor that action for now. I would like to know why she doesn't think testing my free T3 was important and I will be asking that tomorrow.

    All I can do is reiterate that "within normal range" and "optimal" are not the same. Many people still feel symptomatic and awful while they are "within normal range" because they're at the bottom of the range.

    Your thyroid would normally produce about 80% T4 and 20% T3. With half yours gone you're already behind on T3 production. As well, if your body has issues converting T4 into T3 then you could be even lower. Many people complain that they "still feel hypo" while on T4-only meds. I would strongly encourage you to ask your doctor about switching to a natural dessicated med like Armour or Nature Thyroid. These contain both T3 and T4, and the T4 is bioidentical to your body's natural T4 so is easier to convert. Many thyroid patients say they "finally felt normal again" after switching.


    I'd also encourage you to get the vitamins/minerals levels tested that I mentioned in my previous comment.
    While waiting forever to get these results, I did make an appointment with a clinic in my area that specializes in holistic care of their patients. They did not have any availability until next month but I think they will be worth the wait. They have received rave reviews especially from women that have had hormonal problems. Some people may be put off by the thought of using a holistic physician that specializes in more natural ways of wellness combined with the usage of bioidentical vs. synthetic hormones but I am willing to give it a go. I have nothing to lose and everything to gain.

    Please do consider switching to a natural dessicated med!!
  • LuciaLongIsland
    LuciaLongIsland Posts: 815 Member
    I have had thyroid issues for over 3 years now. It goes from high to low. I don't have all your knowledge, but I went to a doctor for 3 years. He moved and I had to find another one, I didn't like him so I have a third. LOVE her. I see her every 3 months. I see her Friday. Of course she is and endocrinologist as I hope your is. She spends a lot of time with you. She also knows a lot about nutrition. She told me for my age, weight how many calories to eat. When I listen I lose. As far as other symptoms I guess I don't have them as I never heard of being tired. Thanks for educating me.
  • Thank you all for your advice and insight. I will be taking a detailed list to my doctor tomorrow so none of the points I need to speak with her about are missed. I appreciate the feedback!!