My Name is Hashimoto's
Replies
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I'm so happy to have found this group. Just diagnosed last week with Hashimotos (TSH of 19, unknown level of antibodies since the machine only read to 6500). I have fought, and fought, and fought for the past 5-6 years to get tested for ANYTHING because of my insomnia, irritability, menstrual issues, mental fogginess, etc. I basically got patted on the head and told I was getting older and got tried on every single anti-depressant made with no results. I started the weight gain last September and when it hit 50lbs in 5 months, I finally found a doctor who would listen. Thanks to her, I no longer feel I'm going crazy and that there is something I can do. My primary physician put me on 50mcg of Synthroid (a good friend of mine, a surgeon, told me to double it and he would write my next prescription! LOL!), I'm trying some kelp, selenium, magnesium and starting a gluten free diet. I slept more than 4 hours last night for the first time in over a year, so somethings working.
Happy to be here, and happy to know there's others out there.
Please feel free to add me as a friend.
What a releif to get some sleep!!! I have days here and there with insomnia as well and recently changed the time I take my meds to try correcting it again. So glad you found us
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Just an hour ago I was diagnosed with Hashimoto's diseas. After years of complaining about my brittle hair, my terribel dry skin, my lack of energy, my hip pain. A whole slew of things and being told to just get up and get out. That it was all because I was fat. Reading this, reading all about Hashimoto's just makes me want to cry with relief. Yes, I will have to struggle with this for the rest of my life but now I know why this is happened and have a path to health.
Did anyone else have a really emotional reaction to their diagnosis or is it just me? Like it's not my fault that I couldn't fix myself like everyone else can. Why I can't be as skinny or pretty as other girls. lol.
I cried last week when I got off the phone with my doctor telling me I tested positive for Hashi's. Then I started doing some research and cried in RELIEF also! I'm. Not. Crazy! And I'm not a hypochondriac! My friends and family have been so wonderful and understanding, and when I have said I felt like a hypochondriac they've always reassured me that I'm not. But oh my gosh, I always felt like I was complaining about my health or always had some kind of annoying medical reason for having to bail on most of my social engagements. I had even been dumped on more than a few occasions because I wanted to stay in and relax/watch movies/fall asleep all the time, and never had the energy to go out and be social. (I'm happily married now, to my best friend, and he never makes me feel badly for not feeling up to doing much.)
So happy to have found this group!0 -
Just an hour ago I was diagnosed with Hashimoto's diseas. After years of complaining about my brittle hair, my terribel dry skin, my lack of energy, my hip pain. A whole slew of things and being told to just get up and get out. That it was all because I was fat. Reading this, reading all about Hashimoto's just makes me want to cry with relief. Yes, I will have to struggle with this for the rest of my life but now I know why this is happened and have a path to health.
Did anyone else have a really emotional reaction to their diagnosis or is it just me? Like it's not my fault that I couldn't fix myself like everyone else can. Why I can't be as skinny or pretty as other girls. lol.
I cried last week when I got off the phone with my doctor telling me I tested positive for Hashi's. Then I started doing some research and cried in RELIEF also! I'm. Not. Crazy! And I'm not a hypochondriac! My friends and family have been so wonderful and understanding, and when I have said I felt like a hypochondriac they've always reassured me that I'm not. But oh my gosh, I always felt like I was complaining about my health or always had some kind of annoying medical reason for having to bail on most of my social engagements. I had even been dumped on more than a few occasions because I wanted to stay in and relax/watch movies/fall asleep all the time, and never had the energy to go out and be social. (I'm happily married now, to my best friend, and he never makes me feel badly for not feeling up to doing much.)
So happy to have found this group!
How gret to have such supportive family and friends. Most of us aren't that lucky and suffer alone or in silence for a very long time before family and friends will finally realize it's a REAL issue. You are most definitely NOT crazy!
