Anyone take cytomel?

caro1275
caro1275 Posts: 198 Member
Hi,

My endocrinologist started me on cytomel today. I am going to be taking it with my synthroid 50mcg. We are starting the cytomel at a low dose at first (5mcg) and will raise it if needed.

I was just curious if there was anyone who could share their experience with this medication? Anyone take both cytomel and synthroid?

I appreciate the feedback!
Caro

Replies

  • go2grrl
    go2grrl Posts: 190 Member
    After I lost my gland nearly 3 years ago, I started on synthroid and after about a year got my endo to add cytomel. And then we just kept raising and raising every two months for another year. Nothing made a difference. I ditched the synthetics for natural dessicated thyroid meds about six months ago and still not much of a difference. That said, my hypothyroid symptoms are minimal so my expectations are low. But I would also say that adding cytomel has got to be better than synthroid alone.
  • Owl_Green
    Owl_Green Posts: 99 Member
    Hi Caro!

    I'm taking 88 mcg Synthroid and 10 mcg Cytomel. My endocrinologist started me at 5 mcg once a day, but that didn't seem to do much so now I take 5 mcg twice a day.

    I was on Synthroid only for the first few years. Like you, I'd have the dosage increased but still felt bad.

    I think the meds and the diet are working together well. I've lost 30 pounds in the past 6 months and I'm finally starting to feel better, and feel like myself.

    Here's the diet - I am gluten free, caffeine free, don't eat white rice or white potatoes, don't eat corn or peas or bananas, and I was dairy free for the first month or two. I also take lots of vitamins and a probiotic.

    Hope this helps.
  • caro1275
    caro1275 Posts: 198 Member
    Thank you both so much for responding!! Can you tell me why you don't eat corn, bananas caffeine and etc. Do they affect the thyroid?
    Thanks again!
  • Owl_Green
    Owl_Green Posts: 99 Member
    I have adrenal fatigue in addition to the hypothyroidism (and nodules) and he told me it's something about the nature of the sugar/starch in those foods that interferes with the thyroid-pituitary-adrenal axis....yadda yadda technical stuff.

    Basically, too much sugar keeps the hormonal systems from coordinating their maintenance of your body's functions.

    The plan sounded awful at first but it's really not so bad. I do still have issues with wanting sugar, though, but it's been going in waves and I think it will get better over time.
  • ashleyapplewhite
    ashleyapplewhite Posts: 83 Member
    Hi Caro!

    I'm taking 88 mcg Synthroid and 10 mcg Cytomel. My endocrinologist started me at 5 mcg once a day, but that didn't seem to do much so now I take 5 mcg twice a day.

    I was on Synthroid only for the first few years. Like you, I'd have the dosage increased but still felt bad.

    I think the meds and the diet are working together well. I've lost 30 pounds in the past 6 months and I'm finally starting to feel better, and feel like myself.

    Here's the diet - I am gluten free, caffeine free, don't eat white rice or white potatoes, don't eat corn or peas or bananas, and I was dairy free for the first month or two. I also take lots of vitamins and a probiotic.

    Hope this helps.

    100% agree with this. I follow this same diet (roughly) and seem to manage my symptoms well. I'm on 30 mcg of cytomel and 125 of tirosint.....I also burn roughly 800 calories a day from exercise.
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    My endocrinologist told me I can eat anything I want. I found I'm less hungry when I use MFP's protein & fiber goals as minimums, and ignore carbs & fat. It will take trial & error to find what works for you.

    Take Synthroid on an empty stomach (at least 2 hours after eating or drinking anything but water) with a full glass of water. Wait one hour before eating or drinking anything but water, and wait at least 3 more hours before taking any supplements (vitamins, minerals, or fiber).

    Take Cytomel at least 4 hours before or after taking iron supplements (such as multivitamins). Cytomel has a short half-life, so my endocrinologist has me take it every 12 hours. I take Synthroid & Cytomel in the morning, supplements at lunch, and Cytomel again in the evening.
  • Lose4Moi
    Lose4Moi Posts: 3 Member
    I used to be on Synthroid for over 20 yrs (diagnosed in my teens - now in my 40s) and my doc kept badgering me about my weight. Finally after showing her food and exercise journals she agreed that something was up and we added Cytomel slowly increasing from 5 to 25 over the course of almost a year. It helped me lose only about 7lbs in total.

    I caution you to be careful with the Cytomel and watch for side effects. I actually ended up going to the ER because I started getting heart palpitations. The Cytomel had caused a change from hypo to HYPERthyroidism. I was having trouble sleeping, sweating during the day and feeling anxious for a couple of months before the palpitations and wrote it off as stress. As soon as I got the palpitations I had hubby dropped me at at the ER.

    Now I'm only on Synthroid 88mcg and feel AWFUL. My levels have been tested by my primary and a well-known endo in the area and both found them to be normal. I've gained 15lbs since August, I try to work out but am always tired, noticed more hair loss and super moody (poor hubby).

    Good luck to you and I hope that the combo of Synthroid and Cytomel work to your benefit. Just keep an eye out for side effects or bad changes in your body.
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    Synthroid is synthetic T4. Most American doctors refuse to prescribe Cytomel (T3) because the human body can convert T4 to T3. On Synthroid my T4 & TSH improved, but my T3 is still really low. Even so, it took me 20 months to persuade my endocrinologist to prescribe Cytomel.

    I have my blood drawn every 3–4 months, and my endo increases my meds. It's been 2 years, and I'm still hungry & fatigued and I still have brain fog.
  • First of all, yay for your doctor testing your free T3 instead of just your TSH! My doctor had put me on Cytomel because of my free T3 being in the lower range (it should be in the upper 25%) and my energy level was so low. I too experienced heart palpitations and what was happening was my t3 would SPIKE right after taking it and then i would crash! So...I finally sucked it up and went to a naturopath. She prescribed me "timed released" cytomel! HUGE difference! Unfortunately my insurance doesn't cover it because I have to get it at a compounded pharmacy, but....the difference it made in my life....I would pay anything for it!
  • Psychgrrl
    Psychgrrl Posts: 3,177 Member
    The cytomel really helped me. I take 20 mg/day. Be sure and take it when you get up in the morning--it's a fast acting drug and leaves the boy quickly.

    My Free T3 was really low, but it was still technically enough to function. My doc prescribed it because while the medical community is mixed in its validity, there are several good studies showing it greatly improved patient quality of life. Which it did for me.

    Hang in there--you'll find the right med combo!
  • shvits
    shvits Posts: 249 Member
    I take 5mg. cytomel in A.M. and 2 1/2 mg at about 1 P.M. It keeps me going. Makes a big difference with energy---which I have very little of due to another disease. I still frequently nap in the afternoon. I LOVE my cytomel.
  • Thorbjornn
    Thorbjornn Posts: 329 Member
    I take 125 mcg of generic levothyroxine and 25 mcg of liothyronine (generic Cytomel. That's actually the equivalent of 225 mcg of levothyroxine, but I do not think I convert T4 to T3 very well. I read that men generally don't convert it well.