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I hear the message that exercise will make you feel better but with chronic pain, I don't think that's true. And I can't figure what's appropriate when. I can do yoga everyday but cardio can either make me feel better or make me feel worse... a lot worse. Has anyone figured out how to gauge your symptoms and adjust accordingly? I'm so frustrated. I did a half hour of aerobics one day this week, not thinking it would be a problem and am in so much pain. Other days it's completely within my abilities.

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  • bvifun
    bvifun Posts: 404 Member
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    I wish I had an answer for you. But I must say, after 26 years, I still have not figured this out. I am really impressed that you are managing to do yoga every day. Four years ago I was able to do regular yoga but today all I can do is restorative yoga once or twice a week. One doctor described living with pain and fatigue as living in a glass box. You must never push yourself all the way to the limits of your box but the problem is that the walls are made of glass and we can't see them. I know this is not much help but just know that you are not alone. There are many of us trying to find this right balance in our lives while the pain and fatigue change day by day.
  • LadyWeaselofVT
    LadyWeaselofVT Posts: 77 Member
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    I appreciate your response. I get angry at myself when all of this pain follows exercise, feeling like somehow I should know better but your comment reminds me that it's more complicated than that.
  • SharonNehring
    SharonNehring Posts: 535 Member
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    My only suggestion is to go very slowly, start at 10-15min every day and do no more even when you feel good. Gradually increase by 1-2 min a week. When you start feeling increased symptoms afterwards, then back it down by a few minutes again.

    It's painstakingly slow, but you should gradually find that sweet spot of how much you can do without pushing too far.
  • EllieB_5
    EllieB_5 Posts: 247 Member
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    Depends entirely on what kind of pain it is. Is it something like fibro where the pain does not signal injury? Then push yourself as hard as you can. Is it arthritis or some other pain that DOES signal injury? Then exercise until it starts to signal injury and stop. (My signal of injury is a sharp, stabbing pain vs the constant aching pain.) Source: the medical director at our Health Science Center's pain clinic.
  • andreyadonna
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    Depends entirely on what kind of pain it is. Is it something like fibro where the pain does not signal injury? Then push yourself as hard as you can.

    I feel a little off arguing with a statement made by the director of a pain clinic, but as a fibro sufferer myself, that statement is so dangerous. I could push myself as hard as I can, but if I push past that invisible line, I'll be laid out for days. It's about a balance of exercise. Not too much, not too little. If you push yourself to the wall, you will lay yourself out.
  • LadyWeaselofVT
    LadyWeaselofVT Posts: 77 Member
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    Depends entirely on what kind of pain it is. Is it something like fibro where the pain does not signal injury? Then push yourself as hard as you can.

    I feel a little off arguing with a statement made by the director of a pain clinic, but as a fibro sufferer myself, that statement is so dangerous. I could push myself as hard as I can, but if I push past that invisible line, I'll be laid out for days. It's about a balance of exercise. Not too much, not too little. If you push yourself to the wall, you will lay yourself out.

    I have the same issue with the invisible line. I can never tell at the time when I've passed it and I pay. Last time I did it, I was not only in a lot of pain but felt flu-ish too. It really set me back and made me feel frustrated and depressed.
  • Lisacare
    Lisacare Posts: 40 Member
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    If you find an answer to this please let me know! I have the same problem. I was doing really great, lost 50lbs, eating well, and doing hot yoga on a regular basis. It was amazing. I met with some serious health issues that included 5 months worth of high does sterioids. I ended up with horrible eating habbits agian and lost my ability to exersise. I only gained abou 15 pounds, but I now feel unhealth, sluggish and in pain all the time again. I feel like I am back to square one. I keep trying to add the exercise back in but every time I do i end up crossing that line, than I can do nothing for day's. I know slow and steady, but patience isn't one of my stong suits. LOL. Hopefully with the support of each other we can get to were we are all going :) Happy and Healthy ville!!!!
  • EllieB_5
    EllieB_5 Posts: 247 Member
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    For fibro sufferers:

    I was originally diagnosed with fibro; it has since been altered to central sensitization, myofascial pain syndrome, degenerated discs, Willis-Ekbom disease, and arthritis. Yes, mofo'ing arthritis was originally filed under fibro. I remember full well the pain of lying in bed, the mere weight of my joints on the bed was unbearable and the weight of a blanket on top of those joints was worse than hell. Having been PROPERLY diagnosed now, I have meds and a machine that can treat the pain effectively (zero opiates btw). Even if you don't have arthritis, it is entirely possible you have myofascial pain or even myofascial pain syndrome; those and "fibro" go hand in hand it seems. Myofascial pain syndrome gives me that invisible line some of you have spoken of, being properly treated for it means I can go beyond that invisible line without being bed-ridden after. In fact, the only line I need to deal with now is the arthritis; even the central sensitization is being contained. Let me assure you that going beyond that invisible line of MPS is reducing the effect it has on my body. My calves and feet bottoms no longer hurt, the pain in my upper arms has decreases significantly, and the hard-as-rock muscles in the shoulder have begun to loosen up a little.