Glad to have you with us :flowerforyou:0 -
So I'm sitting here reading this and absolutely bawling my eyes out. To make a long story short (or as short as I can), I've lived in six cities in the past fourteen years of my life... and multiple doctors in each city. The first time I sought out a doctor for multiple symptoms I was 18 years old. I had arthritis in my fingers, wrists and elbows. I was getting hives from stress (especially across my throat) and my vitiligo was spreading at an alarming rate. I asked for my thyroid to be tested... my doctor told me that things were in my head. Multiple doctors told me that since then. I've been put on Paxil (treat the anxiety... everything else is fine) and had a horrible reaction to it. I was slapped on birth control for weight issues. I was put on prednisone for hair loss and arthritis... boy, did that only last a day or two... sick as a dog on that stuff. No doctor would listen to me about my thyroid. I was "crazy".
Fast forward to current day... I'm 32 and married for almost a year now. We moved to the New Orleans area last August for the hubby's grad school. My symptoms started to flare something CRAZY. I had given up on doctors because of so many bad experiences but my husband is my rock and encouraged me (persistently, lol) to go see a doctor here. I brought along my last set of blood tests (which are 7 years old) and prepared to battle with myself in order to not get walked all over like before. My new doctor (thank you, God, for such an awesome doctor!) looked over my current laundry list of symptoms, looked at my last bloodwork, looked at me and said "Wait... so when these test results came back in they didn't put you on thyroid medication???" ... cue the tears. Ok, not just a few... but a waterfall of salty teardrops, grossness coming out of my nose and gasping for breath. It was like a huge weight was lifted off my shoulders. With the cycles of symptoms and vitiligo he's 99.999% sure it's Hashimoto's. I go back July 8th to get my current numbers and see what dosage of Armour to start on. It's a torturous wait. The light is at the end of the tunnel. Not that I expect everything to magically be better... I know that it will be a slow chiseling away at an iceberg. But I'm totally okay with that... at least it's getting somewhere!
My name is Heather. Feel free to add me... I'm a great listener and encourager. And I know I'll need encouragement and support too! 0 -
Wow! Just reading everyone's posts makes me feel better and pretty fortunate with my circumstances. I was diagnosed with Hashimotos nearly 2 years ago after being symptomatic for a long time. I also have pernicious anemia now and have to have weekly B12 injections, which I now can do at home. Having 2 autoimmune diseases makes me more susceptible to acquiring another so I try to take good care of myself, eating well and mostly gluten free and not overdoing the exercise. Training for a half marathon and getting to 13 mile training runs completely did me in. Before all this, I could exercise to my hearts' s content and no issues whatsoever. Let's encourage each other!0
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This is great and all me - thanks for posting this! I have been struggling with Hashimoto's for more years then I care to remember
and often can't explain this to family and friends - only someone else who has this can really understand so I figure I'm in good company
Started myfitnesspal a long time ago but was never really as determined as I am now. Read so much on this disease that
everything seems to run together sometimes. I recently gave up gluten and do feel better but want to start eating more healthy
and try to get more exercise.
Any help and encouragement would be very helpful
webweaverlady0 -
Wow...finally...a safe space for talking about his. I have been at my wits end trying to make sense of my physical and emotional problems - which have escalated in the past year to critical mass. I have always been hypo (or at least for the last umpteen years) but then I guess I broke through the meds (compounded, similar to armour) and/or I suspect they were not taking the antibody tests for several years (the thyroblobulin and the peroxidase autoimmune markers). Well, after stumbling into my doc's office a total mess: anxiety, weight gain, edema in feet and ankles, general fatigue and depression...she ran a full test. And not surprisingly there was the hashimoto's diagnosis (can I get some wasabi with that?). I am far from it being under control - I have been given a compounded T3 only - but have not found that the levels are correct yet. However, the edema has subsided a little (for a while I had elephant feet with a tightness that creased the skin and changed the texture of my skin). So I know things are headed in the right direction, just not there yet. The disruption of my sleep patterns (I sleep a few hours and then bolt out of bed a few hours later like I was hit by lightning) plus nagging constipation (which creates a lot of anxiety) are still playing havoc with me. But the good news is (!!!) at least I know what is at the root of the problem, because for a while I was feeling like Job...! It is amazing what a domino effect this one