Dr. mentioned PCOS but didn't seem concerned???
photojunkie28
Posts: 292
So I went to the Dr. yesterday for a sports physical for my fitness bootcamp. However, I thought I had self diagnosed myself with exercise induced amenorrhea (having come from a low calorie diet and intense exercise) but he mentioned PCOS and long story short...that was pretty much the end of the visit. I have had one period in the last 11 months or so (when I was mostly sedentary for almost 2 weeks while on vacation).
My question is...if he thought PCOS was a possibility why didn't I get referred to someone or sent for testing? I learned after the fact that it's kind of a serious thing! Should I not be concerned if he wasn't or look for more information from another Dr.? From what I read about PCOS I have quite a few of the symptoms along with the lack of a menstral cycle. I understand it can be easy to misdiagnose, but it seems more fitting than exercise induced amenorrhea since those people tend to have very low BF%. I'm like 27-28%
Thanks in advance for your opinions
My question is...if he thought PCOS was a possibility why didn't I get referred to someone or sent for testing? I learned after the fact that it's kind of a serious thing! Should I not be concerned if he wasn't or look for more information from another Dr.? From what I read about PCOS I have quite a few of the symptoms along with the lack of a menstral cycle. I understand it can be easy to misdiagnose, but it seems more fitting than exercise induced amenorrhea since those people tend to have very low BF%. I'm like 27-28%
Thanks in advance for your opinions
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Replies
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Some Dr's can tend to brush PCOS aside because they don't know enough about it and how much it affects people. Good for you doing some research on your own. I would suggest going to another DR many people on MFP see and Endrocronologist and get more information. I am someone who was diagnosed in my 30s and would have much rather been diagnosed when I was younger and then maybe I would not be having the fertility I am having now.
You do have to be your own advocate and I can tell that you are one that will since you did research right away.0 -
I'm sorry to hear about your experience. Typically, blood work is drawn and you may get an ultrasound of your ovaries before you can be officially diagnosed with PCOS. You should also have your insulin resistance checked (apparently BMI doesn't matter in this regard). Also, going more than 3 months without a period should be avoided. Too much build up of....something. Provera is a prescription taken for 10 days that starts your period. 11 months is a long time! No period means no ovulation.
Your doctor may recommend going on birth control pills if you are not trying to conceive. This will help regulate your cycles (but for many, delays the diagnosis). Not everyone likes to go the drug route, but I'm not sure that many "natural" efforts do much for PCOS. I'm sure others would disagree.
In short, get a new doctor. Even better, consider a reproductive endocrinologist. Good luck!0 -
I think the problem lies in PCOS not fitting into any one medical specialty. Gynocolgists are pretty much only concerned with whether you can get pregnant or not. Endocrinologists are mostly concerned with your hormone balance if you have veered into type 2 diabetes. Dermatologists only focus on the hair and skin issues. And internists/GPs are mostly focused on the results of PCOS - diabetes, heart disease, obesity. It's rare to find a doctor that is knowledgeable about all of the aspects of PCOS and is willing to help with it all. So it doesn't surprise me that your doctor brushed you off because at your weight, you don't "look" like a PCOS patient he would need to worry about. It's so frustrating! My doctor was receptive to me bringing my own research and telling her exactly what I wanted to try. You need to be your own advocate and ask for further investigation.0
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You should definitely either go back to your doctor, or to a different doctor and ask for blood testing and an ultrasound to be down to confirm whether you have PCOS.
As others have mentioned, 11 months is too long to go without a cycle (I used to think it was wonderful when I was younger, what did I know?!) It could be causing a build up of cysts on your ovaries and limiting your future fertility.
If you do have PCOS, it's something you'll want to know for sure, and start to deal with immediately, by whichever route you choose (taking BC if you are not wanting to conceive any time soon is what most GPs will recommend to control the symptoms and regulate your cycle, but it can be targeted with diet and natural supplements if you want to go that route, see a naturopath. Natural methods don't work for everyone but its your preference how you want to start to approach it)
Basically, you're right about the BF% - it usually won't cause amenorrhoea until you are down to about 12%, but there are other metabolic conditions besides PCOS that can cause it, some of which will require immediate treatment so you definitely want to investigate further.0 -
Oh my gosh! Thank you all so much! This has been incredibly helpful and reassurring. I called a new Dr. that was referred by a co-worker and I have an appointment with HER (I went to a male family Dr. prior) on Tuesday. I can't wait to talk to someone else because I truely feel as though I wasn't necessarily "heard" at my other Doc's. I was feeling so depressed when I left my visit because I thought that I was finally going to have some answers.