    Now I'm going to be a complete @sshole. I have, over the years, visited many chronic pain/fibro forums in an attempt to get help dealing with my chronic pain. I left each and every one of those groups because I saw the same thing over and over again: ppl complaining about their suffering but not willing to do anything real to get it under control. No matter how many science articles I posted to back up what my specialists say, these ppl all had excuses as to why it just wouldn't possibly work for them. A large amount of my threads trying to help ppl who claimed they wanted help went ignored. For the most part, these forums were there for ppl to whine about their suffering, and that's it. I'm starting to see that here. I've seen others post articles about new insights (and thus possible new treatments) for idiopathic pain (aka fibro) and they have gone largely ignored. Same for any time I try to tell ppl that your fibro may in fact be something else that is entirely treatable and to not let yourselves be swept under the rug and forgotten. It goes completely ignored as though ppl WANT to be labelled as fibro and continue taking their pain pills and *****ing (opiates actually make fibro worse, btw). Ppl ask for advice and anything that isn't simple commiseration gets followed with all sorts of excuses and but's.
    I feel a little off arguing with a statement made by the director of a pain clinic, but...
    exactly, "but". Don't listen to the man who has dedicated his entire career to solving the mysteries of pain, and certainly do not listen to his patient who has taken all his advice and thus reduced the pain to manageable levels. Obviously neither of us know *kitten* about dealing with pain.

    I am so sick and f*cking tired of the *kitten*, and I am so done with this group. If you would rather whine and cry about your *syndrome* and how much pain you are in, and how you can't do this or that, and in general look for sympathy instead of solutions, by all means have at 'er. But be f*cking honest with yourselves about it. Don't look for sympathy under the guise of wanting help, you're wasting the time of the ppl who actually want to help.
  • deeschange
    deeschange Posts: 186 Member
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    Thanks for sharing this information. I am going too look into it further...recent purchase if book about mayo fascias pain and how to deal with it...specific exercises and techniques tondealnwith trigger or pain points. I certainly would like relief from feet and shoulder and mid and upper back and neck pain without the side effects of more meds.
  • Thezestiest
    Thezestiest Posts: 37 Member
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    Depends entirely on what kind of pain it is. Is it something like fibro where the pain does not signal injury? Then push yourself as hard as you can. Is it arthritis or some other pain that DOES signal injury? Then exercise until it starts to signal injury and stop. (My signal of injury is a sharp, stabbing pain vs the constant aching pain.) Source: the medical director at our Health Science Center's pain clinic.


    Even if pain does not signal injury, it can STILL raise your blood pressure if you put your body under stress by "pushing as hard as you can". That's a good way to have a stroke or a heart attack especially if you're overweight and used to a more sedentary lifestyle.

    My pain has raised my usually normal range blood pressure sky-high in the past. Then, I feel lightheaded, dizzy, and nauseous. I'm pretty sure i should stick to easing into exercise rather than pushing full force and making myself feel worse.

    Fibro is still not well understood. Doctors can't agree if it's neurological (I vote yes), rheumatological, or auto-immune disease. I'd rather study many articles than take the advice of any one doctor...but that's just me.
  • aegira
    aegira Posts: 204
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    Don't listen to the man who has dedicated his entire career to solving the mysteries of pain, and certainly do not listen to his patient who has taken all his advice and thus reduced the pain to manageable levels. Obviously neither of us know *kitten* about dealing with pain.

    I am so sick and f*cking tired of the *kitten*, and I am so done with this group. If you would rather whine and cry about your *syndrome* and how much pain you are in, and how you can't do this or that, and in general look for sympathy instead of solutions, by all means have at 'er. But be f*cking honest with yourselves about it. Don't look for sympathy under the guise of wanting help, you're wasting the time of the ppl who actually want to help.

    I'm really sorry you feel this way BUT what works for you may not work for others. I am really happy for you that you have found a doctor you believe in and trust, however he is only one in a whole slew of professionals treating these disorders and his opinion is more than likely not the same as (for example) my specialist pain doctor. Also, as you said, it is YOUR pain, it is not MY pain, you are unique, one of a kind (as am I) we both think differently and feel differently and so it would make sense that we both react to different treatments.

