Just diagnosed with Hashimoto's

Hi Everyone! I was just diagnosed with Hashimoto's today. Apparently I am asymptomatic and had no idea until my physical appt last week (it had been over 15 years since my last one). My initial blood work showed my TSH level was really low at .006. Upon further testing my T4 and T3 levels were normal but my antibodies was high at 1.7. I have to wait for my insurance to approve seeing an Endocrinologist. I have been overweight all my life and finally starting taking care of me by making lifestyle changes including being a lot more active and watching what I eat. I have lost almost 45 lbs in the last year which I am proud of but still have about 60 more to go. I am also borderline Type 2 Diabetic. Other than my Vitamin D levels being extremely low all the other results came back good. I am feeling kind of overwhelmed with my diagnosis and what the next steps will be...and feedback/information would be greatly appreciated. Thanks and have a great day everyone :-)

Replies

  • kcvance
    kcvance Posts: 103 Member
    Two great, great resources for me have been:

    http://thyroid.about.com/
    http://www.stopthethyroidmadness.com/

    I read Mary Shomon's book 12+ years ago and I believe that it literally saved my life.

    No matter what your doctor tells you, treatment for Hashi's is NOT a one-size-fits-all deal. What works for one person (synthroid) may do absolutely nothing for someone else. Hopefully you have a doctor that will treat *your* symptoms and not just look at your lab numbers and pronounce you "fine". Or tell you that whatever issue you are having *CANNOT POSSIBLY* be related to your thyroid (http://hypothyroidmom.com/300-hypothyroidism-symptoms-yes-really/).

    Also, you need Vitamin D to properly convert and use thyroid hormone, along with some other vitamins and minerals (be careful on how soon after taking your meds you take other supplements!!!). There are quite a few foods you should avoid (soy, especially). Some of us have done well on low or lower carb diets, or going gluten free. Others are fine eating anything they want but just counting total calories.

    I personally have issues with blood sugar crashes and feeling just strange after eating, so I try to keep my carb intake down (going to ask to be tested for diabetes at my next dr. appointment on Tuesday). I am finally being correctly medicated (I feel great!), but find that my metabolism is still just a bit slower than I think it should be. I work out every day, and take a ton of supplements - neither of which I am totally crazy about, but the alternative (being overweight and feeling like crap on a stick) is not really working for me.

    Best of luck to you. Send me a friend request if I can be helpful.
  • froggiejen
    froggiejen Posts: 14 Member
    Thanks for the reply and information kcvance!

    I know what you mean about feeling like crap on a stick and feeling weird after eating. I swear since my diagnosis I have been driving myself crazy...I feel like I went from asymptomatic to hypercondriac...every little thing has got me worried..grrrr :-/ I am anxious to know what needs to be done and what I need to do etc.. I did start taking Vitamin D supplements (5000 iu per day) which I started last week. The referral has been approved thru my insurance to see an Endocrinologist and I have my appt on 10/1. My regular Dr has me taking 5000 iu of Vitamin D daily which I started last week....and will retest my bloodwork at the end of November.

    I am anxious to know what needs to be done and what I need to do etc..
  • allergictodiets
    allergictodiets Posts: 233 Member
    Good luck with finding a good endocrinologist. Your regular doctor seems to be making right decisions as well - taking Vit D helped me a lot!
    I take the following supplements regularly:
    - iron ( I tend to be borderline anemic no matter how much iron I take )
    - Vit D ( 1000 IU in sommer, 2000 IU in winter )
    - Omega 3 supplement
    - Vit B complex ( I do not eat much meat )
    and the following from time to time:
    - L-Carnitine
    - Rhodiola extract
    - Turmeric extract
  • Betsyx72
    Betsyx72 Posts: 19 Member
    I had a recent diagnosis too. How much did you drop your carbs? To what # of grams/day or to what % of the macros? I've had some success with cutting out gluten, but still having symptoms and I'm hoping other changes - like going lower carb - may help.
  • allergictodiets
    allergictodiets Posts: 233 Member
    I usually eat 45-50% carbs, 20-25% protein and the rest is fat. I have never tried a low carb diet, it would not be sustainable for me.
  • Betsyx72
    Betsyx72 Posts: 19 Member
    Ok I'm at 45% and 20% protein and 35% fat (try to keep bad fats low though). The amount of protein is definitely more than what I was eating before I started MFP. I think this is helping me have a bit more energy/strength, but of course doesn't solve all of those problems. I may be able to go down 5% in carbs, but what is considered low carb? What %?
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    I get all my thyroid advice from the NIH and my endocrinologist. They both say eat anything you want.

    You have three treatment options: Armour (dessicated pig or pig & cow thyroid glands), synthetic T4 (Synthroid), or a combination of Synthroid & Cytomel (synthetic T3). A good endocrinologist will adjust your dosage(s) based on both blood tests & symptoms.
  • lindsey1979
    lindsey1979 Posts: 2,395 Member
    Here is my experience -- I too have Hashi's. And I've recently learned how important keeping my DHEA levels up are. So, I'd ask did your doc look into the accessory issues as well -- Vitamin D, magnesium, iodine, A1C (insulin resistance), DHEA (and other adrenals), liver (I don't remember what those are specifically).