gland has over the rest of the body. Auto immune diseases are responsible for so many other symptoms that can go untreated for years until they take on a life of their own. And western docs (my GP for example, not my gyno who is treating the hashi's) will tell you: oh, that (fill in the blank symptom) is idiopathic - in other words, we don't know why you have (for me) edema, but there's no apparent cause for it. (My GP thinks that because TSH is in normal range that there is no thyroid involvement.) Bottom line is you have to advocate/educate yourself because you start to know intuitively what makes sense. The only part of "idiopathy' that makes sense is the 'idiot' part. One of the things I am doing that might be helpful for others is dry skin brushing - because of the involvement of the lymphatic system (edema/lymphedema) and really, just for general health - stimulating this system can only help support the immune system. Now, if I can only get a handle on the weight issue (I cannot lose an ounce, despite going GF, despite making healthy choices, eating fewer calories, exercising, etc.) I will feel like I'm on the right track again. (I've stopped beating myself up about the weight, but still, I get on the scale and say: "really? you ate well, not a lot of calories, no sugar , no late night snack, no nothing - and still stuck at this weight?") The body is mysterious indeed. Thank you for creating space for these concerns.0
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Wow...finally...a safe space for talking about his. I have been at my wits end trying to make sense of my physical and emotional problems - which have escalated in the past year to critical mass. I have always been hypo (or at least for the last umpteen years) but then I guess I broke through the meds (compounded, similar to armour) and/or I suspect they were not taking the antibody tests for several years (the thyroblobulin and the peroxidase autoimmune markers). Well, after stumbling into my doc's office a total mess: anxiety, weight gain, edema in feet and ankles, general fatigue and depression...she ran a full test. And not surprisingly there was the hashimoto's diagnosis (can I get some wasabi with that?). I am far from it being under control - I have been given a compounded T3 only - but have not found that the levels are correct yet. However, the edema has subsided a little (for a while I had elephant feet with a tightness that creased the skin and changed the texture of my skin). So I know things are headed in the right direction, just not there yet. The disruption of my sleep patterns (I sleep a few hours and then bolt out of bed a few hours later like I was hit by lightning) plus nagging constipation (which creates a lot of anxiety) are still playing havoc with me. But the good news is (!!!) at least I know what is at the root of the problem, because for a while I was feeling like Job...! It is amazing what a domino effect this one gland has over the rest of the body. Auto immune diseases are responsible for so many other symptoms that can go untreated for years until they take on a life of their own. And western docs (my GP for example, not my gyno who is treating the hashi's) will tell you: oh, that (fill in the blank symptom) is idiopathic - in other words, we don't know why you have (for me) edema, but there's no apparent cause for it. (My GP thinks that because TSH is in normal range that there is no thyroid involvement.) Bottom line is you have to advocate/educate yourself because you start to know intuitively what makes sense. The only part of "idiopathy' that makes sense is the 'idiot' part. One of the things I am doing that might be helpful for others is dry skin brushing - because of the involvement of the lymphatic system (edema/lymphedema) and really, just for general health - stimulating this system can only help support the immune system. Now, if I can only get a handle on the weight issue (I cannot lose an ounce, despite going GF, despite making healthy choices, eating fewer calories, exercising, etc.) I will feel like I'm on the right track again. (I've stopped beating myself up about the weight, but still, I get on the scale and say: "really? you ate well, not a lot of calories, no sugar , no late night snack, no nothing - and still stuck at this weight?") The body is mysterious indeed. Thank you for creating space for these concerns.
So glad you found out what was causing your troubles! But Hashi's isn't your root cause. There is something causing the hashi's...and once you find that, THAT is your root cause. For many people it stems from a food intolerance causing issues in your gut which creates permeability in your intestines and wwreaks havoc on your immune system. But the first step to getting better is definitely researching and learning, you are on your way! 0 -
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There is something causing the hashi's...and once you find that, THAT is your root cause. For many people it stems from a food intolerance causing issues in your gut which creates permeability in your intestines and wwreaks havoc on your immune system. But the first step to getting better is definitely researching and learning, you are on your way!