    For example: A lot of people love summer weather and feel great relief with their arthritic pain BUT for me summer is a season I dread and suffer greatly with pain during the long Australian summers. Winter is fantastic (for me) my hands move better the pain is less and I can exercise for longer, BUT that's just me :wink:

    I am in this group of wonderful people to share and learn and yes on those really really bad days perhaps I do seek an understanding sympathetic ear. BUT I am honest with myself ever single day especially in regards to this dis...ease and quite honestly I can do anything I darn well want, it may just need to be done differently and on some days a little slower or even postponed BUT it does and it will get done, I've lost 46kg doing it my way, funnily enough it works....for me :wink: :wink:

    Have a lovely day people, smile, life really is worth living :flowerforyou:
  • knoelledi
    knoelledi Posts: 91 Member
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    I know this is a late post but I'm new to the boards. Here's my take on it. When I trained with the right people, I succeeded in exercising like an athlete. At one point, I was training along side of a Canadian Football League player (I of course was doing lower weights but same exercise). I had days where either my fibro or endo would act up. I would still go to the gym and my trainers would work on stretching and even some active release therapy. Some days, all I would do is a foam roller but a least I was there (and complaining all of the way). I'm now back at the gym but not a one I really want to be because there doesn't seem to be that in our little town.
  • MaryRhielly
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    Hi - I'm new to the site and to this group. The only thing I've found that consistently gives me relief is being in the water - I used to be able to do deep water aerobics twice a week but in recent years found that I'd end up far too sore later in the day from the strain of it. Now I do some lighter water work, even just paddling around, and it really relieves the pressure from my muscles and joints at least while I'm there. I'd live in the pool if it was possible! Some days I can't walk because my ankles just don't cooperate but if I can make it to the Y and get in the pool then I know I'll feel better, at least for a bit. Fibro makes our weight loss such a complicated battle - all I can say is you have to look at each day like a pregnancy: No two are the same. What worked on one will not necessarily work on the next. Find what helps in the moment and hold on to it!:happy:
  • Thezestiest
    Thezestiest Posts: 37 Member
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    Yes, being in the water helps me as well - especially if the water is warm. I did physical therapy in the water, once, and loved it. I could do so much more while in the water. It IS easy to overdo it, though, because you won't feel it till later.

    Unfortunately, I don't have access to a pool very often. :(
  • Kaelakcr
    Kaelakcr Posts: 505 Member
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    I personally experienced pain relief when I was working out pretty rigorously 4 or so days a week. However, I broke my foot and it hasn't healed, despite it going on 5 months or more now. I just had x-rays and testing done yesterday, and I haven't gotten my results. It's rather frustrating. I also found out that I have low estrogen, which is probably contributing to all of this. Sigh.
  • lms0520
    lms0520 Posts: 17 Member
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    Hi all, I am new to this group as of today. I have had Fibro for 9 years now and is it is to say the least....tricky. One of my physicians explained to me that exercise is a must for me with the Fibro. However, she said first we had to get my muscle spasms and other symptoms under control. She started me on a supplement called BIO-CMP and within a couple of weeks my muscle spasms were reduced significantly. You can find this supplement online for about $12.00 -- it is a combination of calcium, magnesium and potassium...all ingredients that help your muscles function as they should. I started with 6 tablets a day for two weeks and have now been taking 4 tablets a day for years. If I do not take them for a week then I am right back to severe muscle spasms. It greatly reduced the painful rock hard muscles in my shoulders and neck as well. When I began exercising again I took it very slowly. I knew I could easily get on the elliptical and go for 30-45 minutes. However, if I did I could be laid up in bed for the next week. So I began by only doing 5 minutes and gradually increasing from there. For me, there are some days where my body is letting me know that I need to rest and not exercise on that day. Most days, however, I do 30 minutes on the elliptical and stop only because after 30 minutes my time is better spent moving over to do some strength training. I have been feeling so much better these days. I realize that I will always have to deal with the Fibro and I am constantly learning new ways to manage my condition. I don't know if this has been helpful to you but I thought I should mention it because I've seen such a positive change in myself. Don't mean to sound like an infomercial but most people have never heard of it and most doctors don't know what it is either when I mention it to them.
  • shaumom
    shaumom Posts: 1,003 Member
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    I honestly don't know if it would translate (I've got another condition, not fibro), but something I did that helped me determine what a good exercise day was, vs. one I really needed to take it easy, was a kind of, well, 5 minute well check a few days in a row (or a couple of weeks, if needed)

    If I started exercising, I paused around 5 minutes and just took stock of how I felt, everywhere. The level of pain, where it was, anything else I was feeling (more out of breath than normal, really good, energized, more fatigued, whatever). And I did that every 5 minutes, I wrote it down, and then I noted how I felt after the exercise, and at the end of the day.

    For me, I started to notice certain correlations between how I was feeling, early on, and how I was doing by the end of it. Now I just sort of pay attention at that mark, and if the harbingers of 'this will not end well' are still present, then I just take a deep breath and go rest, even if I'm not feeling poorly at that exact moment.

    It's helped me a lot in not having so many instances of exercising and just knocking myself flat, and replaced it with more days where, when I exercise, I still feel okay by the end. It's not 100%, because sometimes things just catch you out of the blue, but it might be worth exploring, see if it works for you potentially. :-)