YEAH!! Thank you so much for joining and for suggesting the group! I was surprised to find that there wasn't one already and hope others struggling or that have experience and understand will also join.

I am a very severe asthmatic and I gained about 40 pounds. When most people start a predinisone ween they start at 30 mg. Mine usually start at about 60 mg. It's frustrating. I've asked other experts on here and they have few answers for me.

What I can say is that I am healthy. I participate in four 5K mud runs a year and finish them in about an hour. Not bad for a 35-year-old mom with bad lungs and about40 extra pounds she's lugging around.

I tend to be ok with losing about 10 pounds but that's it.

I hope we can help each other out.

Thanks for the link. After reading that article I think I'm trying to do too much too fast. I'm trying to diet like I did before prednisone and it's too hard...much harder than dieting was before prednisone.

So i am not currently on Prednisone but i have had experience with this medicine in the past since i had Dermatomyositis as a child.

I know all about Prednisone causing weight gain, its not fun especially when its not really your fault that you are gaining weight.

Anyways, just wanted to lend some support since i really do know how this feels.

-Ellie:)

GD MRNG MY NAME IS BEBE AND I AM ON PREDNISONE. I HAD A KIDNEY TRANSPLANT IN 2010. AND IT HAS BEEN A BATTLE TRYN 2 LOSE THS WT. IWUZ AT 150 2 160 LBS BUT NOW IM OVR 200 AND ITS GTN 2 ME. I USE 2 WALK 15 MILES A DAY PRE TRANSPLANT NOW IF IM LUCKY I CAN WALK 2 TH MAILBOX. MAKE A LONG STORY SHORT I NEED HELP. IF NE 1 HERE CAN HELP ME I WULD APPRECIATE IT THANK U VERY MUCH

Yes I know posting the same thing but I could not figure out which discussion was active. Hi All, I have Vasculitis an autoimmune disease and I am on on the horrible drug Cortisone. Along with some other nasty drugs. I am a 42 mom with 2 boys. I have to take high dosages of cortisone to stay alive. But with the side effects of this drug I have gained lots of weight. I am way over my recommended weight. Now I have to try to lose it with the slow reduction of the drug. It is a struggle, but I am going to try. I want to lose 30 pounds first then go lower. I have a lot to lose. But I would like to be in a group with others that know and understand the stresses etc that goes with chronic conditions and the drugs.

Never let any one who hasn't spent time with them tell you "It's just math". "Calories in, calories out". YOU know better!

AMEN

Sometimes I wish I hadn't had the transplant . I weighed 125pounds but I was very sick. Now I weigh 155 and growing but feel great physically. I would almost rather be that sick person. I am depressed all the time don't want to be seen by my friends. I work out like crazy, watch my calorie intake and the weight continues to climb. I am on prednisone for life and am learning to live with the extra weight and all the other side effects it causes...lucky me I seem to have them all!!! I am struggling....

I was diagnosed with crohn's disease 80% of small bowel in 2007, by 2008 I was obstructed despite the high doses of steroids, and my bowel perforated , I became septic, I had to fight to live, until after living on a picc line for two months, when I became a ER surgery, lost 2ft of small and 1ft of large, within a few months I was active again, and my female origins were messing up, Xmas 2008 I had everything except left ovary removed, cancer pre cells, uterus fell apart, was then weaned off oral steroids, and started on I'VE Remicade with I'VE steroids, have been on it ever since I now get it every 4 weeks, since my bowel surgery I have been diagnosed with , inflammatory and non inflammatory arthritis in both hips both feet and my ribs, fibromyalgia from head to toe, and chronic fatigue syndrome, and hypothyroidism, with a active history of mild asthma, psoriasis , eczema, migraines, basically my body is trying to kill itself lol
But since exercising regularly, I feel functional, my body has a new normal, and the more activity I do no matter how slow I do it the better I feel, don't give up. Keep going. Know your limits. Listen to your body NOT your mind, my brain says no it will hurt and make me tired, I do it a little at a time , and if it wears me out I rest and try again later, I found table top pedals from Walmart helped me build up strength and stamina by pedaling with my hands and my feet while sitting on couch watching tv to distract me. Now I can do circuit training at the gym and walk a mile and swim slow laps. I will be honest, if I slack off, it feels like the longer I slack the closer to starting over I get, good luck everyone!!

I am 35 (I think) 1978 lol I get the steroid in a big dose every 4 weeks with my iv Remicade, which I've been doing for almost 5 yrs, I have Crohn's , eczema, allergis dermatitis , extrinsic asthma , fibromyalgia , chronic fatigue syndrome , inflammatory & non-inflammatory arthritis in both feet both hips and my right rib, bone spur along my cspine, chemical depression, mild OCD, General & social anxiety, hypothyroidism , and major adhesions all over my abs from all my surgeries, which causes major sharp pains in my ab muscles at times from activity as small as standing up, never know when that's gonna hit , but I am a happy person, have a sense of humor, two kids 16 yr old boy and 8 yr old girl, a great husband who spoils me , a dog who is a Maltese named Jax, a guinea pig named snowball. I find I have to do massive amounts of cardio to lose more than a few lbs, with all the meds I take plus the steroid it's like hiking up a mountain with a bungee cord pulling from behind.

Hello, its so scary reading all the above posts. I have a lung condition for which I have been put on this drug just a week back. I have decided I am NOT going to put on weight. Tell me if I can keep my calories under check and exercise at the same time, can't get do it? The insatiable hunger hasn't attacked me yet. And fortunately my breathing is not effected so I can do both.