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Ack! Really? Egads! I mentioned food sensitivity test on another thread and got my head bit off...do you recommend that? If so, how does one go about it?
By the way, I want to compliment you and your poetic description of this disease - how multi-faceted it is, it's a real trickster. You managed to 'humanize' it in a way that really helps.0 -
by the way, clearly I don't know how to make something in a quote appear properly in my replies, so please forgive my technical inability!0
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I'm glad to have found this forum. I've just recently been diagnosed as "probable" Hashi, even though my blood tests are within the normal range. I also have RA and Lupus, so I've hit the AI jackpot. ????. Soon after my diagnosis of RA in 2000, I saw a doctor who I ultimately dismissed as something of a quack; he told my my thyroid levels were like those of a 90 year old woman (I was 28 at the time) and he put me on Armor. I had so much going on at the time with my joints and inflammation and everything, I honestly can't tell if the Armor made me feel any better. After about two years, my gyno convinced me to go off the Armor because he said I didn't need it. I was sick and tired of being on so many meds, so I did. Fast forward to now, my RA & lupus are under control and I can walk and do everything I want now, but I'm having all the thyroid symptoms- extreme fatigue, feeling like there's a hand pressing on my throat, dry skin, weight gain, depression, muddled thoughts, etc., etc., ad nauseum. My blood work is still "normal" though on the low end of the range, my antibodies are higher, though still "normal" and the tests don't seem to reflect how dreadful I feel. The only positive test result I've had are a mess of nodules found on ultrasound. None are bigger than 2 cm, and they all look benign, so no cancer worry. I have an appointment with the endo next week to try to convince him to let me try out some meds, because nothing is getting better.
Anyone have any thoughts on meds? Should I try the Armor again, since I was on it once before? Or a synthetic? Anyone else on here dealing with RA or lupus or both in addition to all this thyroid garbage?0 -
Anyone have any thoughts on meds? Should I try the Armor again, since I was on it once before? Or a synthetic? Anyone else on here dealing with RA or lupus or both in addition to all this thyroid garbage?
Wow, that is tricky indeed. Maybe you are just more sensitive in re: to your blood level and AI antibodies than other folks - i.e, what is normal for some, may be high for you. I was wondering if you have considered going gluten-free? Since you are dealing with other AI problems - GF may really make a difference for you. In addition, (and again, this varies from person to person) perhaps adding supplemental iodine may help - (eating seaweed like kelp, dulse or bladderwrack is another way to get it into your system.) My doctor is a believer in adding iodine, while others say stay away. When I get my thyroids checked, I get my iodine checked as well. Just mentioning as it might be helpful for you. Also I would recommend going to an integrative physician. They look at the whole person: not just labs, diagnostics, medication etc., but also nutrition, additional modalities, etc.0 -
Hello,
I wanted to thank you for creating this group and for posting this list, as well as everyone else who commented. I was recently diagnosed with Hashimoto's after several years of unexplained symptoms and medical tests that turned up nothing. More recently I had significant anxiety and a host of odd symptoms that I attributed to anxiety. Anyway, it's comforting to read about so many others who are experiencing similar things, as well as having a place to go to ask a question or get advice.
Cheers! Susan0 -
I'm glad to have found this forum. I've just recently been diagnosed as "probable" Hashi, even though my blood tests are within the normal range. I also have RA and Lupus, so I've hit the AI jackpot. ????. Soon after my diagnosis of RA in 2000, I saw a doctor who I ultimately dismissed as something of a quack; he told my my thyroid levels were like those of a 90 year old woman (I was 28 at the time) and he put me on Armor. I had so much going on at the time with my joints and inflammation and everything, I honestly can't tell if the Armor made me feel any better. After about two years, my gyno convinced me to go off the Armor because he said I didn't need it. I was sick and tired of being on so many meds, so I did. Fast forward to now, my RA & lupus are under control and I can walk and do everything I want now, but I'm having all the thyroid symptoms- extreme fatigue, feeling like there's a hand pressing on my throat, dry skin, weight gain, depression, muddled thoughts, etc., etc., ad nauseum. My blood work is still "normal" though on the low end of the range, my antibodies are higher, though still "normal" and the tests don't seem to reflect how dreadful I feel. The only positive test result I've had are a mess of nodules found on ultrasound. None are bigger than 2 cm, and they all look benign, so no cancer worry. I have an appointment with the endo next week to try to convince him to let me try out some meds, because nothing is getting better.