    After 10+ years and 5 docs (including 2 endos) telling me I was fine or "within range", I finally shelled out the dough to pay out of pocket for a thyroid specialist. And, man, do I wish I'd done that sooner. I had no idea how little my previous docs really knew about thyroid. For me, my liver levels were fine, my DHEA, Vitamin D and magnesium was low and I had insulin resistance at pre-diabetic levels (and I was only 25 lbs or so overweight at the time). If you don't get your hormone levels in line, more than just the thyroid, you can still experience many of the same symptoms.

    I learned this the hard way with my DHEA levels. I don't know why, but I just stopped taking it at some point -- I didn't realize how important it was. Then my weight loss totally stopped -- I felt a little fatigued and sometimes cold, but nothing like before, so I figured I was just having a flare up from Hashi's. My doc even upped my thyroid dose a little. Then, the most recent tests came back and I was voicing my frustration on how my weight loss inexplicably stopped (exact same calorie deficits and exercise regime) and my DHEA was low. My doc was like " What is up with you DHEA -- have you stopped taking it?!!" Yeah, sorry. I started taking it again and the few minor symptoms that had come back went away again and the weight started falling off again in line with my calorie deficits.

    The only caveat I have to the thyroid diet is that if you have Hashi's there may be certain things that trigger your auto-immune response. Common culprits are gluten (wheat/grains), casein and lactose (dairy) and certain cruciferous vegetables. I personally have no problem with dairy, but I do have symptoms again with the grains, so I generally stay away from them. Since doing so, I've had far fewer flare-ups.

    As for calories/macros, I can't say exactly. I know what has worked for me personally really well is an IF regime (5:2 worked well), but now I'm doing a carb cycling program called lean gains. I generally still eat very Paleo/Primal-like, but I do so in a leangains fashion which means I have no carbs except green leafy vegetables on non-lifting days and then I have a lot of carbs on lifting days (to aid in muscle recovery). I keep my protein the same throughout (which for me is 1.2 g/LBM) and the fat fluactuates with the carbs. More fat on low carb days, less on high carb days. I'm sure it's not the only way, but it's the way I've found that works really well for me. I also lift 3x week and walk a lot of miles (got a treadmill desk at work -- so I'm putting in 5-8 miles on that a day).
  • editorgrrl
    editorgrrl Posts: 7,060 Member
    The only caveat I have to the thyroid diet is that if you have Hashi's there may be certain things that trigger your auto-immune response. Common culprits are gluten (wheat/grains), casein and lactose (dairy) and certain cruciferous vegetables. I personally have no problem with dairy, but I do have symptoms again with the grains, so I generally stay away from them. Since doing so, I've had far fewer flare-ups.

    According to the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/hypothyroidism/expert-answers/hypothyroidism-diet/faq-20058554

    "Is there any truth to the hypothyroidism diet? Can certain foods increase thyroid function?

    Answers from Todd B. Nippoldt, M.D.

    Generally, there's no hypothyroidism diet. Although claims about hypothyroidism diets abound, there's no evidence that eating or avoiding certain foods will improve thyroid function in people with hypothyroidism."
  • lindsey1979
    lindsey1979 Posts: 2,395 Member
    editorgrrl wrote: »
    The only caveat I have to the thyroid diet is that if you have Hashi's there may be certain things that trigger your auto-immune response. Common culprits are gluten (wheat/grains), casein and lactose (dairy) and certain cruciferous vegetables. I personally have no problem with dairy, but I do have symptoms again with the grains, so I generally stay away from them. Since doing so, I've had far fewer flare-ups.

    According to the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/hypothyroidism/expert-answers/hypothyroidism-diet/faq-20058554

    "Is there any truth to the hypothyroidism diet? Can certain foods increase thyroid function?

    Answers from Todd B. Nippoldt, M.D.

    Generally, there's no hypothyroidism diet. Although claims about hypothyroidism diets abound, there's no evidence that eating or avoiding certain foods will improve thyroid function in people with hypothyroidism."

    Well, there are others out there that disagree with Dr. Nippoldt - -such as Dr. Kresser and Dr. Kharrazian. Elimination diets have been well-known to help out with auto-immune disorders for a long time -- this isn't anything new or shocking and I don't see why an auto-immune thyroid disorder would change from other auto-immune disorders. I know I personally have seen a difference with different foods and my reaction. So, I think it's great that some like editorgrrl here doesn't notice a difference, but I wouldn't mistake that for saying such a thing is an impossibility for everyone.

    Plus, it's something easy everyone can try. If it doesn't work, no harm done. But if it does, it can be quite life altering. Or, I guess you can just wait around until more studies come out...