Endo Friends

jessmastrilli
jessmastrilli Posts: 203 Member
So I have my first laparscopy scheduled for April 10th to diagnosis this evil villain in my body. For as long as I can remember I've always had super painful periods where I had to call of work or school, and if I didn't, I would end up laying on the floor, gripping my stomach and crying from the worst pain. I also get black out spells during the first day of my period. Just recently, about 7-9 months ago, we decided to try and conceive and have been unlucky. But as the months went on, I realized that I would have the worst stabbing pains during ovulation. All my docs believe I have Endo, and reading other people's stories on the internet, I believe I do too. So we shall see on April 10th, but I was hoping to make some friends on here that can relate with me. Feel free to add me or message me :)

Replies

  • Skinny625
    Skinny625 Posts: 79 Member
    Endometriosis is a very painful disease. I had it very many years which I was a stage 4 which is severe. I had 3 lap procedures because I had large masses that would not go away which had caused a lot of discomfort. I had a lot of pain but the only thing that relieved it was strong doses of prescription naproxen. But this also cause me to bleed more and harder to control. A lot of people don't realize it but Endometriosis takes over your body.
    I didn't meet my husband until later in life and we both wanted children. So the last lap I had was as my doc referred it a hale mary to see if it was meant for me to get pregnant. I basically put it in gods hands to whether it was meant to be. It was very hard breaking when it was unsuccessful. My doctor had explained the severity of continuing the way I was that I would be better off with a total hysterectomy. It took a lot of back and forth. I had my surgery in January 2013 and it was very hard at first but I started to realize how much it took over my life especially with my immune system. When I had the surgery they found that the endometriosis had take over and mangled my intestines and colon. I keep thinking to myself everyday how much better I feel. But deep down my heart it hurts that we are not able to have children naturally as I think about it every time I am around a baby.
    I wish the best of luck to you and pray that things workout for you. If you have any questions feel free to message me.
  • LexxyV
    LexxyV Posts: 60 Member
    Let us know how surgery went and how you are feeling