As you all have touched upon, a woman knows when something just isn't right. Although I am not concerned with having kids right now that could change and i'd like it to be a decision I am able to make.
Thanks again for all the support, I feel better already about everything. My hope has been restored that I will get some answers and be able to move forward!0 -
Good luck with your new appointment, hope you can get some answers x0
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PCOS varies widely between individuals. We don't all have the same symptoms, the same hormones out of whack, etc. so what is good or bad for one can't be applied across the board to all of us.
I went undiagnosed for what I believe to be about 10 years. I gained about 100 lbs in a very short period of time, despite not eating tons of food and continuing to exercise. Well, down the road I found out I had a huge ovarian cyst that strangled an ovary and fallopian tube, all of which were removed in an emergency surgery. THEN they decided I genuinely had PCOS. But you know, that cyst didn't get there overnight, and I had all sorts of symptoms in addition to having ovarian cysts at pretty much every annual pelvic exam I attended.
I was on BC pills at first. I was also given Metformin (I am insulin resistant) which I didn't tolerate well at all, so quit taking that pretty much immediately. I stopped with the BC pills after a year.
Someone said naturally managing things doesn't work for her, but "natural" seems to be the only thing that works for me. Eating the right way and exercising the right way (both super important) are what have really made differences in my symptoms, hormonal balances, and my body as a whole.
My PCOS symptoms VASTLY improved since I've lost a bunch of weight, and continue to improve the longer I stick with eating as I do and exercise. Lifting heavy weights has balanced my hormones like nobody's business. I know others say that it's not good, or doesn't work for them, but for me, that's the way forward. Cardio didn't do it for me--in fact it seemed to just raise cortisol levels.0 -
You should definitely see a gyno to do an ultrasound, internal and external on your ovaries to make sure you do officially have PCOS. To battle it, you should see a endocrinologist. My primary care dr. , dietician, and the gyno were all great with advice. But, like a previous poster said, they all have different training and different ideas and concerns. And endo Dr. will be able to *kitten* your personal PCOS symptoms and how it affects your body chemistry. Then, they can get you on the right path.
I highly recommend reading Jillian Michaels Master Your Metabolism. She also suffers from PCOS and went through all her regular doctors for years and was never able to get it under control until she saw an endo. I found it to be better than any PCOS book I have read.0 -
I was on BC pills at first. I was also given Metformin (I am insulin resistant) which I didn't tolerate well at all, so quit taking that pretty much immediately.
I don't think anyone tolerates Metformin very well.
(Seriously, though, to the OP and anyone who's about to start Metformin, don't start taking your prescribed dose right away, especially if it's on the higher end. Start with one pill, and gradually add until you're at your dosage. The side effects are hell until your body adjusts, especially if you jump in with both feet.)0 -
You should definitely see a gyno to do an ultrasound, internal and external on your ovaries to make sure you do officially have PCOS. To battle it, you should see a endocrinologist. My primary care dr. , dietician, and the gyno were all great with advice. But, like a previous poster said, they all have different training and different ideas and concerns. And endo Dr. will be able to *kitten* your personal PCOS symptoms and how it affects your body chemistry. Then, they can get you on the right path.
I highly recommend reading Jillian Michaels Master Your Metabolism. She also suffers from PCOS and went through all her regular doctors for years and was never able to get it under control until she saw an endo. I found it to be better than any PCOS book I have read.
I do concur that an endo is the best choice of specialist to treat it.0 -
Good luck with the new doctor! Some doctors are so good with PCOS and some are terrible! Fingers crossed you got one that will commit to helping you figure out what's going wrong and what you need to do (or which other doctors you might need to see) to get a handle on it!0