Anyone else out there HYPERthyroid?
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Hyper here. Diagnosed 3 yrs ago0
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Hyper here, you can add me. Also, I am one of those who gains weight when hyper. Weird.0
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I had Grave's up until December 2012 when I decided to take definitive action and take Radioactive Iodine. My thyroid disease has been a roller coaster my entire life (starting at age 7, I'm 29 now). I was on methimozle (sp?) when I had another flare up in 2011 but the doses weren't working and I started to suffer from Thyroid Eye Disease. For the sake of having children in the future, my doctor advise that I should take the RAI to replace a very bad problem (Grave's) with a better problem (Hashimoto's).
But trust me, whatever you're going through with hyperactive thyroid, I'm sure I have gone through it.0 -
I'm in a tricky situation where no one quite matches me (I'm hypothyroid as a rule because I had a complete thyroidectomy, but have suffered from "hyper" symptoms for the past year or so because of overmedication).
I'm interested in what "dietary" things you've tackled. I've had every hyper symptom (including constant bowel movements!) but no weight loss, and in fact, weight gain (which might be adrenal).
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?0 -
You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?
In my experience, every time someone is on synthroid after a thyroidectomy and is "kept hyper" that usually means that your TSH (not a thyroid hormone) is suppressed. However, since synthroid/levo are T4-only meds this often means that your TSH and free T4 are high, but your free T3 is in the tank - actually making you hypO. Classic hypo symptoms are feeling cold, dry skin and nails, hair thinning or loss, trouble losing weight, etc.
I'm actually really surprised that your doc cut the cytomel. What was the logic...?0 -
I'm familiar with the symptoms and fatigue can be a sign of hyper too. Actually my TSH is really low, my free T4 is normal and my free T3 is really high.0
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You could be me.
I lost my thyroid to cancer a few years back. While i have managed to lose weight while being kept hyperthyroid on meds, it's been a struggle, and it seems the more hyper i get, the harder it is to lose. My endo just cut back my synthroid dosage, and i am so hoping that helps in my weight loss quest.
definitely interested in what has worked for others.
I think you're one of the first people I've wanted to friend on here! It's so hard to find people in our situation!!
I had a tt last September and my last 2 rounds of blood work have come back as hyper. My synthroid was reduced the first time from 100 mcg to 88 mcg and this last time she took away my cytomel. I never thought I would be hyper on a relatively low dose and without a thyroid?
In my experience, every time someone is on synthroid after a thyroidectomy and is "kept hyper" that usually means that your TSH (not a thyroid hormone) is suppressed. However, since synthroid/levo are T4-only meds this often means that your TSH and free T4 are high, but your free T3 is in the tank - actually making you hypO. Classic hypo symptoms are feeling cold, dry skin and nails, hair thinning or loss, trouble losing weight, etc.
I'm actually really surprised that your doc cut the cytomel. What was the logic...?
Once you have a thyroidectomy, you are always medically hypo, though can manifest "hyper" symptoms because of medication.0 -
Once you have a thyroidectomy, you are always medically hypo, though can manifest "hyper" symptoms because of medication.
What I meant is that the "hyper" symptoms come from being on the wrong meds for someone without a thyroid.
Synthroid/levo are T4-only, and while some people call it the "storage" thyroid hormone it is metabolically active - just not nearly as active as T3.
Often doctors put their patients on the T4 meds, then only test TSH and free T4. Then they say their patient is "hyper" when their TSH is suppressed but their free T4 is elevated.
What I'm saying is that it's not so black and white. That people get some "hyper" symptoms because their free T4 is high - maybe some jitters, insomnia, anxiety, bowel issues etc. But those people ALSO have "hypo" symptoms - weight loss issues, fatigue, cold, etc. The reason they have these hypo issues at the same is because their free T3 is still hypo.
People can kind of be both, even though the classic definition of hypo/hyper doesn't allow for this distinction. To me, when this happens it means the person is on the wrong meds.0 -
I am Hyperthyroid and have Graves Disease. I am currently on 5mg of methimazole once a day and it keeps my levels in check. I see my endo every 6 months for a check up and blood work. My dr. tried me on 10mg, but I started getting joint pain so now I take 5 mg and he's happy with my bloodwork.
Add me as a friend if you like.0 -
I also have hyperthyroidism (due to Graves' disease) was diagnosed in February 2012. It's a roller coaster ride, isn't it?0
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This is just like me (thyroidectomy) and hyper at the moment although I have currently cut back my dose to raise my tsh into normal range. Been at this for 2 months now and very little weight loss !!0
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Hi,
Im HYPER/GRAVES
Plese feel free to add me i could really do with some advice at the moment.
Thanks
Suzi0 -
Hi everyone,
Hyper/graves add me please
Thanks
Rosie0 -
Diagnosed with graves in Sept of 2012. The only reason we even caught it was because of the eye bulging. My anxiety and blood pressure were through the roof. It was a relief to start methimazole and get a grip on my symptoms. I had lost 99 pounds over 3 years. And was super excited to hit 100. But I had to start prednisone for the eye issue. I gained 35 pounds back in just 3 months. Which was totally depressing. And my aggression was horrrible. Worst medicine ever. My symptoms immediately came back when my steroids course had finished. So right back on the steroids. I ate super healthy. Joined a 10 week kickboxing program and did jillian Michael's Dvds most evenings. 7 weeks of hell just to maintain. Been off steroids for 2 weeks and hoping to lose that 35 pounds again and finally hit that triple digit! My thyroid levels are well maintained on the methimazole. And I was able to get off the heart med. Now I'm just dealing with the eye issue. Im scheduled for orbital decompression surgery in 7 weeks. Very excited to look less like a frog and alleviate the daily headaches from all that pressure.0
