Anyone else out there HYPERthyroid?
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So now that we all have said yes we are hyper, what sort of health issues are you experiencing?? Since being diagnosed in March of 2010, meaning I was probably hyper since the previous August, I have developed an inverted T-wave. Drs started being concerned until they realized it had been the same for 2 years and finally accept the thyroid connection. My weight has been yo-yo-ing up and down from a high of 195 to a low of 135ish and back up again. It's slowly going down again,. thanks to tracking calories. I take atenolol to help keep my heart from beating out of my chest and I'm consistently stable with it so I finally got the okay do cardio!! I'm up to 25 minutes on a treadmill at a fairly moderate pace for me with bad ankles. and I can take walks now and not feel like I'm having a heart attack!
As I wait . again . . to see if RAi take this time I'm doing some yoga for balance, and breathing, free weights and circuit at. the gym as well. Dr said I could exercise and I'm taking to it like a fish to water. LOL
How about everyone else?0 -
I used to be hyperthyroid, then in 2010 had radioactive therapy to partially kill my thyroid ... and at the moment it's in the realms or 'normality'.
This option was taken becuase i'd developed THYROTOXIC MYOPATHY (Thyrotoxic myopathy is a neuromuscular disorder that may accompany hyperthyroidism (Graves' disease, caused by overproduction of the thyroid hormone thyroxine). Symptoms may include muscle weakness, myalgias (muscle tenderness), wasting of the pelvic girdle and shoulder muscles, fatigue, and/or heat intolerance. Thyroid myopathy may be associated with rhabdomyolysis (acute muscle breakdown), damage to the muscles that control eye movement, and temporary, but severe, attacks of muscle weakness that are associated with low blood potassium levels (known as periodic paralysis). )
... well worth a google for hyperactive thyroid sufferers that are gaining weight, having bowel/digestive problems or sore/aching muscles etc0 -
I have had graves,now I'm hypo due to thyroidectomy I'm on the low end with labs...so they tend to keep me near hyper...end I just want to get to feeling my best and get off the weight,hoping it's possible to loose 45 lbs!0
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I guess it's fair to say I have lived with both hyper/hypo they are both hard sometimes...I had more energy when I had graves but I really wish I still had my graves and was on PTU....because the radio iodine was a nightmare for me,living without a thyroid( sigh)I guess I'm glad it's something I can live with, but it's a frustrating condition at times.0
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I am Hyper. you can add me.
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I was diagnosed with hyperthyroid last November after becoming very ill and loosing lots of weight very quickly. Started drug based treatment and had a couple of months when I started to feel better and could eat just about anything I wanted and stayed same weight but after that (Once I had gotten into bad habits!) I was overmedicated and became hypo, thus piling on about 30lb. Tests say my block and replace regime is working and my throid levels are normal but no sign of excess weight coming off so time to join myfitnesspal and see if I can get back to my normal weight. Wish me luck! How are you doing? Is there anyone else out there on block and relace regime and if so does dieting work for you?0
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I was just diagnosed with Hyperthyroid after feeling like I was loosing my mind - my body has been betraying me for the last few months but more so in the last few weeks. I went to my doctor crying because I thought I was entering early menopause or had blood pressure problems or worse. I hadn't been sleeping because I wake up ROASTING at night and am jittery all day. My heart rate has been over 100 resting for quite a while. My wonderful doctor prescribed an extended release drug for anxiety that has helped me to sleep the last week and a half, and after getting called back by my doctor after my blood work on Tuesday (which has NEVER happened in my life time!) I was very worried, but suspected that it might be something with my thyroid. He has put me on Beta Blockers right now to reduce the jitters and lower my heart rate, and I will soon be seeing a specialist endocrinologist. The Beta Blockers seem to be helping quite a lot, even after only one day. I am really hoping to get on a good treatment plan that isn't too invasive, my GP suggested that I might need surgery to reduce my enlarged thyroid. It's terrifying! I've always used more natural routes for my health, and it kills me to be taking drugs, but if it makes me feel better, I have to give it a try. I can't continue with the way I've been feeling or I will surely lose my mind! I'm sad to see that Thyroid issues are becoming more prevelant, but hopefully sharing will help all of us.0
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I was hyperthyroid on and off for 20 years. Just recently had a total thyroidectomy as anti-thyroid meds were no longer working; plus had a cancerous nodule.
For all those with hyperthyroid please check out ALL of your options before agreeing to radioactive iodine (RAI) treatment! It's the rare person who doesn't regret getting RAI, and you DO have other options (like taking anti-thyroid meds, or getting a thyroidectomy).
Some people like the weight loss that comes (for some people) with hyperthyroid. Please remember that this is largely due to both muscle and bone mass loss. Your heart is a muscle, so you can end up higher risk for cardiovascular disease, and also for early onset osteoporosis. It is NOT healthy weight loss!!
Dietary challenges: for uncontrolled hyperthyroid my challenge was to stop eating all the sugar....I was so hyper that's all I could eat, just to keep functioning. I gained about 20 lbs in 4 months because of it; way more than I ever gained while being hypo after my thyroidectomy.0 -
I was just diagnosed with Hyperthyroid after feeling like I was loosing my mind - my body has been betraying me for the last few months but more so in the last few weeks. I went to my doctor crying because I thought I was entering early menopause or had blood pressure problems or worse. I hadn't been sleeping because I wake up ROASTING at night and am jittery all day. My heart rate has been over 100 resting for quite a while. My wonderful doctor prescribed an extended release drug for anxiety that has helped me to sleep the last week and a half, and after getting called back by my doctor after my blood work on Tuesday (which has NEVER happened in my life time!) I was very worried, but suspected that it might be something with my thyroid. He has put me on Beta Blockers right now to reduce the jitters and lower my heart rate, and I will soon be seeing a specialist endocrinologist. The Beta Blockers seem to be helping quite a lot, even after only one day. I am really hoping to get on a good treatment plan that isn't too invasive, my GP suggested that I might need surgery to reduce my enlarged thyroid. It's terrifying! I've always used more natural routes for my health, and it kills me to be taking drugs, but if it makes me feel better, I have to give it a try. I can't continue with the way I've been feeling or I will surely lose my mind! I'm sad to see that Thyroid issues are becoming more prevelant, but hopefully sharing will help all of us.
