Hyperthyroid

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metalloz
metalloz Posts: 77 Member
I have been having consistent hairloss over the past three years however the doctors have not been able to help me. My thyroid results consistently came back as borderline over this period, with my TSH around 0.3 but the T3/4 within the appropriate range.

My last blood test put my TSH at 0.13 so I was prescribed 5mg or methimazole to take daily. I have handfulls of hair coming out now and my scalp is very visible...I can't hide it anymore. I have been taking the medication for 5 weeks. I have noticed I am thinking more clearly. The chemist didnt only had carbimazole, so I am taking that as they said it was the same.

I have no antibodies and did an uptake scan which came back fine. I do however have nodules on my thyroid.

Should I even be on this medication? I really hate the fact that so much hair is coming out...also all the stories about people gaining 50 pounds after a few months. I have been eating at a calorie deficit and exercising for 6 weeks however my weight and measurements remain the same.

The only thyroid symptom I have had is hairloss, tiredness and not being able to think clearly.

I feel so sad about my hair. I just don't know what to do.

Replies

  • shvits
    shvits Posts: 249 Member
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    I was on that med and also lost hair. I stopped med and had surgery where 1/2 of my thyroid was removed. My surgeon never takes out all of the thyroid, but prefers to go back a 2nd time if needed to remove the rest as he feels it is too dangerous to remove it all for hyperthyroidism. I could have had radio active iodine, but am allergic to iodine. Happy did not go the radio active route. That med apparently helps for a while, but not a lasting fix. You have to decide how much hair you want to loose and look at options for treatment that you would prefer.
  • metalloz
    metalloz Posts: 77 Member
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    I can't lose anymore hair...I don't have much left. My endo knew I had hair loss and failed to tell me it would get worse.

    I thought getting my levels fixed would stop my hair falling out, not make it worse. Was it definitely the medication causing your hair loss?
  • epiphany29
    epiphany29 Posts: 122 Member
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    I am surprised the radioactive iodine doesn't work consistently. I was treated with that 25 years ago with no relapse.

    I am not a fan of methimazole, and I thought carbamezole was longer acting. Too many side effects, and monitoring issues.

    Call your doctor. If you are not seeing an endocrine (preferably thyroid) specialist you should.

    Good luck.
  • toddka1
    toddka1 Posts: 171 Member
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    I have read and been told that RAI is a permanent fix. I was off the charts Hyperthyroid with Hashimotos. First tried methimazole for about 6 months, then developed an allergic reaction to the medication.

    I don't recall the medication making me lose my hair, I recall the medication helping that issue, but my other symptoms were much worse than the hair loss.

    I underwent RAI. By doing an uptake test, they try to correctly guess the dosage to kill off just enough of the thyroid to knock you back into normal, but most of the studies show that usually lasts about 10 years and you become Hypothyroid. This is the case with my Mother. She had RAI and was "normal" for 10 years and then went underactive. She actually made the American Journal of Medicine because at the time, they didn't expect for folks to not need replacements hormones. Almost always before that everyone became hypo and needed the replacement hormones. They got my dosage wrong and I became hypo immediately following the RAI and will be so the rest of my life.

    My endo said the methimazole or other anti hyper drugs are not permanent fixes as it "puts you back in remission" but you could end up going hyper again
  • donnab737
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    I have read and been told that RAI is a permanent fix. I was off the charts Hyperthyroid with Hashimotos. First tried methimazole for about 6 months, then developed an allergic reaction to the medication.

    I don't recall the medication making me lose my hair, I recall the medication helping that issue, but my other symptoms were much worse than the hair loss.

    I underwent RAI. By doing an uptake test, they try to correctly guess the dosage to kill off just enough of the thyroid to knock you back into normal, but most of the studies show that usually lasts about 10 years and you become Hypothyroid. This is the case with my Mother. She had RAI and was "normal" for 10 years and then went underactive. She actually made the American Journal of Medicine because at the time, they didn't expect for folks to not need replacements hormones. Almost always before that everyone became hypo and needed the replacement hormones. They got my dosage wrong and I became hypo immediately following the RAI and will be so the rest of my life.

    My endo said the methimazole or other anti hyper drugs are not permanent fixes as it "puts you back in remission" but you could end up going hyper again

    I thought Hashimotos was "Hypothyroid" not "Hyperthyroid". I have Graves Disease and that is "Hyperthyroid". My TSH was .0019 Hyperthyroid is low on paper i.e. .0019, Hypothryroid TSH would be extremely high on paper like a really high number. Performing an Radioactive Iodine Treatment (RAI) would only make you "Hypothryoid" which if you were Hashimotos you would have already been. The autoimmune thyroid disease known as Hashimoto's Thyroiditis involves antibodies that attack one's own thyroid. The antibodies usually makes your thyroid work slower, causing what is known as Hypothyroidism.

    Sorry and respectfully, but I don't understand. Additionally, I'm not sure where you are getting your information, but directly after having an RAI most people immediately within 6 weeks become "Hypothyroid" once the Thyroid is ablated (killed). Almost always most everyone becomes "Hypo" and remains "Hypo" for the remainder of there life. Your mother was one of the small percentage of individuals to remain normal. How wonderful for her and I'm terribly sorry that she didn't remain within the normal TSH range and that she eventually went "Hypothyroid". Unfortunately, most of us get there within the 6 to 8 week time frame. She was very blessed for those 10 years.