Anyone have any thoughts on meds? Should I try the Armor again, since I was on it once before? Or a synthetic? Anyone else on here dealing with RA or lupus or both in addition to all this thyroid garbage?
I have had Joint pain for a few years now and tested positive for RA antibodies. I didn't go to a rheumatologist like my doc suggested since I know the first thing they would do is put me on prednisone or some other horrible steroid to mask the symptoms.
By experimenting with elimination diets, I found that milk and gluten are problematic for me. By going gluten free, it reduced my joint pain to almost nothing. I actually doubted myself and went back to eating gluten after 6 months of being gluten free and all the pain came back. So I don't need to repeat that experiment again.
I actually don't tell anyone that I am gluten free because it seems like the latest food fad. It is also vilified on mfp too. However I noticed the improvement in my joint pain, skin and digestion so I am happy to give up gluten with no worries.
Fwiw, I am baking a lot more to satisfy my bread and cookie cravings. Almond flour and flax meal is my friend
I'm on Armour for my Hashis and it has really helped in reducing the excess weight, fatigue and depression, although it took a while to adjust the dosage up to the right level so I suggest being patient with that. I have high antibodies, classic hashis symptoms and thyroid nodules, but tsh is normal.
I am now prediabetic, unfortunately, with elevated fasting blood sugar and impaired postprandial numbers too. So I am also on a low carb diet too. I am finding it more difficult to go low carb than being gluten free.
I have other AI issues. I am hoping that continuing the gluten free diet will help with those in the long run.0 -
Loved that read , most people wont ever understand. I am a 44yr old female , I have been dealing with Hoshi for 16 yrs. I have been an Endo Dr's , Dream.. or Nightmare I am not sure which! lol
In my early 20's I was seen for infertility... late 20's after having Quads. I was seen for Thyroid/ Hoshi ... now in my 40's I am dealing with insulin resistance / pre diabetic..
Trying hard to revamp my life style .. with new Thyroid meds ( as they took my brand off the shelf last spring) Getting on the right low carb diet workout plans.. so I don't become diabetic!! I am still not 100% sold on my Tirosint .. I do know that I don't have heart palpitations... an that is one good thing!
I have been here a month an have no friends! :ohwell: I do find reading the messages have been helpful. I am working on going gluten free.... I eat mostly lean meats, raw veggies an fruits. I do feel better , an my numbers have greatly improved! I am lucky that we live on a farm. We have good meat an eggs!0 -
I'm glad to have found this forum. I've just recently been diagnosed as "probable" Hashi, even though my blood tests are within the normal range. I also have RA and Lupus, so I've hit the AI jackpot. ????. Soon after my diagnosis of RA in 2000, I saw a doctor who I ultimately dismissed as something of a quack; he told my my thyroid levels were like those of a 90 year old woman (I was 28 at the time) and he put me on Armor. I had so much going on at the time with my joints and inflammation and everything, I honestly can't tell if the Armor made me feel any better. After about two years, my gyno convinced me to go off the Armor because he said I didn't need it. I was sick and tired of being on so many meds, so I did. Fast forward to now, my RA & lupus are under control and I can walk and do everything I want now, but I'm having all the thyroid symptoms- extreme fatigue, feeling like there's a hand pressing on my throat, dry skin, weight gain, depression, muddled thoughts, etc., etc., ad nauseum. My blood work is still "normal" though on the low end of the range, my antibodies are higher, though still "normal" and the tests don't seem to reflect how dreadful I feel. The only positive test result I've had are a mess of nodules found on ultrasound. None are bigger than 2 cm, and they all look benign, so no cancer worry. I have an appointment with the endo next week to try to convince him to let me try out some meds, because nothing is getting better.
Anyone have any thoughts on meds? Should I try the Armor again, since I was on it once before? Or a synthetic? Anyone else on here dealing with RA or lupus or both in addition to all this thyroid garbage?
I'm sorry I didn't see this until now!!
I would say maybe try WP Thyroid or Nature Throid over Armour. They did something to change their formulation and it isn't as effective anymore. I personally LOVE Nature Throid.
I don't have lupus or RA, but I do have suspected Celiac (stupid gastro refused to biopsy me to confirm since I didn't have positive blood tests to antibodies, only the antibodies that are made in my intestines). But it is very common to get several AI diseases once the first one settles in.0 -
Ack! Really? Egads! I mentioned food sensitivity test on another thread and got my head bit off...do you recommend that? If so, how does one go about it?
By the way, I want to compliment you and your poetic description of this disease - how multi-faceted it is, it's a real trickster. You managed to 'humanize' it in a way that really helps.
Food sensitivity and intolerance isn't unheard of in us Hashi folks. I'm actually going to get the MRT (Mediator Relsease Test) this month to see what I react to at the recommendation of my Crossfit coach. The test uses your blood to see how it reacts to 100+ different foods and chemicals, I think it's close to 190 different items. I could be wrong. It's pricey, but to me will be worth it to see what I shouldn't be eating. Look into it!
Humanizing this disease really does help since it's mostly invisible. I'm glad you're here 0 -
Hello,
I wanted to thank you for creating this group and for posting this list, as well as everyone else who commented. I was recently diagnosed with Hashimoto's after several years of unexplained symptoms and medical tests that turned up nothing. More recently I had significant anxiety and a host of odd symptoms that I attributed to anxiety. Anyway, it's comforting to read about so many others who are experiencing similar things, as well as having a place to go to ask a question or get advice.
Cheers! Susan
Hello Susan!
thank you so much for the kind words and for joining I'm so glad you're here. 0 -
Loved that read , most people wont ever understand. I am a 44yr old female , I have been dealing with Hoshi for 16 yrs. I have been an Endo Dr's , Dream.. or Nightmare I am not sure which! lol
In my early 20's I was seen for infertility... late 20's after having Quads. I was seen for Thyroid/ Hoshi ... now in my 40's I am dealing with insulin resistance / pre diabetic..
Trying hard to revamp my life style .. with new Thyroid meds ( as they took my brand off the shelf last spring) Getting on the right low carb diet workout plans.. so I don't become diabetic!! I am still not 100% sold on my Tirosint .. I do know that I don't have heart palpitations... an that is one good thing!
I have been here a month an have no friends! :ohwell: I do find reading the messages have been helpful. I am working on going gluten free.... I eat mostly lean meats, raw veggies an fruits. I do feel better , an my numbers have greatly improved! I am lucky that we live on a farm. We have good meat an eggs!
It's not unheard of for folks to suffer for yeeaaarrssssss before getting a proper diagnosis.simply because Dr's like to think they know everything and refuse to run the one simple test we need to know. I don't understand why they act that way, it's not like they pay for the test!!! >_<
Good to hear you are doing well so far. I can't wait to see your success story here some day once you get to your goal.
Welcome to our family 0 -
I have just been diagnosed with Hashimoto's. Doctor says that I have probably had this for my years. I am 51 years old, been complaining of muscle cramps, fatigue, hair loss, cold all the time, ect. for many many years. I am glad that you have this post, lets me see how people deal with it and what I can do.0
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Hashimoto's has been my constant companion for 25 years. So glad to have found this group. Love the poem, the first time I read it tears came to my eyes. So many years of being looked at as different - it helped me to balance myself on my "off" days knowing it wasn't about me so much as my "companion".
Looking forward to reading wisdom that you all have to offer. :flowerforyou:0 -
I have just been diagnosed with Hashimoto's. Doctor says that I have probably had this for my years. I am 51 years old, been complaining of muscle cramps, fatigue, hair loss, cold all the time, ect. for many many years. I am glad that you have this post, lets me see how people deal with it and what I can do.
Hello, it is a tough pill to swallow - especially since it is with you forever. But, having said that - knowing many of us have it in one form or another somehow makes it a little less stressful. So much knowledge is out there.
I have quit all gluten- flour, potatoes, sugar - and I have to tell you I feel so much better. Brain fog has cleared and energy has arrived. Good luck in your quest for better health.0 -
Many people suffer for years silently because doctor's for some reason don't listen enough. Glad you found our group!I have just been diagnosed with Hashimoto's. Doctor says that I have probably had this for my years. I am 51 years old, been complaining of muscle cramps, fatigue, hair loss, cold all the time, ect. for many many years. I am glad that you have this post, lets me see how people deal with it and what I can do.
Welcome!!! :flowerforyou:Hashimoto's has been my constant companion for 25 years. So glad to have found this group. Love the poem, the first time I read it tears came to my eyes. So many years of being looked at as different - it helped me to balance myself on my "off" days knowing it wasn't about me so much as my "companion".
Looking forward to reading wisdom that you all have to offer.0 -
I was diagnosed with Hashimoto's last night. I had elevated TPOab for the last two blood tests. My endocrinologist wants to see me again in 3 months as my TSH and free T4 are supposedly within range, 4.08 and 1.0 respectively. I am fine with that for now because I have tried both Sythroid and Armour in the past when my TSH was 8.8. The numbers lowered (mid 2s) but my symptoms did not and I gained about 30 lbs on each. I have very painful edema that I have been told is not related to the thryoid (or any other function apparently). I was taking a diuretic to help alleviate the water retention but found out last week my kidneys are failing and had to stop. I ate a very high protein, mid-fat, low carb diet because it was what I tolerated and I thought helped with the edema.
I had PCOS and attributed my weight gain, hair loss, and other issues to that. I also had insulin-dependent type 2 diabetes until I lost 98 lbs 4 years ago (Atkins and exercise). 80 lbs are back, unfortunately. I also have a small pituitary tumor that I thought might have some impact.
I was tested 3 years ago and found to have food intorences to all grains (rice, corn, wheat, etc), nightshades (tomatoes, potatoes, peppers, paprika, etc), all dairy, egg whites, caffeine. I also limit fruit because it raises my sugar and I do not want to be diabetic again. Subsequent testing lifted some restrictions, but I immediate became inflamed any time I added any of these foods. I was doing the GAPS diet until I found out about my kidneys. Now I am eating a ketogenic diet. I get my kidneys tested next week.
I do not have most of the symptoms of hypothyroid, but I do have several: inflammation is the worst, followed by edema, constipation, brain fog, and hair loss.
I am seeing a nutrionist/kinesiologist tonight for kidney and thyroid support.
I am so glad I found this group.0 -
:flowerforyou:I was diagnosed with Hashimoto's last night. I had elevated TPOab for the last two blood tests. My endocrinologist wants to see me again in 3 months as my TSH and free T4 are supposedly within range, 4.08 and 1.0 respectively. I am fine with that for now because I have tried both Sythroid and Armour in the past when my TSH was 8.8. The numbers lowered (mid 2s) but my symptoms did not and I gained about 30 lbs on each. I have very painful edema that I have been told is not related to the thryoid (or any other function apparently). I was taking a diuretic to help alleviate the water retention but found out last week my kidneys are failing and had to stop. I ate a very high protein, mid-fat, low carb diet because it was what I tolerated and I thought helped with the edema.
I had PCOS and attributed my weight gain, hair loss, and other issues to that. I also had insulin-dependent type 2 diabetes until I lost 98 lbs 4 years ago (Atkins and exercise). 80 lbs are back, unfortunately. I also have a small pituitary tumor that I thought might have some impact.
I was tested 3 years ago and found to have food intorences to all grains (rice, corn, wheat, etc), nightshades (tomatoes, potatoes, peppers, paprika, etc), all dairy, egg whites, caffeine. I also limit fruit because it raises my sugar and I do not want to be diabetic again. Subsequent testing lifted some restrictions, but I immediate became inflamed any time I added any of these foods. I was doing the GAPS diet until I found out about my kidneys. Now I am eating a ketogenic diet. I get my kidneys tested next week.
I do not have most of the symptoms of hypothyroid, but I do have several: inflammation is the worst, followed by edema, constipation, brain fog, and hair loss.
I am seeing a nutrionist/kinesiologist tonight for kidney and thyroid support.
I am so glad I found this group.
Oh my.... well I am SO glad you found this group!!! I wonder if eating a moderate protein, high fat, low carb diet would be more suitable for you? Not as much prtein for your body to process. I'm not sure how your funds are, but if you could afford it - look into an MRT test (mediator release test). It will test your blood's reaction to a lot of different foods and be able to tell you which foods you react to which would cause inflammation.
Let us know how things work out with the nitruitionist and kinesiologist.0 -
Thanks for the suggestions RoseTears143. I started a ketogenic diet as soon as I found out about my kidneys. I am eating 85/10/5 (Fats/Proteins/Carbs) and loving it. My nutritionist is on board but wanted me to eat a little more protein so I increased my calories. I am still very inflamed but less than if I eat otherwise.
My food sensitivities were initially identified by an allergist in 2011 with skin and blood tests. I am not sure what the tests were called. I saw a kinesiologist last year who confirmed them who I worked with for just under a year with little relief. A nutritionist earlier this year suggested a keto diet but he wanted me to eat a lot of coconut oil. I did not like it, was still inflamed and gave up. I am trying again with the new nutritionist.
I will look into the MRT you recommend. It certainly cannot cost more than the money I spend going from doctor to practitioner to quacks trying to figure out what is causing my pain and swelling only to be told that I am not swollen and I should take medication to relieve the pain.
Thanks again for your support and suggestions.0 -
Love this. It accurately describes what we go through. I actually had Hashi's and Graves disease first and now am hypo with Hashi's. Everyday I'm learning more and trying different things to see what works and what doesn't, but I can tell that when I get stressed, the other symptoms come back with a vengeance.0
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Thanks for the suggestions RoseTears143. I started a ketogenic diet as soon as I found out about my kidneys. I am eating 85/10/5 (Fats/Proteins/Carbs) and loving it. My nutritionist is on board but wanted me to eat a little more protein so I increased my calories. I am still very inflamed but less than if I eat otherwise.
My food sensitivities were initially identified by an allergist in 2011 with skin and blood tests. I am not sure what the tests were called. I saw a kinesiologist last year who confirmed them who I worked with for just under a year with little relief. A nutritionist earlier this year suggested a keto diet but he wanted me to eat a lot of coconut oil. I did not like it, was still inflamed and gave up. I am trying again with the new nutritionist.
I will look into the MRT you recommend. It certainly cannot cost more than the money I spend going from doctor to practitioner to quacks trying to figure out what is causing my pain and swelling only to be told that I am not swollen and I should take medication to relieve the pain.
Thanks again for your support and suggestions.
Well when you word it like that (regarding cost), I completely agree with you!! This quote is usually written on a white board at my chiropractor's office and I love it: "The best doctor gives the least medicines." ~Benjamin Franklin 0 -
Love this. It accurately describes what we go through. I actually had Hashi's and Graves disease first and now am hypo with Hashi's. Everyday I'm learning more and trying different things to see what works and what doesn't, but I can tell that when I get stressed, the other symptoms come back with a vengeance.
It's a steep elarning curve to see what works for your individual body, and can be very frustrating. But every day is another chance to see if what you are doing is either hurting or helping. Every day is another chance to fight it off. You may lose battles here and there, but if you never give up you will win the war. :drinker:0 -
I found a nutritionist who is in network for my insurance so I only have to pay for the MRT itself, the blood draw and a small co-pay for counseling. I am so looking forward to finding out what I can eat. Kidney results tomorrow. My next step is finding a holistic doctor with experience treating Hashimoto's Thyroiditis. I really want a complete work up of my thyroid and pituitary hormones. I had low T3 in the past and have a pituitary tumor. No one has tested my T3 levels in years. When it was low, I was told that it was nothing to worry about so I didn't.
Chasing butterflies. I was bitten once by a butterfly a long time ago and told that was not possible because they do not have teeth. Now, we hardly see any...0
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