I was in your exact position about a year and a half ago. My anxiety level was so high that I would fly out of my seat at the sound of a door closing, my heart rate was 124 resting, and I couldn't stop shaking. Just some things for you to expect. The beta blockers work nicely to bring down the side effects of hyperthyroid but do not treat the thyroid. Your endo will most likely order a thyroid scan and suggest options such as surgery, radioiodine or medication. I was very scared by the whole process because I had a newborn to worry about. Consider your option carefully and do your best to be well informed. Each method of treatment has its benefits and its drawbacks. Talk to folks that have had experience with each.
I was diagnosed with Graves' Disease about a year and a half ago after the birth of my son. I was so glad that I had lost my baby weight within 6 months but then I had to start medication. Since then I have gained 30+ pounds. I am just now coming to terms with this and am reclaiming my body. Anyone that is on a similar mission, please feel free to friend me.0 -
It's amazing to hear your story, thank you for sharing! That is exactly what I am experiencing! while I was RELAXED last night, i suddenly felt like I could almost hear my heartbeat it was pumping so loud and so fast - I checked and I was 123 bpm. I'm just starting this journey, and I'm glad to be able to share that with those who have experienced it, thank you!0
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Hyper here. Diagnosed 3 yrs ago0
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Hyper here, you can add me. Also, I am one of those who gains weight when hyper. Weird.0
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I had Grave's up until December 2012 when I decided to take definitive action and take Radioactive Iodine. My thyroid disease has been a roller coaster my entire life (starting at age 7, I'm 29 now). I was on methimozle (sp?) when I had another flare up in 2011 but the doses weren't working and I started to suffer from Thyroid Eye Disease. For the sake of having children in the future, my doctor advise that I should take the RAI to replace a very bad problem (Grave's) with a better problem (Hashimoto's).
But trust me, whatever you're going through with hyperactive thyroid, I'm sure I have gone through it.0 -
I'm in a tricky situation where no one quite matches me (I'm hypothyroid as a rule because I had a complete thyroidectomy, but have suffered from "hyper" symptoms for the past year or so because of overmedication).
I'm interested in what "dietary" things you've tackled. I've had every hyper symptom (including constant bowel movements!) but no weight loss, and in fact, weight gain (which might be adrenal).
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?0 -
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?
In my experience, every time someone is on synthroid after a thyroidectomy and is "kept hyper" that usually means that your TSH (not a thyroid hormone) is suppressed. However, since synthroid/levo are T4-only meds this often means that your TSH and free T4 are high, but your free T3 is in the tank - actually making you hypO. Classic hypo symptoms are feeling cold, dry skin and nails, hair thinning or loss, trouble losing weight, etc.
I'm actually really surprised that your doc cut the cytomel. What was the logic...?0 -
I'm familiar with the symptoms and fatigue can be a sign of hyper too. Actually my TSH is really low, my free T4 is normal and my free T3 is really high.0
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You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?
In my experience, every time someone is on synthroid after a thyroidectomy and is "kept hyper" that usually means that your TSH (not a thyroid hormone) is suppressed. However, since synthroid/levo are T4-only meds this often means that your TSH and free T4 are high, but your free T3 is in the tank - actually making you hypO. Classic hypo symptoms are feeling cold, dry skin and nails, hair thinning or loss, trouble losing weight, etc.
I'm actually really surprised that your doc cut the cytomel. What was the logic...?
Once you have a thyroidectomy, you are always medically hypo, though can manifest "hyper" symptoms because of medication.0 -
Once you have a thyroidectomy, you are always medically hypo, though can manifest "hyper" symptoms because of medication.
What I meant is that the "hyper" symptoms come from being on the wrong meds for someone without a thyroid.
Synthroid/levo are T4-only, and while some people call it the "storage" thyroid hormone it is metabolically active - just not nearly as active as T3.
Often doctors put their patients on the T4 meds, then only test TSH and free T4. Then they say their patient is "hyper" when their TSH is suppressed but their free T4 is elevated.
What I'm saying is that it's not so black and white. That people get some "hyper" symptoms because their free T4 is high - maybe some jitters, insomnia, anxiety, bowel issues etc. But those people ALSO have "hypo" symptoms - weight loss issues, fatigue, cold, etc. The reason they have these hypo issues at the same is because their free T3 is still hypo.
People can kind of be both, even though the classic definition of hypo/hyper doesn't allow for this distinction. To me, when this happens it means the person is on the wrong meds.0 -
I am Hyperthyroid and have Graves Disease. I am currently on 5mg of methimazole once a day and it keeps my levels in check. I see my endo every 6 months for a check up and blood work. My dr. tried me on 10mg, but I started getting joint pain so now I take 5 mg and he's happy with my bloodwork.
Add me as a friend if you like.0 -
I also have hyperthyroidism (due to Graves' disease) was diagnosed in February 2012. It's a roller coaster ride, isn't it?0
