Hi Friends! I believe I am doing well as far as logging my calories on MFP. Finding this site by accident on my cell phone was the best thing that phone has done for me. :laugh: I started back in January and found wonderful Fibro friends. I was diagnosed back in 2011 which I quit my job also. I was very fortunate for my husband supporting me, actually it was his decision but then I pursued disability there after. My meds are always something new. I have done the injections on and off. I had an injection recently in my hip but once again it didn't last long, 3 weeks at the most. My insurance won't pay for reoccuring injections. My life has been turned upside from this. I loved working outside of my home. I played softball plus coached softball for my daughters team. I miss all of this. The guilt and depression is just as bad as the pain but I am managing everything right now. I am looking forward to the warm weather. That is when I feel at my best. Spring is around the corner. :happy:

Thank you for being supportive. I need friends who understand. Lord knows people don't.

Dena:flowerforyou:

Hi LizPlus,
yes the winter weather always makes my fibro worse and also getting older i find i cant do as much as i used to.
Hi shreck5,
I'm with you on the not planning anything, i never promise to do anything as i never know from day to day how im going to be.
:flowerforyou:

hi jaimierayner,
Winter seems to cause us with fibro lots of trouble giving more pain and frustration.The pain and tiredness can make it very difficult to exercise,over the years i have found that walking has been the best form of exercise for me as a can do just 10 mins on a bad day or more on a good day. I too take a multi vitamin every day.I never try to do any form of weight training as this is to much for my muscles to handle. The one thing you have to remember is that no person with Fibro is the same so only to do what you can when you can.

Hi, I'm just sooo pleased to find some more women in my situation! I've looked for local support groups but they are all at least an hours drive from me which is fine if I plan to do nothing else for the rest of the week but not very practical!

I've been working with a lady who is a trained physio and nutrionist but has also suffered from fibro. She has found that taking wheat, alcohol, sugar and potatoes out of the diet has illiminated her pain. She aslo suggests a whole heap of vitamins and suggests that most sufferers have a vit D defficiency.

Well I have been on the diet since May and was feeling sooo much better but the cold weather this winter seems to have triggered of the pain again - very frustrating!! I'm desperate to lose some weight but find I'm so exhausted from doing the daily essentials with the kids, work etc that I don't feel up to starting exercise - any suggestions?

(sorry about the spelling, I blame the fibro which fudles with my brain!):grumble:

Nice to meet you Jaimie. Out of curiosity is Rayn your middle name? My daughter's name is Arizona Rayn. I just love both names. I wanted Rayn then my husband sprung Arizona on me. I couldn't pass them both up.

I do take Vit D during the winter months and magnesium daily. I am currently taking an anti-inflammatory plus other meds. I need to use a Sunday-Saturday pill holder because I can't remember if I took my meds or not. Memory is awful for me. I have forgotten my childrens friends names that come around from time to time. I felt so bad and embarrassed. I have a daytimer and calendar in my ktichen for all my families appointments and activities because I wouldn't be able to keep up and remember.

I do not exercise nor walk. I get out of bed to take care of my children during the two weeks my husband is out of town working. It is very exhausting for me to keep up. That is when I get my exercise from traveling to sporting events. My rheumatologist wanted me to do rehab. I turned it down because I would be too exhausted from adding it to my schedule. I can't keep up. I don't think he understood. I will be having my two children going in two diffrent directions and I will be all alone for two weeks at a time. PLUS add rehab to the mix. Nope I can do it right now. :ohwell:

Sorry I got off track, I was trying to make a point which was I don't exercise but I log my calories and I am losing weight. It isn't fast but it is coming off. Don't give up, keep logging.

It's going to be sunny and 50 today in Central Pennsylvania. Yay!! I will soak in the sun. Wishing everyone a painfree day. soft ((hugs))

Dena

Happy Mothers Day everyone! Spent most of mine in bed so far. Kids are brill but know they find the whole illness difficult.

Can't tell you how reassuring it is that other people can't exercise on top of normal day to day commitments either. I seem to be eating less than I ever have but still not losing weight - very frustrating!

Hope to start walking a little when the weather finally warms up!

Have a good weekend
X

Welcome Beverwilk! I have heard that Fibro runs in the family. As of right now I have distant cousin that has it too. I don't have any intermediate family with it. I really wish someone would figure out what causes this horrible disease. I am the kind of person who needs answers.

I don't actually exercise. I do move around as far as taking my children to where they need to be. I do try practicing softball a little with my daughter. Softball is/was my favorite hobby when I was healthy. I feel so guilty when the weather is so beautiful and I am lying in bed exhausted and in pain. BUT then I usually end up paying for it when I overdo for playing with my children. I can't help myself. I don't have a happy medium.

I have lost 14lbs simply by counting calories with MFP. I bought a kitchen scale a couple months ago and I absolutely love it. I started this journey in January so I am taking it off slowly but they say that is the way to do it. :drinker:

I hope everyone keeps posting. I like to hear how everyone is doing.

Soft ((hugs))

Dena

Hi everyone,
Bookchick I’m glad you mentioned about the skin pain i struggle with that too,its very painful to have a crease in the sheets in bed or when your pj's bunch up and mine do that regular as i toss and turn most nights. I too don’t see my doc about fibro very often go to the hospital pain clinic every 8 months and have injections in my lower back. Other than that i take co-codamol when the pain is bad and Gabapentin, these help a little but nothing takes the pain away completely. I find that whatever i do i pay for with pain and stiffness for days after but over the years i have got to recognise this and if i go for a long walk on a Sunday i dont plan anything for a couple of days so i have chance to recover.
Welcome Beverwilk, i have 3 cousins’ with Fibro and my daughter has ME which is a similar illness so i would definitely say Fibro runs in Families.
Looking forward to some warmer weather soon. Marie. :flowerforyou: